Do your children have any other diagnoses? Which diagnosis came first?

Gretchen - posted on 02/20/2010 ( 43 moms have responded )

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Hello,

My son was diagnosed with Asperger's about 6 months ago. He is 13. However, he has had a diagnosis of bipolar and ODD since he was 6. Many things that I read seem to show that the ASD diagnosis came first, so I was just wondering if you do have a child with multiple diagnoses, which one came first. Having this additional bit of the puzzle has been so helpful for us, and I just think about all of the times that his behaviors were probably related to this rather than just defiance. I was just wondering how common this is.

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Samantha - posted on 03/30/2011

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I know there are some people who do not want a diagnosis but when your kids get older their life will be even harder. They need the help when they are young. Most of the diagnoses I have read on this site have all related to PANDAS. OCD, ADD, ADHD, anxiety, PDD, and many more. I choose to do the best I can....the kids deserve it. I have fought with doctors that think it is just how it is....well it isn't and they deserve a good life. I won't stop until both of my kids are well! I can't watch my kids go through this alone...I will be there every step of the way! Good luck to all the parents struggling don't give up our kids are worth it to find them the help they need!

Samantha - posted on 03/26/2011

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My son first was said to have APD (auditory processing disorder) from there was tested and then PDD (pervasive Developmental Disorder) which was Aspergers. He started preschool and was always getting sick, especially with Strep. We didn't realize that him being sick all the time was the problem. His immune system was going into overdrive and attacking the Basal Ganglia, which is an area in the brain. So, for many years we didn't know and did so many different treatments and therapies hoping he would improve. He is 12 now and taking antibiotics for over a year and started IVIG in September of 2010. We have good days and bad, but we know what was going on because my daughter was fine and at age 8 began similar issues. You can't catch Autism. She now also takes antibiotics and IVIG treatments.

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Clara - posted on 03/30/2011

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My son was diagnosed with Aspergers/FAE, Aspergers came first, He was 5 years old when he diagnosed, They also found he was FAE. They are similar in many ways,

LorAine - posted on 03/28/2011

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It was quite helpful to read all of these. My son (9) was diagnosed with combined ADHD when he was 7, shortly thereafter he was diagnosed with depression, anxiety (OCD), a sensory processing disorder and just last year he was diagnosed with PDD-NOS. it's been hard because I have been trying to figure out which approach to take with him.

Julia - posted on 03/26/2011

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My son was diagnosed with Asperger's when he was 3 y/o, then later diagnosed with the co-morbidity of ADD. He is so focused on his own interests that he dosent pay attention to things going on around him.

Tricia - posted on 03/25/2011

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My 12 year old has autism. He was diagnosed with tourettes syndrome 2 years ago

Larae - posted on 02/28/2010

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My daughter was diagnosed with early juvenile bipolar disorder when she was 4. She is now 12. She receives social skills training and onsite counseling with in our school as a result of her "emotional disabilities" disorder, however, everyone who works with her from the school psychologist to her county mental health counselor say she qualifies as aspergers. Unfortunately if we officially change her diagnosis on paper she would loose many of the services she receives. So on paper she is bi-polar.

Suzanne - posted on 02/28/2010

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My son was diagnosed with Mosiac Down Syndrome at 2 when I was first trying to get the autism diagnosis......didn't get autistic diagnosis until he was 15

Valerie - posted on 02/28/2010

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My son ws originally diagnosed with ADHD w/ Mild ODD @ age 4. at age 5 diagnoses of "mood" disorder and sensory integration dysfunction were added. At age 6 he was determined to have Pediatric bipolar disorder after he had a weeks stay in a behavioral health facility. All along I kept telling everyone he didn't have all of these other disorders, he was simply autistic, and if he was properly evaluated that would be their conclusion, too! FINALLY, 2 weeks before he turned 8 he was diagnosed as High functioning Autistic; which, by the way, before testing was begun, I was told by the psychologist that was going to evaluate him that she was positive he would not meet the criteria. It was determined that he does, in fact, also have ADHD, which hid some of the more traditional symptoms of Autism, such as appearing to be semi-social when, in fact, he is being impulsive. He also had a receptive speech delay until this year whenit was detemined he no longer had it. I workedwith children wit Autism for many years, which is why I recognised it when it pesented in my son. I saw this happen sooooo often with children who have Asperger or who are high functioning. Because they are not like "typical" autistic chidren they are misdiagnosed for a lot longer. My son also has physica health conditions on top of all of this, so his delays were origially attributed to being in hospital so often. Was your son delayed in any of his early milestones?

