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Why should I have to make this decision so young?

Amber - posted on 09/14/2010 ( 2 moms have responded )

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Ok first of all I am not that young according to most. I am 30 will be 31 next month. I have had endo for pretty much ever I was diagnosed when I was 22 or 23. I have had 6 surgeries do to my endo. They have removed my left ovary and tube and it wasn't until then when I was 28 that I was finally able to get pregnant. My son was is going to be 2 in January and I feel truely blessed to have him. I have had one surgery just a D&C and some surgery on my bladder due to my interstitial cystitis since my son was born, but not for my endo. I am having almost constant pain and the bladder dr keeps sending me to the gynecologist and he keeps sending me to the bladder dr. I know something is wrong with me and I feel like they are passing me back and forth. I am taking medication for my bladder have been for months and I take constant birth control to not have periods because the pain in unbearable then. I have also been getting pelvic floor physical therapy and I am so frustrated. I finally called and told the nurse I think I am being passed back and forth and doing everything and no one is helping me no one is making my pain go away. She gave me an appointment and told me I need to realize that I need to get a hysterectomy or they can't help me anymore. I feel like having an emotional break down right now. One I want the pain to stop and two I don't want the option taken from me to have more children. Pregnancy was rough but I would do it again I just didn't want to so soon. I want to provide the best for any child I have and we live in a two bedroom house and I would like to move somewhere with more room and I would like other things to be more secure and then have another child I also don't feel my fiance is ready yet for another child the only reason I would be is if this is my only chance. I just don't think it is fair to make me make this decision now but I do want help with this pain. I really feel on the edge at a point where emotionally I am so fragile I may break.

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2 Comments

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Christie - posted on 01/31/2011

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I am 32 and had a hysterectomy about 4 years ago. It didn't solve the problem... in fact it created a few. A hysterectomy is not a cure for endo, especially if you have it in areas other than what is being removed. There are a lot of new options out there, so don't give up. I know it's hard, believe me. I was diagnosed about 10 years ago and have had 11 or 12 surgeries. The Endometriosis Association is a good source of information, and they've published a few books on the subject. If you become an expert, it makes it harder for medical professionals to fluff you off. You're not alone!

Stephanie - posted on 11/20/2010

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I am very sorry for what you are going through. All the women on my mothers side have endo. I was dianosed when i was 21. I cannot take birth control because it make me very sick. With the family history i knew right away what was going to happen and a general timeline. This forced me to make the decision to have my first child young at the age of 24. All the women in my family couldn't get pregnant after the age of 27. I will be 27 next year. I want more children but cannot afford to have anymore right now. However i am very open to adoption and so is my husband. Don't feel bad for taking care of you. Its not enough just to be alive if you can't truly live. Talk to your fiance about how you feel about wanting to try for another child. adoption is an option though i do not know have you feel about it.

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