Anyone else go thru this?!?!

Danielle - posted on 03/25/2010 ( 8 moms have responded )

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My daughter is now 5 weeks old. This past monday she had to go for surgery, we were happy and yet so mad at the same time, here's the story....... For about a week something was wrong with Rosalina. She started spitting up more than usually, than again she tries to eat more than she can handle thinking she's spitting up the portion that was too much for her. Than she starting spitting up more and more. I called her doctor on friday, he said just to be on the safe side go to the ER and get her checked out for Pyloric Stenosis. We brought her to the ER, waited quite awhile ( thought babies would be put in a room within 5 mins b/c of her age guess not!!!), she gets brought in and they decide to do an ultrasound to see if she does have pyloric stenosis. They told us no she doesnt have it and that its just acid reflux and sends us home. Yet they told us that, we knew that it wasn't it and something was wrong with our baby girl. We than tried to make it thru til her appointment on monday with her doctor. On saturday, it started getting worse, she wasn't spitting up, she was throwing up!!! Called the doctors office and wanted for the doctor on call to contact me. Again told me to bring her to the ER it;s probably reflux. We bring her AGAIN and this time we got a different doctor who seemed more concerned. She ordered x-rays and blood work for her. I told her my doctor thinks it could be pyloric stenosis, she says they are going to look into it. After hours of tests and waiting, the doctor says its acid reflux, gives us Zantac for the baby and sends us home. BTW the nurse we had I wanted to slap across her face! She was talking to my hubby and I like we didn't know how to take care of our baby!!! She's like " Oh I have a 1 and 2 year old babies spit up all the time, there's no reason to be alarmed or bring them to the ER." As soon as she said that, Rosalina throws up! I'm like "I know babies spit up!! But that isn't spit up, she's throwing up!!!" She was treating us like crap and I was furious!!! Anyways, we gave the Zantac a try with baby girl, doesn't work. She was still throwing up, she was in pain, hungry, and miserable. It was killing me and hubby to see her this way, i ended up crying with her, trying to comfort her. By sunday, she was getting worse with throwing up, it started to be more projectile. I called the doctors office AGAIN waiting for the doctor on call to call me back. FINALLY she calls me, I'm at the end of my rope with this. She suggests I bring her to see a specialist at another hospital. My hubby and I decided to do it, I couldn't bring her to the ER by us again if they are just gonna say shes fine and send us home!!! The other hospital was about an hour away from us, we took the trip out there. They took her in, the doctor came in we explained everything to him what was wrong with her and how we were at the other hospital two days in a row and they said nothing was wrong with her only reflux she was fine and sent us home. Right away he was checking her out, saw she was dehydrated, got her on fluids. Got blood work going, sent her for x-rays, did and ultrasound. After hours of tests and waiting, the doctor comes in and tells us she has Pyloric Stenosis. Our hearts dropped, we knew the only way to cure this problem was with surgery, we were hoping it was something else. The worse feeling in the world is having your baby going under the knife, but we knew it was for the best. The doctor had to have us transported to another hospital ( The one we went to, didn't have a pediatric surgeon) So he called an ambulance for us, I rode in it with baby girl while hubby followed behind. We went to the other hospital that was another hour away ( Now we are 2 hours away from home). As soon as we got there and went into the ER, there were doctors and nurse standing by waiting for her. I was so relieved that they were so helpful and full of information. They admitted her and she was in her room. The doctors came in and told us they wanted to do another ultrasound to double check on her condition before they do surgery. They do another ultrasound and verified her condition. The surgeon came in and explained the whole thing with us, her surgery, recovery, etc. We were both nervous about the whole thing, the doctor kept telling us " She's going to be ok, she'll do fine". Then a nurse came up to bring her down to preop, again nurses and doctors explaining things to use and all. Than the words I didn't want to hear " Ok, time to bring her back now" I held her in my arms, holding back the tears giving her hugs, kisses, and eskimo kiss(which she loves LoL) gave her to my hubby he does the same, we put her back into her crib, and watched as they rolled her back to the operating room. We go back into her room to wait while she goes for her surgery. I just lost it, I broke down crying. My husband tells me she's going to be ok. I knew she was, but the thought of her getting surgery at 5 weeks old, she's too little for it. After about almost an hour, her surgeon comes into the room, tells us the surgery went well, rosalina did great, and that shes in recovery and we would be able to see her in about 30 minutes. Once we left, we were so happy and couldn't wait to see her. When they called us down we couldn't wait, once we saw her we were so relieved she did good. Now the hurtle was to get her back on track. She was having some tough times keeping food down, which the doctor told us about, but we were working as a team to get her better. The nursing staff and doctors at the hospital were great!!! They were helping us helping her recovery and getting her on her way home. Finally after being there for a few days the doctors sent us home on Wednesday!!! We were so happy! We were also thankful for all the love and support we got from friends and family! We now know that she has a lot of people in her life that love her and will support her!!

Wanted to know if anyone else went thru something like this with their child.

