Medication question?

Heather - posted on 08/21/2009 ( 15 moms have responded )

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Any idea's..my son is aggresive right now it's gotten worse over the last few months he hit me in the eye this morning i don't think he meant to but it hurt. I'm a stay at home mom of 4 my husbands never here so i'm basically doing everything myself. He's 7 and nonverbal if he can't talk he has to vent his frustration some how so he gets agressive, he does use the PECS system he does really well with that,he's not potty trained, they told me to try a sensory diet, i tried the brushing on him, a weighted blanket , it dosen't calm him at all nothings working i need some way to clam him he starts school on Monday i'm so nervous. What medication is good for agression? i forgot to mention he has tried one it was abilify he had a bad reaction to it.

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Joyce - posted on 09/20/2009

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Hi dose B6 , Zinc and Lithium Orotate help with these anger agresive and explosive behaviors that are sometimes attributable to Pyrroluria . This is a condition often found in autistic children and criminals and bipolar individuals. Also DMG is a great helpl.

Marlene - posted on 09/19/2009

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My daughter also was nonverbal at 5 years and barely could speak by the time she was going to school. She was not fully potty trained until she was 5 also. We did not use medications on her we used intesive behavioral therapy such as speech and play therapy. I was at the school most of the time trying to teach the teachers how to relate to her. She had many melt downs and outburst that she could not help but with every melt down we took that individual episode and work with her to help over come the out of control agression. It took a long time and work at home and in the school and she is now a fully functioning young woman, she drives a car, participates in band and choir, she currently plays 5 instuments. I know what you're going through I thought I would have to put my daughter in a home somewhere by the time she was 18 but she is now 17 and has friends and boyfriends and is the secretary of her junior class. I was told that she would never potty train or talk or do much of anything but I just refused to accept any of that and worked with her with videos at the time Hooked on Phonix and that helped me teach her to speak and read. I know that sounds crazy but it really worked. Yes she still has her challenges at times especially emotionally but no more melt downs. I really do believe the sooner you get diagnosed the sooner you can begin extensive treatment. We started when my daughter was 3years.

Jennifer - posted on 09/18/2009

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OK, I am sorry that I didn't see this much sooner. I feel like I need to let everyone know this so they can at least beinformed, something that I was NOT. My son was put on medication for moods, to be stabalized, for many diagnoses, but to give you the rundown.... here are the basics. He has ADHD, aspergers, ocd, rad, ptsd, sensory integration dysfunction, delays in speech, developmental and social delays, etc. He is not mine biologically. He was never violent or agressive, but was put on the mood stabalizers to counteract the adhd meds because the adderal COULD cause agression. He was first given seroquil for moods. He did that from 4 to 5 yrs old. He took trazadone and melatonin to sleep but it did not help. At 5 yrs old, he continued his 20 mg of adderal, and was switched to abilify for his moods, ALONG with risperdal and clonodine to sleep and I was told I could keep giving him the melatonin because it is just a suppliment. The abilify was 15 mg. I was not happy about the abilify, and told the doctor that I was seeing side effects like "ticks" but was told that it was not strong enough, and those were my child's symptoms. They changed the dose of his risperdal from 2 to 3 mg, and kept him there for a while. At 6 yrs old, I said I was seeing major problems and side effects, and they again told me the meds were not strong enough to cover his symptoms. They raised his risperdal again to 4 mg, and told me to continue all of the rest. Last November, I had enough when my son went to turn to look at me, and had to turn his whole body because his neck and back were rigid. Itook him off of the abilify, and called his doctor. (pediatrician. The doctor who prescribed the meds was no longer working at the office and was being replaced by a PA until they found a new doctor) I told the pediatrician that I wanted to take him off of all of his med and figure out what was causing his side effects, if that is what they were as I thought, and he told me how to safely wean him dowm. I did and after 9 days of being medicine free he had a breakdown and ended up in the ER. The ER doctors told me that the problems I was seeing (major ticks, parkinson type movements uncontrolled muscle movements, etc) were my child's neurological symptoms off of medication. I was told to put him back on the meds immediatly, and to even raise the dose. I put him on all but the abilify, and just this past June with a new doctor, found out the real culprit. He has something called tardive dyskinesia. It is CAUSED by the drugs that the doctors gave him. The drugs (risperdal, Abilify, seroquel, to name a few) are dopamine blockers. When they are given in high doses, above 1 mg, they can cause this horrible condition. PLEASE if you are giving your child any of these meds., DO NOT ALLOW THEM TO GIVE MORE THAN 1 MG!!!!! That is he magical dose. Nothing more will do anything better. actually, 1/2 mg will work just as well. Risperdal is better. Abilify is not even really proven to be sfe in kids. Most insurace will not cover it anymore. My child may be affected for the rest of his life!!! PLEASE take the warning and do not allow the doctor's to do this to your child. These kids have enough to deal with already. They do not need more!! I am sorry if I am scaring anyone, but I had to warn everyone, I wish someone had warned me. I am sooooo pissed!!! If your doctor prescribes a dopamine blocking medication and does not discuss the risk of tardive dyskinesia...... RUN!! DO NOT TAKE it!!!

