napping and Optic Nerve Hypoplasia

Jennifer - posted on 11/01/2008 ( 5 moms have responded )

15

0

1

Hi, My name is Jennifer and this is my first child, Caleb, who was born on April 29th.
He just turned 6 months and has two teeth already and I think he's working on a new one.
He's rolling/scooting all over the place and will soon be crawling at the rate he's going.
Recently, he's started taking shorter naps during the day, (except for today of course, he's doing great!) and I'm trying to get my consistency back while still listening to his cues to see what's going on! He's also been waking up at random parts of the night wanting to nurse, so I think he may be having a growth spurt.

Also, My son has Optic Nerve Hypoplasia, which means his optic nerves are smaller than normal.
he also has a slight nystagmus-meaning his eyes wiggle or dance. It's very mild, much better than when he was two months old, but his optomolagist said he will probably have it all his life.
He's going for an MRI this month to check for any brain abnormalities, which the doc said is very unlikely since his vision is so good, she just wants to make sure. So if any one out there has these similar conditions, I'd love to hear your thoughts!

MOST HELPFUL POSTS

Lisa - posted on 11/03/2008

4

9

2

hi jennifer, my name is lisa and i have an 8 year old son with Optic Nerve Hypoplasia in his right eye.



I discovered the problem when he was 6months old as his eye would turn out when he was tired. Every year we went back and forth to the hospital just to make sure that it wasn't getting any worse and his left eye was normal, thankfully everything is fine and although he is almost blind in his right eye it hasn't stopped him from doing anything that he wants too. There were times when he would walk into things and to this day occassionally still does.



He was also put under a peditrician as there can be other abnormalities within the brain. A MRI scan was discussed with me when he was 2 years old but he would have needed a general anasthetic which i personally didn't want to put him through. They have told me that there is no known cure for this condition and as nothing is getting worse have discharged him from the hospital.



Earlier this year he was diagnosed with Aspergers Syndrome which is a form of Autism, his problems range from social difficulties with children his own age to obsessive compusive behaviour. He also has problems with reading and writing but he has a very creative streak. He is currently learning guitar and can play the keyboard alittle we try not to dwell on the bad points and find another way to teach him the things he lacking with the things he can do well and enjoys.



My 6 month old also has started taking shorter naps during the day and only has two 30 minutes ones, he does usually sleep through the night but he seems to be going through a growth spurt too and hes teething but this luckly doesn't seem to bother him.



take care lisa xx

5 Comments

View replies by

Jesika - posted on 10/07/2014

1

0

0

I have a two year old with optic nerve hypoplasia. Napping is almost non existent. For some reason children with this do not need sleep. I have spoken with other mothers and read stories. My daughter sleeps from 11pm-2 am on the dot almost every night she stays up until about 6 am. Then naps in the morning. A couple months ago it was just to play n be silly. Now during that time she screams bloody murder. She is inconsolable and her body tenses as stiff as a board. These are things I've learned to curve her behavior.

I child tea it is called sleepy time tea. My advice is to not use it every night. Its perfectly safe to but quickly build a tolerance too. Also i did an ounce or two added to her bottle. Depending on hoe big of a bottle shed take.

Cherry juice. I beleive i was told it increased melatonin. A small bottle before bed did the trick sometimes...

Sunshine spend lots of time outside. It takes a toll on both off you but also increases melatonin

My daughter has texture problems. She will not touch plastic dolls or anything soft. She won't touch animals at all. Sometimes it's the sheet or pillow i would have to change it.

I bought a vibrator for the bed. It slides between the crib rails under tge mattress

I hope this helps

Heather - posted on 11/13/2013

1

0

0

Hi! My name is Heather~my son was born April 29th too n has the same problem. We first went too a doctor n then we got a second opinion n this was what they told us about our son. I'm new too this site n I worry so much would like too know moms with the same thing

Allison Hannah - posted on 02/11/2013

4

0

0

My name is Allison i have a 6 month old with optic nerve hypoplasia that she will have it for the rest of her life. Her eyes wiggle its mild, but shes had it sence she was born we have already had the MRI done and she had blood work done to make sure it wasnt because of her hormones.... She is having therapy done with governor morehead preschool... Shes rolling around and shes tryin to start crawling. She has one tooth that shes had sence she turned 2 months old... Her name is Alexis and she is the only child i have. She still dosnt sleep all night and she dosnt sleep to much during the day but she has it in both eyes.... She does not have any brain abnormalities everything else is ok with her.. And the doctors said it want get any worse she has some vision, but she cant see but to a certint point if with in arms reach of her she can see you.. But she seems to be doin good with her therapy and she goes back to see the eye doctor in april.. so i want no anymore until then

Paige Amberlee - posted on 10/31/2012

1

0

0

my daughter was born with onh also in both eyes and she dont and never has slept through the night they said they see this alot in babies with onh and sod and when its nap time she only naps like 15 minutes at a time my daughter is almost 1 year old if u need any more info ill be glad to answer any questions

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms