safe haven 4 adhd , and add , autiusm , cerbal palsy , ms , me , gait ,

MOST HELPFUL POSTS

Sandy - posted on 02/03/2009

4

11

1

My daughter is 7, she has been diagnosed with adhd and high functioning autism. I am very frustrated at the lack of professionalism by the schools and the para pros that work there. Any ideas on how to deal with this.

Kimberly - posted on 12/03/2010

7

23

1

I also am a mother of an adhd diagnosed child. and I am aready arming myself with as much knowledge I can. so I can work with my child and his teacher, and the school as a whole. I am not sure if anyone has found or checked out the site for chadd. It is chuck full of everythign you have to do to secure your child gets what he/she is entitled to. and how to best advocate for your child.
lastly I would just like to say, consistency is a huge factor. routine does work. but as kids get older they also need to learn that not everything happens in a neat little package. and sometime you have to alter their routines, trying to plan ahead eases the anxiety
If I can be of any help to any of you. Please feel free to ask me anything.in regards to add/adhd, GAD, and even depression. as well as maternal depression.

Julie - posted on 10/13/2010

114

36

6

The first thing the parent of a child with special needs must find out is what is your child entitled to your first objective must be getting them statemented as until your child as a statement of special needs you will keep meeting brick walls. Once they are statemented your rights improve and are inforceable remember knowledge is power. You have to learn to fight for your childs future the right help and support can make a huge difference in your childs future and their ability to become good parents themselves epathy will get you know where no one else will do it for you or your child. If you let them slip through the net it is such a waste of a young life that is full of potential, just the same as any main stream child. Doing nothing does not just affect your child it affect your Grandchildren and future generations. Your child needs not only your love, it needs you to fight in their corner for their future. You will never regret it. Yes its going to be hard work, however if it was easy would it be worth having? its going to take time, the side affect of helping your child is it will build your own confidence ,at the same time and you will be surprised how many parent become paid advocates for children. You will be surprised what doors you can open by not taking no for an answer. Some have asked me what are the symptoms they are as different as each child is different these are the most common

1. concentration 7 minutes 10 at the most 2. short term memory retention 3. drink like a fish a constant thirst. 4. Changes in their routine will confuse them causing aggression or tears 5. They find changes to those around them as well can be a problem 6. dietary allergies (buy a book call E for additives learn to read labels) Other allegies as well. The question I'm asked the most "How do you cope that I can only answer the same as I tell anyone else & that you just get on with it one day at a time you will be surprised what you can do. Don't forget each child is different even within the same family or same additives one child will become aggressive while another will be weepy or withdrawn remember you know your child better than anyone. My moto as always been All you can do is the best you can do. All you can be is the best you can be. No one as the right to judge you.

best wish's to you all.

Julie Evans

parent of two adhd girls now mother to 2 special needs Children my Grandsons and a foster parent retired. Every child is worth the love and effort we give them no matter what their challenges in life are they are our future.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

18 Comments

View replies by

Julie - posted on 03/04/2011

114

36

6

Hi Keep reading this page we are all parents going through or who have been through it with our children and now going though it again with our Grandchildren like myself The best advice I can give is knowledge is power you must find out what your child is entitled to by law then fight to make sure they get what their entitled to my e-mail is ameythestwitch@live.co.uk if you ever need to talk
with love and light
Julie Mother and Grandmother of children with adhd and autisim

[deleted account]

Cathy - I have son who has HFA and ADHD. I too pray alot!!
I have to say it hasn't changed the diagnosis - I do think it often changes my perspective and at times been the only thing that has enabled me to keep going when things are tough. More than just prayer tho - a relationship....

K - things are kicking off again - need to supervise!

Julie - posted on 02/25/2011

114

36

6

Hi Anthea
the only people that understand what it is to have a child like ours is people who have gone through the challenges themselves. It is not something that can be learned from a book every child is an individual with there own ways of dealing with the challenges life is throwing at them I had 2 daughters with ADHD the eldest as OCD as well both have above average iq but under achieved at school. They are now parents themselves my youngest Grandchild is showing all the signs of a child with ADHD/ Aspergers So you are the expert however you still need friend who understand what it is your going through
with love and light Julie

Nat - posted on 10/30/2010

9

2

0

The best advice I can give to anybody with high functioning autism and aspergers is to keep up good relationships with your school. These children are baffling to most teachers and principals as they look quite sweet and un assuming, however once they are taken beyond their comfort zone can become violent, unreasonable, and "normal" behaviour management goes out the window as they simply do not comply!

If you go in guns blazing, no principal or teacher will take you seriously...they will take you as one of "those" parents. You need to work WITH your school. Have regular meetings in good months as well as bad. Ask for professionals to be brought in to do assessments, give practical advice for YOUR child, and give the school ongoing support. If your child has a medical diagnosis you should be eligible for some assistance from autism societies etc (in Australia anyhow, I would hope other countries show the same level of support).

If your school is unwilling to work with you, and I realise this sounds easier than it actually is....change schools! You need to do what is best for your child's future, and struggling with a non responsive school for years on end is not only frustrating for you, but torture for your child! A school who is willing to work with you and your child will make all the difference to helping your child function as a healthy member of society.

