Tara - posted on 11/12/2010 ( 4 moms have responded )
My 5 month old daughter was just diagnosed with craniosynostosis. She has fusion of the sagittal suture. Has anyone had experience with the surgery that can tell me what to expect before/after? They are indicating that we won't do surgery until she is 9 months old. My sister had the same fusion, but they did surgery at 10 weeks and it was in 1969. I'm sure a lot has changed since then.