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Amanda - posted on 09/07/2009 ( 3 moms have responded )




hi my name is amanda i had my baby girl called jessica born 28 aug 08 when she was 1 month old we found out she had a heart murmur then on xmas eve she was rushed down for heart surgery as we almost her, she is now one yrs old she has another heart murmur but tht is closing on it own she also has a leaking heart valve but need no treatment at moment,i also have another little girl who is 3 and she adores jessica


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Kayla - posted on 09/11/2009




My son had a congenital heart defect. He has Hypoplastic Left Heart Syndrome (half a heart) and has had 2 open heart surgeries...the first at 4 days old. It's really scary having a child with heart problems, the constant worry that somethings just not right, but you can't tell by looking at them because they don't show it!! I stress over it all the time, but my young 'uns doing amazing! He's got a 3rd open heart surgery coming up here soon and I hate to say it, but I'm so ready for it! It's supposed to be his last and I want to get it over with!!

You and your daughter are in my thoughts!!

Naomi - posted on 09/08/2009




Hi Amanda, your children are beautiful. I think you are one strong person, i could never imagine having to go through what you are going through, i really hope that Jessica has a long and wonderful life, i wish there was more that i could do, but please know, that even though i am a stranger, you have my support.

Adele - posted on 09/07/2009




Wow thinking of you!!!! It must be so scary having a little one with heart difficulties. Just wanted to let you know that you and your little ones are in my thoughts.

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