My son has to wear a helmet, b/c of plagiocephaly...

Heather - posted on 08/10/2009 ( 15 moms have responded )

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Does anyone elses child have to wear this....and how did you handle it? I'm having a hard time...I feel so guilty for him. He's going to have to wear it for 3 months, for 23 hours per day.

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Alison - posted on 08/14/2009

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My son need a DOC band also and wore it for 3 months. He was about 3 months old when he got it. I was really worried that he'd be bothered by it, develop a rash, wouldn't be able to sleep, etc. Thankfully, none of the above happened and he tolerated it extremely well! As you know, time goes by quickly and this too will pass. Then, your baby will have a nicely shaped head. It's worth it! BUT, do be prepared for some looks when you're in public. 99% of folks mean well, and they will look or stare b/c they've never seen a DOC band before. It took some thick skin getting used to it because I never wanted people to think anything was wrong with my baby (developmentally). However, it truly makes you feel empathic for other people with disabilities that need to wear/use some sort of "device" if you will.

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Julie - posted on 08/16/2009

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My son just got done wear his helmet! they become their own charater in it! We decorated his. People do give you funny looks but it's soooo worth it in the end! Trust me

Jessica - posted on 08/14/2009

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My friend delt with the same issue. I will say that in the end the helmet worked wonders and after those few months he was helmet free!

Kasey - posted on 08/14/2009

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My son had severe hydrocephalus when he was born. (fluid on the brain) so once the shunts were under control he needed a helmet to help reshape his head. He went through 3 different helments. I think the hardest part for him was just getting used to it, the hardest part for me was making him wear it in the hot summer heat on our outtings, even if it was just in and out. The hardest part for my husband was having people looking at us. At one time he ask me to take it off him so people wouldn't look and I refused. I wasn't going to change our routine for that reason. It is hard for more than one reason but it will get easier as time goes on. It is all for medical reasons so in the end it is worth it!!!! Stay tough and reach out for support!!!! We are here for you!!!!!!!!!!!

Heather - posted on 08/14/2009

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When they measured my son they got a centimeter difference on the shape of his head. But the flatness is affecting the shap of his face, and the alignment of his ears. (The right one is pushed forward about a centimeter) I know he wot remember it...and I know it's for the better in the long run. I can't wait to get it started and get it over with.

Cindy - posted on 08/14/2009

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HEY LADIES If you notice a miss shaped head. GO to your DR IMMEDIATELY, the earlier you can catch it, the easier you can fix it. I wish I could show you the pics of my son because we waited to long. But I can't figure out how to do it.



If you can get it noticed by Doc, he can put you in a therapy which will fix it with out a helmet.

Just be PROACTIVE. Don't let your friends say, "Oh they'll be fine, it will just grow out." It's will not fix itself. You need to get Proffessional HELP. If you notice it, you need to get help.

Cindy - posted on 08/14/2009

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You will be FINE. My son had to wear one as well. You just have to remember to take it off for that 1 hour. Our boy did just great. The end result was amazing. Don't be upset or worried. 1 in 10 kids should have the helmets, but only 1-10 that need them get them.



Everything will be great.

Lenka - posted on 08/14/2009

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Hi, I only met one girl with the helmet and she didn't mind wearing it at all. Her mother said she got used to it quite quickly. She was happy with the results.Our son has a flat head (he strongly prefered sleeping on one side when he was a baby and I didn't start positioning him soon enough) and we also got a recommendation for the helmet. Eventually we decided not to go for it because he didn't have any other health issues (torticollis...). One of the reasons was that we couldn't imagine him wearing the thing almost 24/7. For him it means that his head will stay shaped funny. He is now 15 months old and without the helmet there hasn't been any visible improvement at all. We are Ok with it because it doesn't effect his face. Had it been otherwise, we would have gone for the helmet probably. If your son's head is mishaped quite a bit, do not expect much change if you decide not to do the helmet. Anyway, for us the main question was if it was just cosmetical issue or if the mishaped head could effect functionality of our son's brain etc. Talk to your doctor. However you decide, do not feel guilty for it! You are doing what you feel is best for your son. Once they are teenagers they will question our decisions about their lives anyway :) Good luck

Miri - posted on 08/13/2009

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Hi Heather,
My daughter who is now 3 years old had to have one of those helmets from when she was 6 months to about 9 months of age. She favored to sleep on one side and we didn't pay attention to that until it was to late. It was really hard on me and my husband, the worst part was trying to put it on after her one hour breather. But the end result is worth it. What we kept telling ourselves is that they are at the age still where they don't remember things or the pain after an hour or so. If you have anymore questions you would like to ask me since I've been through it already please don't hesitate to ask, I am more than willing to offer any comfort or help I can give.
Miri

Lucia - posted on 08/13/2009

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hi there,

i was reading about how your child is looking or in my case tilting her head to one side. my daughter always did that. since she was born. i thoughi that it was because her head was heavy. i then mentioned it to my chiropractor and he said to bring her in. i took her in and he basically ajusted her. after 2 visits she never tilted her head again. just thought i would let you know about that and that it really helped us. take care

Heather - posted on 08/10/2009

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Quoting Katarina:



Quoting Heather:




Quoting Katarina:

Do you mind me asking how old he is? My son's head is starting to shape funny and I'm a little bit worried. He's 4 months old.







 








He is a week from turning 7 months.  But I noticed the change at 2 months old.  If you notice any change go talk to your pediatrician. My son also had tortocollis...which is a neck issue which made him always look to one side. I saw my Dr right away...and he told me to take him to physical therapy....and he's still in PT since a week after I found out the flatness.








 








Hopefully your son doesn't have this issue....good luck  :)










I haven't noticed tortocollis, but he has a preferance for one side. I do put him on opposite sides of the bed. He has an appointment on Thursday so I'll bring it up then.  Thank you and good luck with your Little Man also. Did your son have calcium deposits at the base of his head?





 



 



Nope, no calcium deposits.  But definitely ask at his appointment...I hope everything turns out to be nothing  :)  This has been a long process for us...and a little part of me is glad to finally get this helmet on and get him back to where he needs to be.  :)

Katarina - posted on 08/10/2009

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Quoting Heather:



Quoting Katarina:

Do you mind me asking how old he is? My son's head is starting to shape funny and I'm a little bit worried. He's 4 months old.





 






He is a week from turning 7 months.  But I noticed the change at 2 months old.  If you notice any change go talk to your pediatrician. My son also had tortocollis...which is a neck issue which made him always look to one side. I saw my Dr right away...and he told me to take him to physical therapy....and he's still in PT since a week after I found out the flatness.






 






Hopefully your son doesn't have this issue....good luck  :)






I haven't noticed tortocollis, but he has a preferance for one side. I do put him on opposite sides of the bed. He has an appointment on Thursday so I'll bring it up then.  Thank you and good luck with your Little Man also. Did your son have calcium deposits at the base of his head?

Heather - posted on 08/10/2009

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Quoting Katarina:

Do you mind me asking how old he is? My son's head is starting to shape funny and I'm a little bit worried. He's 4 months old.


 



He is a week from turning 7 months.  But I noticed the change at 2 months old.  If you notice any change go talk to your pediatrician. My son also had tortocollis...which is a neck issue which made him always look to one side. I saw my Dr right away...and he told me to take him to physical therapy....and he's still in PT since a week after I found out the flatness.



 



Hopefully your son doesn't have this issue....good luck  :)

Katarina - posted on 08/10/2009

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Do you mind me asking how old he is? My son's head is starting to shape funny and I'm a little bit worried. He's 4 months old.

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