What Do I DO

Shawnn - posted on 10/09/2012

Hey, trust me, it's a long haul, and at times it will be problematic. Just keep your head up, keep positive thoughts going, and be strong!



The good thing is that, if he truly has a seizure disorder, and that disorder can be maintained with preventive meds, that is actually an AWESOME thing. Because, prevention is half the battle.



Keep an eye on your little one, especially during the first couple of weeks on the new meds, and if his behaviour changes, or you notice anything that is not normal, make sure that you mention it to his doctors.



Again, best of luck! You and your little guy will do just fine :)

Samantha - posted on 10/09/2012

Thanks alot !! I really appreciate it . Now I took time and gathered my thoughts and this dr had another dr in with him and they both said this was the better decision. They said this was a preventative med. thats why they wanted to do it.I mean the man obviously knows what he is doing. So now i have to relax and realize this is our life and quit being in denial . It seems like a bad dream but i know I wont treat Jackson differently because of it . And I hope I am doing the right thing. Again thank you all for your advice!!! :) We appreciate it.,

Shawnn - posted on 10/08/2012

Ok, Samantha, then I must have misread...oops :0



What you need to do is explain to him that you would like a second opinion, and ask who he could recommend for that. Since he's a specialist at Children's Hospital, he should have no problems with coming up with a colleague to refer you to, nor should he have an issue with you wanting an additional consultation. Most specialists will recommend that you get additional consultations before making any large medical decision.



Somehow, I read that they'd put the baby on the meds, and you wanted to stop giving them, my apologies for misunderstanding.



I will say this though...our local Children's Hospital is one of the top 10 in the nation, and I wouldn't hesitate to do anything that any one of the specialists recommend. And this is coming from my eldest having medical issues and being inadequately treated for them for 16 years before we got referred to Children's in Aurora. They have never hesitated in scheduling consultations for second opinions, nor in explaining things multiple times to make sure that I understood exactly what they were doing and why. A Children's Hospital is a superb place to have your boy seen.



So, I wish you the best of luck. If your current doctor has a problem with you requesting the 2nd opinion, then you have your answer right there. Leave that doc and find another.

Samantha - posted on 10/08/2012

again he HAS NOT been on meds yet

Samantha - posted on 10/08/2012

No my son hasnt had meds yet. the dr told me today he wants to start them . today he wrote me a prescription for keppra... Jack my son hasnt had a seizure in atleast 2months now but because he has had 3 seizures they want to put him on meds. i dont feel its necessary

Shawnn - posted on 10/08/2012

If you don't trust that your Dr. is paying full attention to your case, then get a second opinion. But, NEVER pull a child off meds that they are accustomed to. It can cause serious side effects and other medical issues.



Just to clarify: Your son had seizures, so your doc put him on a medication. Now he doesn't have seizures, so you want to stop the med. Right?



Here's the deal with that. Just because the seizures have stopped since he started taking the meds DOESN'T MEAN THAT THE CONDITION HAS GONE AWAY. It means that the condition is being controlled by the meds, which is what is supposed to happen. You don't know if your son's seizures have gone away completely, you don't have the equipment available to you, nor the knowledge, that you need to make an informed decision.



If you are concerned with overmedicating (which, I don't blame you if you are) then you need to consult both your original physician, as well as another, impartial physician for a second opinion. Especially in the case of seizure disorders!



Best of luck

Clare - posted on 10/08/2012

I no how you feel i seen a number of Dr's about my son as i didnt believe what they was saying it turns out i was right to not believe them, there not always correct. Be careful and good luck x

Samantha - posted on 10/08/2012

Thank you ! Ive thought about that,but there arent many pedi neuro's around. He went to Nationwide childrens hospital and the dr is one of the specialists.Im so worried if we start the meds it may make it worse. again thank you!

Clare - posted on 10/08/2012

Do you trust your doctors diagnosis? if not it maybe worth you getting a 2nd opinion to put your mind at ease