Maggie - posted on 02/28/2010

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Hi...my grandson who is 16 years old now has multiple diagnosis (7 in all), what came first, can't say. Nursery and School were less than helpful, my daughter spent hours crying, I got him privately diagnosed and the puzzle became clear. Think his first pointers were his sleeping (or lack of it) and interactions with his peers, then realised he didn't like staying away overnight from home, even to mine as his grandmother. Certain fabrics he hated the feel of, you could see him recoil from them, and reacted badly if anyone raised their voice to him, he was like a wounded animal and came out fighting. However now he is a lovely boy if a little insular, just going to start college this year for computing. Just enjoy your son and don't hang too many tags on him, although clearly coping mechanisms are important. Maybe my daughter will also reply to you. Best wishes.

Julianne(Julie) - posted on 02/27/2010

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the asd came first the others are secondary and often go hand in hand with autism. as a mom of a 21 year old son with autism and bipolar and adhd I can sympathize with what you are going through. you are correct they all are related and fairly common. hope this helps.

[deleted account]

I think you usually know your child best. 2 of my group where diagnosed with Autism like tendencies for school. I feel like one of this simply has the Asperger's with learning disabilities, and the other I feel has been misdiagnosed and ran into a disorder (verses a condition, there is recovery in a disorder if handled in a timely manor) which fits her situation better, the disorder is Reactive Attachment Disorder. I ran into someone else, who had a son diagnosed and talked to her just by chance and now I am running into walls trying to get her tested. My ex-husband recently sent me an article about how they educators are pushing for Aspergers or Autism to be kind of like a all in one fit and over diagnosing several kids with Autism, who really have different problems. I also think boys tend to have more energy and society excepts them to stay still more than they can handle sometimes at ages that are just too young. I do not know much about the bipolar moods. I would weigh out both disorders and see what fits him best. Sometimes we can only do the best we can do. I have dealt with learning disabilities my whole life, and have just learned to take things as they come. Somethings I do really well and the other stuff I either laugh or manage the best I can.

Jeri - posted on 02/26/2010

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my son who is 17 was thought to have abnormalities in the womb.was born physically fine, found to have developmental delays at age 10mths,found cerebral seizures at 2yrs,found to be deaf at 5 after several tube surgeries,and autism at 14.

Anne - posted on 02/26/2010

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First my son was diagnosed with ADHD in the public system and I just wasn't convinced so was went to see Dr Michael Fitzgerald in Dublin and he gave him a diagnosis of having a mixture of ADHD ODD and Aspergers that was Good Friday 2009 just a year ago. You can see the mixtures of his diagnosis as he is not very hyper but now the Aspergers trates stand out more, for me it's confusing because he doesn't fit into any one group.

Ronda - posted on 02/26/2010

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well in all reality it should have been our 1st diagnosis but it wasnt.Because at that time he was just a guinea pig to them he wa idagnosed with bardet-biedtl syndrome when he was almost 5 yrs old it is an autosomal recessive very rare genetic syndrome but the night terrors came as a baby nd they thought it was just something to do with what they were stil trying to figure out on him. the characteristics of this syndrome is as follows: loss of eye sight, kidney disease/ hypertension, aspergers autism/ or mild -moderate mentally handicapped, polydactyly/extra fingers and/or toes, undescended testes causeing infertility, morbid obesity due to the overgrowth,and the list goes on but he has been on meds since he was 3 for adhd even though they werent for sure of his condition

Kimberly - posted on 02/26/2010

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My 19 yr old daughter was diagnosed at the age of 4 with PDD with hyperactivity and Autistic Tendencies. I honestly think they had no clue what was wrong and decided to cover all the bases. She wasn't diagnosed with Asperger's Syndrome until a couple years after she started school

Laurie - posted on 02/25/2010

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My son was diagnosed at 2 years old with PDD NOS, then at 4 with ADHD combined with PDD. Every day its a learning experience, the right therapies, the right teachers, anxiety (our newest challenge)

[deleted account]

yes they can have aspects of my things my daughter is still adhd she can not function w/o those meds she does not have the control and having asperger's prolly doesnt help hehe she can not control the impusles she has w/o the adhd med that came first with her yup that may have hindered some at times trying to get the other diagnoses but who knows

Lorraine - posted on 02/25/2010

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Hi.. I have a 12 year onld son with Aspergers. He was diagnosed 3 years ago. He was first diagnosed with ADD. As a mother, I knew this wasnt right!! When he was diagnosed with Aspergers the light just turned on for us. All is behaviours just clicked into place!!

