looking for mom's who are,,dealing with,,sick babies

Rebecca - posted on 01/03/2013

can you please tell me how your daughter is doing and there is a place you can go too its neverendingsquirreltales.com my email is bc7975058@gmail.com

Lisa - posted on 01/18/2012

yes and no,,i read some post, from other parents,but they where old post,,like a couple of years,and didn't read any post, of parents, dealing with same illness as "payton" she has soft tissue sarcoma cancer,she's 71/2 mo.old,,it's a rare cancer, plus she had 2 tumors removed..1 was 13cm and the other was 6cm...i was just looking to see if any other parents had dealt with this kind of cancer,treatment,prognoses someone familiar with type of cancer..looking for support/it's very difficult ,,trying to find info on this cancer in infants..thank you for asking,and i'm still reading post...a lot of sad heart breaking ,life stories out there...

Sharlene - posted on 01/18/2012

Hi Lisa, Just wondering any luck yet finding a community or what .

Alexandra - posted on 01/18/2012

i am so sorry for all this. be strong.

Lisa - posted on 01/15/2012

i'm so sorry to her about your son,,there are so many different types of illness,,and when your child are someone you know is diagnosed with something,,the reality of how fortunate ..ppl. are to have a health child..my granddaughter ,payton is 7mo.old and on nov9,2011 she was diagnosed ,,with soft tissue sarcoma cancer,,we had never heard of this it took dr.'s 3 weeks to finally determain what type of cancer it was,,she had 2 tumors removed 1 was13cm and the other was 6 cm,,,now she is taking chemo once a week,,,so hard to see,,this baby go thru all of this i pray day and night,,what she is strong enough to beat this honorable cancer...thank you for sharing your story with me and god bless you and your son,,,i'll pray for him...

Nydia - posted on 01/15/2012

My 20 month old son was born with many health problems. He was born prematurely , he has down syndrome. Besides th ds he has pulmonary hypertension and jas a trache and is vent dependent. It's very difficu habonb a sick child. I can understand what h r gojng througj.

Lisa - posted on 01/14/2012

thank you,for your help,,,and yes i did go to health and disease.thanks again

Sharlene - posted on 01/14/2012

@Lisa ,Did you go to communities and under health and disease and special needs , Or Try moms support groups in commnunuity as well speak to the Adm of cirlce of moms to see where you can start or if theres a support group for moms with seriously ill children , My prayers are with you and your little girl and your family, And I hope you all the best

Lisa - posted on 01/14/2012

thanks for responding,,and i have thought about if there was not a place (community)on here,that i could start one,,don't really know what to do..thanks for your help

Sharlene - posted on 01/14/2012

Check under communites health and disease with special needs children or why not start your own community.