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8 Comments

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Amber - posted on 03/26/2010

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I didn't go through anything as bad as what you did but I did learn the same lesson as you did. My son hadn't been sick until he was 1 which I felt so blessed for. At 1 he got a head cold everyone in the family did, but after a week of the cold he had an extremely high fever that wouldn't go away for anything and just cried all the time wouldn't walk wouldn't do anything. His dr. was out of town and since he has no health insurance I took him to a different dr. instead of the ER. The dr told me it was a virus and it could last a while. A couple days later things just kept getting worse so I took him back to the dr. who then treated me like an idiot saying I was just worrying too much and that I just needed to relax. At this time the lowest I could get my son's fever was 102.5 with medicine. He couldn't walk straight and I knew something was wrong but the dr. made me feel so stupid like I was just an overly emotional mom. After a couple more days of misery I took my son to the ER and luckily we have a top rated hospital really close to our house. At this time my son's fever was 104.8 so he could have had a seizure at any time. At first they were asking me why I would let it get this bad like I was a bad mom for not taking my son in sooner so I explained how I had and they were appalled at the way the dr. didn't treat my son and how he told me that I just needed to relax. So for me the dr. treated me badly maybe because my son is uninsured but hey I paid him cash for both visits it isn't my fault I don't have access to healthcare for my son. The ER for me was the best $1000+ I will ever spend. I learned though that next time when I as his mother knows there is something wrong and a dr. tells me there isn't I won't second guess myself we will keep going to different hospitals or dr.'s until someone helps my son. I actually cried reading your story because although my son's illness wasn't as bad as your babies I know exactly how you felt. Oh and what was wrong with my son was an ear infection so bad that his head and ear ended up swelling his ear completely stuck out it was the craziest thing I had ever seen. The hospital said it was really bad and that it definately should have been treated when I had gone to the dr. days before.

Sarah - posted on 03/26/2010

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Way to go with your gut instinct!! I have never been through any of this, but I'm sorry you and your little family had to! :( I'm really glad your daughter is okay.

Ashley - posted on 03/26/2010

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ive heard of quite a few stories with ERs. I actually had the oppposite in Ottawa, I took my son at 2 wks to the ER. He ended up having bacterial meningitis which i had noooo cllue at all. I just knew there was something wrong with him.To me he wasnt acting right. I had everyone (family) telling me he was fine he was just colic there was nothing wrong with him. Boy were they wrong! .....he was dying right infront of us and if we would have waited one more day we would have lost him. The people in ER were wonderful...actually except one nurse. Like you she was soooo rude to us. We had never been in a children's hospital so we didnt know if they had formula or what. I had only brought one bottle with me as i figured we'd be in and out....well he had his one bottle and i said i dont know what i'm gonn do he has no more bottles. She looked at my dad and i and said very rudely.....uhhhh we have formula here ya know. Other than that everyone else was great.....

Danielle - posted on 03/25/2010

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I can see Im not the only one dealing with idiots in the medical field. And this is for gail: No it wasnt bradford LoL it was Pocono Medical in PA. I hope everything goes well with your daughter and I hope you never deal with drs like we did. I'll tell you what if you in the PA area look up Geisinger hospitals, thats the one we took her too and I'll tell you it was worth takin the trip out there to find out the problem with her. I just hate the fact that just because they have a degree in medicine they automatically know whats wrong with your child and they act like you dont.

Amy: I hope her doesnt endure anything like that ever again. Its a scary feeling when you try to get help for your child and they turn you away. You feel like you have no where left to turn!! All i know is I wish we could get rid of all the idiotic doctors and nurses and just have the ones that actually care about their jobs and the well being of their patients!!!

Amy - posted on 03/25/2010

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I babysit a yr old boy and something like this happened to us. he was very sick and thowing up all the time and he had a 103 temp for 2 days well we took him to the dr and they said all 3 times that h was fine. well we finally got him into a dr at the good er here and he has severe ear infections which could have ruptured his ear drums making him deaf. and he has a really bad stomach virus. we were so angry. i hope your daughter is doing better and never has to deal with things like this again

Jessie - posted on 03/25/2010

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Never have had that, so glad your sweet girl is ok! You should go back to that hospital and tell all of those Doctors and nurses that they did NOT do their job and that they need to get with the program before they kill a poor little child. I'm glad you guys found a place that takes this type of thing seriously. Hope she keeps doing so well :)

Gail - posted on 03/25/2010

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did you by any chance take her to Bradford Hospital. That sounds exactly like something they would do. i haven't been through anything like that in the er. but my daughter was born with a disability. and it can affect all different parts of the brain and her hormone levels and growth. all of that. and after she was diagnosed i fought with and still do fight with her pediatrician all the time. they even threatened me with cys because my daughter was "under weight". and its a constant battle make them understand that its basically a side affect of her disability. and she also faces surgery when she turns three. i only hope we get lucky enough to find a hospital with great doctors and nurses like you guys finally did. your little one is a fighter.

Sarah - posted on 03/25/2010

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I have not. But it sounds like it was a very scary time for you! Im beyond happy to read that the surgery went well & little Rosalina is doing much better! ♥