Heather - posted on 02/25/2010

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My son will be 17 in a couple of months. He was diagnosed with ADHD in second grade and Aspergers and cognitive Disorder Other (no natural organizations abilities) in 8th grade. He is currently a sophomore in high school getting mostly A's and B's in main stream classes (math is advanced) and he is now off his Straterra. In June he will be graduating from his Section 24 Habilitational Services as he no longer needs them. Hang in there. When he was your son's age I was lost and scared and angry that my son had thing so hard. Now I look at him as we plan college and I am so proud! Oh I forgot, to put all that energy to good use, he's on the wrestling team.

Erin - posted on 02/24/2010

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Wow! You all are amazing women- I work (& have worked with these kids for 15 years) at an adolescent residential treatment center and most of my children have multiple diagnoses... and MANY of their mom have bailed LONG before they came to me-sometimes I wonder if we were not better off with less knowledge only because then instead of having so much to deal with you just knew your kid was "a little different", "a rebel" or "a fire cracker" I have two children one, "at risk for Autism" and qualified for long term services when less than two the other Add, and starting to show signs of OCD, our poor children...I never push for a diagnosis...I look around at all the adults I see in the work force and I am SURE they have some SERIOUS character challenges (as do we all) and they are making it ok for the most part...I don't know, no words of wisdom here, just glad our kids have all of us on their side!

Kim - posted on 02/24/2010

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What you need to realize is there is no medication for the aspergers syndrome, but there is for the bipolar and adhd and the other mood issues. but if its just for aspergers syndrome, you will need to learn how to deal with it.

Kim - posted on 02/24/2010

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Hi Gretchen,
I have a 10 year old daughter with aspergers, bipolar and schizophrenia not to mention the panic and anxiety attacks that come with them . Oh, and we can't forget the ADHD too, The panic attacks and bipolar was confirmed first then the aspbergers, and the schizophrenia after that. I can recommend a really good book for you to read about aspergers. Its called the ASPERGERS ANSWER BOOK, top 300 questions parents ask by SUSAN ASHLEY, PhD. It has been a tremendous help to my husband and I. What I didn't realize was there was 2 types of aspergers, one where the kids are introverted (i have 2 nephews with this type) and one that the kids are extroverted (my daughter) I didn't believe my daughter had aspergers at first because she wasn't like my 2 nephews. But WOW did this book ever take away any doubt in my mind. Yes, it is very common for these kids to have multiple diagnosis when they have aspbergers. The behavior problems most likely are from the combination of all the diagnosis together. Its a matter of knowing what makes them tick and how to control them when they explode or misbehave. I wish you lots of luck.

Tina - posted on 02/24/2010

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My son was diagnosed with bi polar when he was 6-7 along with anxiety disorder and disruptive disorder. At age 10 we went through an extensive testing program with specialists and he was re diagnosed with PDD, Anxiety and ADHD. The reason he didnt get the full Aspergers was because he had a speech delay until he was 4. He is 14 now and does a peer interaction group twice a week along with starting independent living skills, Like learning how to cook, take care of bills, apply for jobs ect... He was labeled as defiant at school for years and still is sometimes. But I do think his disability played a part in that behavior, his teachers have become more flexible although he is still held to the same standard of behavior as the other students which is how it should be. I have not told him that he deserves special treatment although he knows he has 'issues' that he needs to work on and improve.

Gina - posted on 02/24/2010

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I have a 4 year old son who was first diagnosed with receptive speech disorder and sensory integration. We suspected more because he kept lining things up, doing complex puzzles, and ignored us often. After another year, we got the diagnosis of PDD-NOS with components of both Autism and Asperger, though not completely one or the other. We also have a daughter in kindergarten who as always been extremely bright, but had her own quirks. Her teacher thought she showed signs of ADD and was thinking of holding her back (I didn't understand why because she's been reading for 2 years), but when they tested her, she showed both vocab and math at 3rd grade level. The tests also showed autism spectrum tendencies when it came to social interaction and organizational skills along with possible ADD. Since we didn't get the results back from the school testing until the end of January, we're still working on the actual diagnosis from the Marcus Autism Center.

Lisa - posted on 02/23/2010

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my daughter was diagnosed with PDD-NOS on December 15, 2008. About 7-8 mo. prior to that, a different psychologist was speculating selective mutism but left her practice prior to making an official diagnosis. January 12, we got a "co" diagnoses of ADHD. I'm a bit confused by it all, too and am trying to research it all and take it all in, when I have free time as I am going to college full time.

Krista - posted on 02/23/2010

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my son had several diagnosis. at age 4 was ODD, age 5 ADHD, age 6 PDD-NOS, age 7 ASD. He is 11 now and doing phenomenal.

Tracey - posted on 02/23/2010

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First was ADHD at age 6 but he lost that diagnosis when he was 12. Then Aspergers at age 7 and ODD at age 11.

