seizures during puberty and autism?

Kelly - posted on 06/14/2011 ( 8 moms have responded )

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Has anybody that has a child with autism experienced seizures during puberty?

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Katherine - posted on 06/15/2011

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Approximately 20% to 35% of individuals with autism have a seizure disorder. About one in four autistic individuals begin to have seizures during puberty. The exact reason for the onset of seizures is not known, but it is likely that the seizure activity may be due to hormonal changes in the body (1). Sometimes these seizures are noticeable, (ie. associated with convulsions); but, for many, they are small, subclinical seizures, and are typically not detected by simple observation. Some possible signs of subclinical activity include the following: exhibiting behaviour problems, such as aggression, self-injury, and severe tantrums; making little or no academic gains after doing well during childhood and pre-teen years; and/or losing some behavioural and/or cognitive gains (4).

People with autism are at a higher risk for seizures if they have certain specific neurologic conditions, such as tuberous sclerosis, neurofibromatosis or untreated phenylketonuria. As well, infantile spasms (sudden generalized muscle contractions, usually beginning between ages 3 and 8 months) do occur in association with autism. Other forms of epilepsy, such as complex partial epilepsy, generalized tonic-clonic epilepsy and absence seizures, may also occur in children with autism. Usually, the seizures can be controlled by anti-convulsants; thus, seizures may decrease or diminish (4). In autistic children, an increase in epilepsy is seen with increasing age, and at the age of twenty about one-fourth to one-third of patients show epilepsy changes (3). Also, it has been shown that, when children with autism are put on a specific diet by their doctor, there is a decrease in epileptic seizures followed by a reduction of medication, but there is also a disastrous relapse when the diet is broken (3).

http://www.epilepsyontario.org/client/EO...

Brenda - posted on 06/24/2011

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I'll also note that our therapist said that there is a high degree of co-occurance between seizures and autism spectrum disorders, as Katherine said.

Brenda - posted on 06/24/2011

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My son has had febrile seizures since 2, but I have a brother in law with severe epilepsy, and to be honest, undiagnosed asperger's syndrome because my son that was just diagnosed exhibits many of the same behaviors that he did when I met him at 14. Unfortunately his mother didn't believe in "psychology" so she refused to even put him on antidepressants despite severe PTSD after being traumatized at school.

Angela - posted on 06/22/2011

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Good Morning,
My son was diagnosed with PDD when he was 3. When he was 8 he developed grandma seizures. We do not have a family history of seizures. He was put on Tegrotal XL to help with preventing the seizures. When he turned 15 we were able to wean him off the medicine. He has been seizure free for 2 yrs now. Hope this helps out.

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Pattyjean10 - posted on 02/01/2012

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My Daughter had her first seizure when she was 13, now my son, 17, had his first in December. I am trying to find out about what the medications could be doing to their insides. They have headaches and dizzy spells -possibly other problems. Especially my son who just recently started Keppra. I am so worried about the medication but do not want them to have another seizure. They both had Clonic tonic seizures (grand mal). The seizure seems to terrify them and me as well. Please if anyone has information they can give, I would really appreciate it!

Kelly - posted on 06/26/2011

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Annette,
My daughter is 12. She had a grand mal seizure right b4 b-day. No Hx in family. She is on
Trileptal. Abnormal EEG in left
temporal lobe. Since then complex partial seizures monthly during when my older daughter and myself have our period

Annette - posted on 06/23/2011

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Katherine...thank you for sharing such through information. It's helpful to Kelly, I'm sure, and a blessing for me. My youngest son developed seizures with puberty onset also, and I've been grasping at straws to get good information. Yours is concise and helpful!

Kelly, I'd love to keep in touch with someone else going through this experience. How old is your child?

Debi - posted on 06/21/2011

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My bffs daughter had them with high fever at the time of her period but they contribute it to the fact that her fever got high and she was not able to let anyone know what was hurting. Therefore her Autistic side effects such as screaming and movement made her fever worse and caused the seizing. My daughter is just getting boobies but that is it so if you learn of any other connection please let me know! Good luck.

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