Childhood Disintegrative Disorder/Heller's Syndrome

Tania - posted on 02/20/2010 ( 1 mom has responded )

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I would really like to hear from other parents who have a child with Childhood Disintegrative Disorder (also called Heller's Syndrome. It is a rare form of autism characterised by normal development to the age of approx. 3 years followed by loss of speech, social skills, play skills and toilet training with the development of REALLY bad 'tantrums' that can last for hours! I thought it might be good to have our own Circle of Moms community but I want to see if there is a demand for it first.

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Maureen - posted on 04/02/2015

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Hi Tania
My Son now grown up was diagnosed with Hellers Syndrome when he was 3.He now lives in an adult placement. If you would like to contact me feel free to do so
Maureen

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