Christina - posted on 02/23/2010

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I can not stress enough for *everyone* to try and find a local community/county mental health department!!!! These people work with these children all of the time and have so many other resources to offer. Try googling (County Name) Mental Health Department. If that doesn't work contact your county health department and ask them...

[deleted account]

Anthony Diagnosed on paper with asthma 03/17/96 Bipoler 07/23/96 ADHD/MD/AS/ODD 10/14/08
and
Mykael Diagnosed on paper with EPILIPSY 11/17/2005 ADHD/PPD/OCD/ODD 10/14/08

Angela - posted on 02/23/2010

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Yes, my son was fierst diagnosed with ADHD and to this day this is still one of his highest "components" of Aspergers. My understanding is that although they do not lik to double-diagnose, if you have Aspergers, you can very easily have other syndromes or challenges as well. I read a great book about this as wella s discussing with Dr.'s. It's called Kids in the Syndrome Mix by Martin Kutscher. My sone clearly has some OCD issues and the ADHD. He will run around like a madman withno off button, can't sit still for more than a minute and puts on chapstick at least 20 times a day and whenhe does puts it on his mouth and around his lips about 10 times (other tic like things too but this is the biggest). It is very common and what I have been told is that these types of issues can be all part of the Aspergers as well. My son is on three different meds due to all of his issues and while I did not want to go down that road orginally, he is doing better than ever. I dealt with those defiance challenges too but they are far less now due to the Tenex which is a mood stabalizer. Another good book is to see what type of Aspergers your child falls into. This was a real eye openor for me. Parenting Your Asperger Child by Sohn and Grayson. There are subtypes of AS and once I identified where my son was it helped me so much. Best Wishes.

Andrea - posted on 02/22/2010

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Hi Gretchen, my name's Andrea. My six year old daughter was diagnosed with P.D.D.N.O.S. in January of 08 and then was diagnosed with O.C.D. about a month after.

Gretchen - posted on 02/22/2010

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The one official diagnosis my son hasn't had is ADD or ADHD. He can be very antsy and fidgety, and even though he was never diagnosed with it, one doc even tried Adderall and Stratera. Those were disasters resulting in hospitalizations. Since we are new to this diagnosis (although I am a teacher and have taught several children with Asperger's) it is a learning process. And, we are the only people I know with a child like mine. That can be very isolating.
Thanks for all of the responses.

Elizabeth - posted on 02/22/2010

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My son has also had a multitude of diagnoses. His first diagnosis was ADHD at age 4, then he was diagnosed with Bipolar Disorder NOS a couple of months later. He was diagnosed with Asperger's just this past October and he is 9. I think he also had a diagnosis of ODD at one time but that diagnosis didn't last very long.

Christina - posted on 02/22/2010

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My 8 year old step son who has recently moved in w/ us was originally diagnosed w/ ADHD. We took him to a *wonderful* ARNP and he is working w/ the local county mental health department. The ARNP & his caseworkers all feel that there many Asperger's tendencies that he is showing along with his ADHD.

We had no idea, including his own mother! We just thought that he was a difficult child due to his upbringing. Now he is getting the help that he needs for all of his diagnoses and he is doing great!

Cherish - posted on 02/22/2010

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Hi,
My oldest(17) was first dx'd with ADD,then a "mood disorder",then ODD,then PDD.
My youngest was dx'd w/ DD,then SPD,then at 3 was dx'd w/ Classic/severe autism...

Jacqui - posted on 02/22/2010

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I'll be interested to see what other responses are here - my 15 yr old is awaiting an Autism Assessment - adhd at age 7,+ LDs at age 10,+ NVLD at age 12..... it just keeps getting harder and harder to deal with him..... :(

[deleted account]

Hi Gretche, first it was ADD, since he was not hyper but was hyper focused to certain things, like video games... then it was CAPD, central auditory processing disorder, since he chose to respond to only certain things. That was the school's diagnosis in grade school. Then he was PDD-NOS after I got online and talked with a young woman in Sweden who had Asperger's. He had the hand-flapping and other symptoms. The therapist diagnosed him PDD-NOS, but honestly, I was the one researching online and taking him in to confirm with highly paid professionals what was going on--who mostly agreed with me, then asked for their hourly fee! My son will be 20, so there wasn't much talk about high functioning autism or aspies or anything like that here in America. I guess it's a good and bad thing we are all so much aware of this now. At least you have plenty of other moms to get support from! God bless you and your son.

Heather - posted on 02/21/2010

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i think it is verry common my son has had alot of different diagnosis first was adhd then mood disorder then anxiety disorder then psychotic then bipolar and aspergers and ocd

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