Beneva - posted on 08/27/2009

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My son is 9yrs old and he takes 0.5mg once a day and 1.5mg melatonin to help him sleep. He's taken Risperdal for almost 2 years. He has gained weight but with diet and excerise it has helped. When he goes back to the docter I am thinking of having the risperdal changed to twice a day. It wears off by the time he gets home from school. There is a generic form available now called risperdone which is cheaper. They offered my son abilify but it was too expensive to try. The melatonin is a over the counter drug that is safe, he has been taking it since he was 5. My son has aspergers as his 2nd diagnoses tho. His primary diagnoses is O.D.D. (Oppositional Defiant Disorder). Many people hear about A.D.D. and A.D.H.D, but not O.D.D. I think alot of his behavior and meltdowns are his O.D.D. but with the additional Asperger's diagnoses it make it much worse. He doesn't understand why he does the things he does. He has severe compulsions. He gets stuck on something and it lasts for hours.



This is a list of books that have helped me the most.



The kid-friendly ADHD & Autism Cookbook

the ultimate guide to the gluten-free, casein-free diet

By Pamela J. Compart M.D. and Dana laake R.D.H., M.S., L.D.N.

( For weight concerns this has really helped and my child is a picky eater with sensory issues. I bought this book cheap at Lakeside.com)



The Explosive Child ( as seen on dateline NBC)

By Ross W. Greene Ph.D.

( this book amazed me so much I printed out copies and took them with me to my son's I.E.P meeting. It pertained alot to my child and helped the school understand my son better. There is a section in there just for schools.)



The Defiant Child

A parent's guide to Oppositional Defiant Disorder

By Dr.Douglas A. Riley



Asperger Syndrome and Difficult Moments

practical solutions for tantrums, rage and meltdowns

By Brenda Smith Myles and Jack Southwick



I bought most of these books online used at Amazon.com

They have helped me better understand my child and I hope they help you too!

Lynda - posted on 08/24/2009

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reading down i saw someone else reccomended the out-of-sync-child book. honey thats our bible! also- you probably had this done already- have you had his ears checked? my son had fluid so thick in his ears it was like glue and he did nothing but grunt until he was almost 3. potty training is difficult, i know, but hopefully he will have a good para to work with at school. also- if hes only just starting school have you looked into holding him back and seeing if theres a special ed preschool in the area? that really helped my son ALOT. what helped malikye with the outbursts were putting him in a hold i was trained to do until he calmed himself, distraction at the point of aggrivation, and other sensory activities (sandbox. playdough, floam) all helped. and also when malikye needed a break- we gave it to him. the school would walk him in the hall or let him ride a trike. i hope this was of some help.

[deleted account]

hi...sorry youre going though that....i have a child devopment backround and a teachers degree......you might want to look up a new disorder called..."the explosive child"..theres even a book called that....i remember in many of my classes the smallest things would set these children off..and you know its not there fault as its a disorder...i assume youre child has Autism....he might have this also....now that hes 7..you can explian to him that its normal to get angry at times..but its wrong to hit people...what about setting up an area in his room to vent..ie tell him when he gets angry he can hit the pillow etc...or how about encouraging him to sitt on his hands....i know you dont want to encourage hitting anything but you have to start slowly by getting him to stop hitting people.....i watched videos of big kids,7,8.9 having explosive tantrums like that..and they said to let them vent in there room..that there in such a state that talking with them during there tantrum is pointless....be careful with medications....my 10 yr was on Singular for allergies and we toke him off it because his allergies were better then he started having sezuire symtoms...Also have u taking him to do an EGG which measures brain actitivity.??.he might have more chemicals on one side of his brain causing this...sorry youre going though this again...hopefully your husband can maybe make more one on one time with him...so its not all on you....