You need to be the voice for your child. Ignorance towards autism, aspergers and adhd are rife in todays educational settings, and only you can ensure they are treated with the respect and care they deserve!!

Annabel - posted on 10/13/2010

30

0

2

My 4 year old son is only 4 and he was recently diagnosed with moderate ASD and very mild ADHD he started full time school in september of this year and we have noticed a huge change in him. He also has 121 during play and lunch time and Daniel has now started making friends at Townhill Community School. His teachers are fab and he loves going to school on a morning with his escourt and friends. Untill recently I did not know what ADHD or ASD were but now I do thanks to the NAS and the help and support have been great.....

Julie - posted on 09/17/2010

114

36

6

HI I'm a Grandmother both my daughters had ADHD with behavourel problems 1 aggressive 1 introverted both had moderate learning disabilities however just getting to the point of a full diagnoses took many years in the UK their are so many doctors who still believe its just a fad their no funding and just trying to get your child statemented is a logistical nightmare both my girls are parents themselves now and we are still fighting the same issues now for the Grandsons both showing signs in one form or another of ADHD. I envy the American parents where children with ADD, ADHD, OCD Autisim are treated like individuals with individual needs and theirs such good support in the school compared to British schools. Because my daughters can't fight for my Grandsons I have to and its draining me.
Julie Evans

Skie - posted on 07/12/2010

32

72

0

im just wondering if anyone can tell me someof the symptoms of add and such i have a high family history of Add and AdHd and believe my son my have it

he has a short attentionspam is easily aggitated his displays siigns of ocd he can not handle rutine change

[deleted account]

Hi Sandy - is this is recent diagnosis? If so it make take your school time to adjust and get best solutions for her. My son is 8, and was diagnosed only Sept last year, but got full diagnosis at Christmas of ADD and HFA.
We have home-schooled for years due to the problems, but as we got stricter and firmer his behaviour got more violent. I have a young baby and things needed to change. School was the only option, and seeing the paediatrician, speech pathologist and clinical psych gave us the diagnosis.
Work with the school for the best outcome for your child. Try not to criticise, but go with your concerns and seek how you can solve them together. My son now goes to school part time, and gets an aide for those 3 days.
Which country do you live in? Have you contacted your local autism group?
We have just been trialling some meds - partly cause he would be on a 'high' for days and unable to sleep. He has had melatonin for nights for some time, but we have been really against any other form of medication. However his behaviour was getting harder to handle, and he was unable to bring himself down from these 'highs'. A friend pointed out that if he was diabetic I wouldn't keep him from his meds, so why should I with a mental disorder? Scared of what people might thinK?
Anyhow I went to the Dr and we asked for something to help him on his really bad days - nothing he had to take every day. We ended up with a form of valium. We were supposed to give it 3x a day when required. This seemed a lot to me. The first time I gave it to him, I only gave him 1 tablet - not a massive difference.
The next time he had 3 throughout the day - he was totally different. I asked him what he thought - he said he really liked it as it stopped everything rushing around in his head! He didn't come across as drugged or dopey. he appeared as a normal healthy 8yr old boy - much to my relief. He calls it his calm down tablet! Occassionally he has asked for it.
Anyhow, sorry got off track (just re-read your original post) What is it that you are most concerned about - you mention lack of professionalism, in what way is this showing?
What are you currently getting and what are you wanting?

Sofie - posted on 06/18/2010

1

6

0

I just became a distributor of a whole foood product- fruits a veggies in gummies for kids. It has been around for 17 years and testemonials shows really big improvements in ADHD and especially autism. You really have to look into this product for the benefit of your children!!! you can look it up at www.sofiejuiceplus.com

Trisha - posted on 06/17/2010

2

20

1

My 9 year old has ADD.Just started meds last year! His aggression sometimes makes me rethink the meds.Then I see his report card went from low B's and C's to this last one had 3 A's and 2 high B's.So I know it works for him.Just some side effects we are dealing with:(I need a support system.Hopefully I've found a great place for support and helpful info for families like mine!Thanks

Michelle - posted on 02/07/2009

1

6

0

I was told all the time to be consitant.  It was and still is hard.  Do keep up on evreything and everybody.  I had great trouble in Florida Schools.  I now live in Virginia and my son is getting A's & B's, behavior is good and there have very very minimum of problems.  He still has some issues but I am still being consistant.  He has ADHD/Bipolar mix, OCD also.  Each day I do the best I can and will never give up.  I let him know I love him very much no mater what.  So never give up.  Find a routine it helps too.

Anthea - posted on 02/04/2009

13

49

0

we , as a family never gave up , even , when he would attack me and his sister , and older brother ,

tears tamper throwing things , recking stuff ,

crying out for help ,

we kept on the the education , cahms , and behaviour clinic

some times 4 times a week , or every day ,

police were called on some occasions , as he would go off ,

be gone for over 5 hours ,

run out of school ,

swear , ect

wot area are you

keep on the the clinic , and cahms ,

i was even crying down the fone ,

go to the doctords if things are that bad , make them help u too

Sandy - posted on 02/03/2009

4

11

1

My daughter is 7, she has been diagnosed with adhd and high functioning autism. I am very frustrated at the lack of professionalism by the schools and the para pros that work there. Any ideas on how to deal with this.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms