one of my twins died because of cdh

Hayley - posted on 01/02/2010 ( 2 moms have responded )




at 20 week scan i found out one of my twins had cdh , i was told to abort which i refused, i was told both would probably die but i rfused to give up i also got ttts and they thought my boys would be down syndrome or edwards which would die from. i still have a survivng son whcih am thank full for but cdh has destroyed my life i feel a part of me went with my son id lvoe to chat to some one else who knows about it , my son ahs a website and it has a pregnancy diary on their etc if any one wanst to know anythign please ask please message me when ever you like xx


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Emily - posted on 04/28/2011




hello. my son has CDH and he is due in june. i would like to chat with u about what happened. thank u

Theresa - posted on 07/13/2010




Hi there. I am sorry to hear of your loss. Loosing a baby is the worst experience any parent will ever go through! My son was not a twin, however I had to say goodbye after 6 days. I do know a couple moms who've had twins and lost one due to CDH. The journey of grief will never end, you just learn to deal with it. Again I am sorry.

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