Autism

Shari - posted on 01/13/2009 ( 16 moms have responded )

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Hi everyone, i am new at this and my son is about to be tested for autism but i don't know much about it myself and it scares me. do any of you have any advice as to how i can show my son that i am not scared and we can get through it. i am on my own with his father out of the picture and i am not only a sole parent but also a full time uni student in australia.



Thank you

16 Comments

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Sharlene - posted on 12/10/2011

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welcome to circle of moms, You have to show no fear or that your scared course he probably does'nt understand the concept of your fear,Have you thought about seeing a coucilor or a support group .cheers

Frances - posted on 01/13/2010

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also go to youtube and have a look at all the success stories.

some have success and others have their dear children the way they are with a bit of improvement. at least they always stay loyal and true to what they believe in.

Alexandra - posted on 11/25/2009

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Sorry you might have heard this already but research, research, research. The National Autistic Society has masses of information which is extremely useful. Try to get in touch with local Autism groups, speak to the school your child is at and get an understanding of how they cope with autistic children, they may need to be educated! This group is a fantastic source of information, ask a question and hundreds will answer and its all first hand information too, people's experiences. Just remember the ASD Spectrum is massive, no two children are the same. No matter what you think you are not alone. xxxx

Stacey - posted on 11/12/2009

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hi Shari, I live in SA, where abouts do you live? My son has been in the process of getting tested for the last 6 months and we still have no assessment, but I am almost sure he has mild Autism, my son is 2 1/2. Do your reading, I found it helped me feel less hopeless and helped me deal with things, but you need to let yourself grieve too, even if you wait til your son is in bed or something, let yourself grieve and cry and get it all out, let yourself have all those negative thoughts because you need to get it out of your system, I did this and after I had a few breakdowns I started to feel more positive and rather than dwelling on it I started to look at what I could do for my son without waiting for the so called medical professionals. I have had my son on the gfcf diet for about 3 months now as well as going to speech pathology once a week and he goes to special school 1/2 day a week, but we have started seeing some real improvement in him and we believe most of it is due to the diet, and proof of that is when we give him something that we thought would be ok (and it had traces of gluten in it) and within an hour he was flat out flapping his arms (something that has really decreased since starting the diet). www.tacanow.org has good info and if you have any other questions Im more than happy to try to help, just send me a message.

Carol - posted on 10/25/2009

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Hi i'd just like to say good luck and be strong, you will love your child no matter what life throws at you. Get what ever help is offered to you and take it one day at a time.

Suzannah - posted on 08/07/2009

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There is a lot of variability on the autistic spectrum. Adults with autism today did not have the advantage of the current knowledge and intervention options available to our children. Read a book by Temple Grandin, an amazing autistic woman with a Ph.D. There are no limits attached to the autism diagnosis. Each child has potential and we just have to love them and help them learn as much as they can and see where they can go!

Lynne - posted on 03/25/2009

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I remember being scared and devastated when my Son was diagnosed; but knowledge is power and the advice below is great. I mourned for a long time for the Son I thought I had (and still do sometimes) but always loved and accepted the Son I have got! I hear a lot of people say that they wouldn't change their childs autism as it makes them who they are, I completely respect their view but would take away my Son's autism tomorrow if I could! Hang in there, you will get through this and you will cope!

Leona - posted on 03/10/2009

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Dont be afraid.  I remember way back when my son was diagnosed,  back then the stats were 1 out of every 150,000.  There was no ones else around, no groups, nothing.  Just keep life normal for him.  I was saddened but his father cried at the results and they have never had what you would call any real father son relationship.  So I know where you are coming from! Best wishes!  Let us know how it goes!



Leona

Misty - posted on 03/05/2009

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Hey there...I remember being scared too....but I had to look at it this way.....You are gonna love your son weather he has autism or not...and go from there....There is a lot of challenges but these kids thrive off of repetiveness(sp??) they learn things when you go over with them over and over again.....My 6 year old with autism is actually easier than my 4 year old who doesnt have it.....Just be strong and know that you arent alone!!!

Shari - posted on 02/02/2009

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Thank you ladies for all your support and advice. i am finding it really helpful and i know autistic kids are extremely intelligent and jack is no different but he just can't get his words out!



thank you so so much for all your advice and i am doing it and realising what i think about my son is not wrong and the doctor might be wrong for a change!



thanks again

Betsy - posted on 02/02/2009

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I agree ... with the previous posts.  EDUCATE yourself - however you can.  Internet, magazines, books - even YouTube!!  I was devastated when we received the diagnosis.  It takes time and your life might feel like it's crumbling apart, but your son is still your son and you will get through it no matter what.  You are your son's best  advocate and if you don't agree - please don't hesitate to say so.  You do know him best - despite what dr's and therapists suggest.  Definitely seek their advice, but apply what you think is and will be the most effective strategies for your child.  You're not alone - seriously. Also parent network in your area - through the community or school district - amazing the support network you can have locally.  There is so much more information out there than when I began this journey just use your discretion and you will be a champ!! 

Sara - posted on 02/02/2009

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Hello! I have 3 sons with Autism, 4year old twins and a 3 year old. I know that every situation is different and every child is different, and I can only speak from my experiences. It is an overwhelming situation to be thrown into, but I just remind myself, that regardless of what the doctors say or the tests my sons are no different today than the day before the diagnosis. They don't understand, and they don't have to. For my family it's more about changing mine and my husbands behavior, not our boys. They are who they are and are perfect that way. I'm sure you feel the same about your son too! You can get through it, as for me I wouldn't change a thing!!! Enjoy your son and do whats best for him. I like to think of it as 'My sons are not disabled, they  are differently abled'.  Just because your don has autism doen't mean he's not as smart as other kids. I think that kids with Autism are actually very intelligent, they just can't always communicate their wants and needs, and that's where the schools, therapists , and parents come in. To help them express themselves. Also, Jenny McCarthy's book Louder Than Words was a huge help to me. I found it very comforting to know that I wasn't alone!  I hope this helps. Just remember your son is perfect the way he is!!!

Shari - posted on 02/01/2009

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Thank you guys so much for the advice and i will take it on board. as i have just met someone new he is doing more in regards to finding out the information cause he wants to be there and help me and my son through this but i am trying to get as much info as i can and his specialist appointment should be soon but thanks again

Wanda - posted on 01/31/2009

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Step one is to educate yourself.  Google, Wikipedia etc... That is what I did.  I have 3 boys, My oldest is PDD, My youngest is ASD.  If you go into these appointments, and there will be alot, with some knowledge of the disorder, and the symptoms your son is displaying, you will be more comfortable with what the doctor is telling you and your son will pick up on that.  It is a long and scary process, but if you can realize that your son needs you to be his voice, it will make both you and your son stronger. 



good luck and remember to take this one day at a time.  It will be easiest that way to  not get bogged down in things that haven't happened yet. :o)

Kirsty - posted on 01/14/2009

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hi there i am a mum to a 3 year old and he was rushed to hospitial yesterday wiv croop and we found out that he has microcephaly which means his brain aint devolped propley it a type of autism not sure how bad he is yet we are just waiting for a letter from the specilists and we got to go for councilin to cope wiv his behaviour but he can be preeety naughty he does not listen to me only his dad we are a bit worried about it as we got a little boy who he can be violent to and i am also due in feb so a bit weary off whats to come in the future

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