Melissa - posted on 08/23/2009

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My nephew was on Risperdal, but after a while it lost it's affectiveness. He became more and more aggressive, and my sister is struggling with his acting out behaviors. They are considering Depacote, and they are monitoring his food intake more. I also know of an all-natural supplement that detoxes his system which can help him focus more and "awaken."

Carisa - posted on 08/22/2009

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Quoting Tammy:

My daughter, 7, is also on Risperdal. I have found it very good for her behaviors, but she's gained 20 lbs since Jan !!! We eat very healthy, and of course she does not sit for anything. She is also on Clonidine for sleep. That's the only drawback of this med, but i agree w/ Shawn.



Is your daughter on Clonidine just for sleeping?  It seems like a strong med for sleep.  It is a blood pressure medication and if a dose is missed, there can be a dangerous change in her blood pressure.  Melatonin is a natural supplement that many kids on ADHD medication take for sleeping problems.  Risperdal usually makes kids tired, but some kids do react differently than others.

Carisa - posted on 08/22/2009

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I was going to suggest Abilify. What reaction did he have? Respridal would be my next choice but has higher side effects. Have you read The Out of Sync child? If so, is your son a sensory seeking child or a sensory sensitive child? Does he know any sign language?

Sarita - posted on 08/22/2009

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hi my son is almost 6 yrs, he was very agressive also and well his doctor put him on risperdal (i hope Im spelling right) he is on 0. 5mg three times a day and it works well. He still have meltdowns every so often but not agressively.but I know what you are going threw...good luck

Melissa - posted on 08/22/2009

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Quoting Heather:

Medication question?

Any idea's..my son is aggresive right now it's gotten worse over the last few months he hit me in the eye this morning i don't think he meant to but it hurt. I'm a stay at home mom of 4 my husbands never here so i'm basically doing everything myself. He's 7 and nonverbal if he can't talk he has to vent his frustration some how so he gets agressive, he does use the PECS system he does really well with that,he's not potty trained, they told me to try a sensory diet, i tried the brushing on him, a weighted blanket , it dosen't calm him at all nothings working i need some way to clam him he starts school on Monday i'm so nervous. What medication is good for agression? i forgot to mention he has tried one it was abilify he had a bad reaction to it.


 

Tammy - posted on 08/21/2009

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My daughter, 7, is also on Risperdal. I have found it very good for her behaviors, but she's gained 20 lbs since Jan !!! We eat very healthy, and of course she does not sit for anything. She is also on Clonidine for sleep. That's the only drawback of this med, but i agree w/ Shawn.

Jody - posted on 08/21/2009

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Hi Heather, My son is also on Risperdal for aggression & it has helped alot. We we very hesitant but it got to the point that he was melting down most of the day. He still has tantrums (he's 6) but now they're for a reason we can identify, they last at most 10 minutes & we're able to calm him down easily. Our dr. also started him on a very low dose of .25 & went from there. He's on 1ml now. They started him on this because it is tolerated well (that's what they told us) & the only side effect my son has is a bit of a runny nose. Hope this helps. Good Luck!

Shawn - posted on 08/21/2009

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A lot of people disagree with me but my daughter is 5 and we have her on Risperadal. She has been on it since she was diagnosed in January of 2007. She too is non verbal and not potty trained. Before the medication she would have at least 5 meltdowns a day and they would last for anywhere from 1-2 hours each. She would bite, hit, spit, kick whatever she could do. Then her neurologist put her on Risperadal and it has been wonderful. She hasn't really had a TRUE meltdown again since being on it. I know some people say that they hate medicine or their child told them they got headaches from it, but it doesn't seem to affect my daughter at all. Her neurologist did say most doctors start children out on way to high of a dose to begin with so that could be why. He started her our at .25ml and went from there. Most doctors start them at 1.00ml right off the bat. So maybe talk to your childs doctor and just start out low. My daughter is at 2ml now and that is as high as he will go for her age and weight, but she is doing great. I hope this helps.

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