What is PDD?

Julie - posted on 01/18/2013 ( 4 moms have responded )

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My three-year-old son (British) only re-learned how to say Mumma one month before his third birthday, having been able to say it previously along with basic words like Dada, Nanna etc.

I don't think he had a reaction to the swine flu jab - given at 9 months old (contained thiomersal) but he did have a noticeable rash break out down the side of his neck relating to the measles part of the MMR vaccine, given a few months later.

Apart from speech, which is now improving hugely on a gluten free, wheat free, barley free, rye free, dairy free and soy free diet, I have never noticed anything 'autistic' about my child. I privately paid for a food intolerance test which indicated a variety of intolerances to the above, plus white fish, lamb, beef and a few other foods. Dairy was IgG 4 intolerance. Everything else scored IgG lower.

A homeopath, who never met my son, suggested Pervasive Development Disorder but is this possible if lack of speech is the only 'problem' with your child? He's very sociable with other children, plays normally with his older brother, looks people in the eye.

Although his speech therapists believe he has a phonological speech disorder (perhaps with some dyspraxic elements), the doctors on the NHS will not contemplate looking further at the causes of his speech disorder and everything I am doing has been instigated by myself.

His speech is coming on really well now (at least I can understand the vast majority of what he says) and he is just starting to learn to read basic consonant, vowel, consonant words at nursery.

He's bright but delayed in speech, although catching up, even though gains for certain letters sounds can be an uphill struggle.

Can anyone explain briefly what PDD is to me? Can it just be a speech disorder/delay or do other symptoms accompany it?

Thanks for your time.

Julie

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Julie - posted on 01/21/2013

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Thanks Anaquita,

I've definitely concluded that dairy is a massive factor with his speech. As you say, gluten may not be so problematic but....since I'm taking no chances with any deterioration in his speech, I have no plans to re-introduce it until such time that he is truly verbally competent. I don't wish to tempt fate.
Maybe, further down the line, I'll try slowly experimenting with adding a little back in, but I'll always use the IgG test for reference. And if that shows an intolerance of any kind to gluten, he'll just have to stay off it. His health is too important.
I appreciate your post! Many thanks.

Anaquita - posted on 01/21/2013

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PDD, or PDD-NOS as some call it, is one of many things on the autism spectrum. Actually sometime this year it's going to be rolled up into the autism spectrum disorder diagnosis anyhow. That being said, it's a spectrum. You can have it in many varying degrees. Including the ability to maintain eye contact.

My son has Aspergers, and has great eye contact, for example.

Dairy and Gluten don't always go together. I can't have gluten, but I can have dairy. (Provided I avoid lactose... though lactose intolerance is different from a dairy allergy) A good friend of mine can't have dairy, bad things happens if he does. But he can have gluten. After years of testing, and being told by a doctor that it wasn't possible. He finally switched doctors and well, things are better now.

My son, has no food allergies. He does have my lactose intolerance though. So aside from avoiding that, a special diet isn't beneficial. From what you stated, you son definitely has a dairy allergy. Gluten I'm not sure of. An intolerance perhaps. But then he's not my kid, and I don't know him. :)

Julie - posted on 01/19/2013

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Hello Carolyn,

Maybe my son could have PDD then? I assumed if eye contact and sociability were there, it probably wasn't this.

However, I have to say that, since properly starting the GFCF diet, I have seen results. Initially I tried gluten free on its own and didn't see any results but seriously knocking out dairy in tandem has seen big gains recently. Also, his finger prick intolerance test via blood (York Test Laboratories in UK) showed a high intolerance to dairy - much higher than gluten, although I'm led to believe gluten and dairy go hand-in-hand.

I did a blood test via the National Health Service and they told me he had no allergies to gluten or dairy but I'm pleased I didn't believe them as I know pale yellow stools and frequent flatulence are not normal. Also, intolerances can show up days after a food has been consumed, even if there is no immediate allergic response.

Have you tried the urinary organics acids test via the Great Plains Laboratory? I did this recently and it showed my son has intestinal microbial overgrowth - yeast and bacterial markers present. He also has high oxalates which can lead to brain inflammation so I've knocked out almond milk in favour of rice milk.

To counter this I'm giving natural antifungals - Advanced Biocidin - with grapefruit seed extract in the morning and high strength probiotics in the evening.

I'm sure that the lack of dairy, along with natural antifungals and pro-biotics, is what is giving me a big leap in language acquisition. Have you tried this? I'd be interested to know.

Also, for information, when my little one was completely non-verbal (not now), I used LIPOSOMAL GLUTATHIONE to naturally eliminate any mercury exposure he may have had through vaccines. The swine flu jab definitely did contain thiomersal. He also had a reaction to the MMR jab.

Within a week to a fortnights of the Liposomal Glutathione, my child attempted to say Ho Ho Ho Merry Christmas in a shop and I started to cry with relief.

As you can probably tell, I am a Mum who believes somewhere along the line my son has been vaccine damaged. And I'm doing my utmost to reverse this. Slowly and surely, along with constant speech therapy, we are getting there but it's been the hardest time in my life and, at times, I've felt close to breaking.

I'm so thankful to the autistic community for all the information they post because I know that speech therapy alone was not really helping my child.

My next port of call will be DMG and folinic acid. If this fails, I'll try L-Carnosine.

We are now out of the sign language stage and my three-year-old is verbal, although I am aware he has clarity issues and still can't say some letters. But people can understand a fair chunk of what he is saying, which is a huge relief.

Thank you for informing me that PDD doesn't have to mean social isolation and lack of eye contact, repetitive habits. Maybe I am on the right path after all? Don't want to be on this road but don't have much choice. But, hey, onwards and upwards.

Good luck with your child's speech issues. I hope there's something out that will help.

Big hug and best wishes,

Julie

Carolyn - posted on 01/18/2013

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Hi Julie,
PDD is Pervasive Development Disorder. My son has PDD.NOS (Pervasive Development Disorder - Not Otherwise Specified).
My son had great eye contact, and socially he was fine. Speech was a major problem for us, the Speech Therapist thought he may have Verbal Dispraxia (google it), where the connection between the words he knows and the mouth isn't there. I tried sign language and put signs up around the house of things he ate, did (eg brushing teeth), and people he knows, and put the sign language directions up with the image. Helped heaps, and he was less frustrated and anxious being able to tell me what he wanted.
If you need more, email me at redloum@gmail.com.
All the best...you're not alone!
Carolyn
p.s. we did the whole food intolerancetest, hearing tests, tried the gluten free diet...no results.

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