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Bleeding Disorders (Hemophilia, Von Willebrands, etc...)

An online community for mother's with children who have bleeding disorders to share information and ideas, and gain support when needed.

86 members
Privacy: Open
Category: Health, Disease & Special Needs

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children that are carriers of hemophilia A

I am trying to find parents that are dealing with this situation. I would also like talking to any one that has son's with Hemophilia A severe. My husband has Hemophilia A...

Started by Megan on 11/04/2009 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 05/19/2014 by Ronni

My 2 year old son just got diagnosed with Hemophelia A severe factor VIII!

I feel so stressed out.... he is a CRAZY boy... and he is my third child..but this is so new to me... :(

Started by Michaelagh on 06/02/2013 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 06/02/2013 by Michaelagh

What is the best advice for children with von Wilibrand getting their tonsils removed?

Started by Sharlene on 06/22/2011 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 11/25/2012 by Ashtyn

others with von willebrands

Hi my name is connie and i have two sons with von willebrands and just want to talk to others that have this also. my children have mild type 1 so we don't have many problems...

Started by Connie on 04/25/2009 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 11/25/2012 by Ashtyn

i know that it's rare, but hemophilia b out there?

My 3 year old son has hemophilia b, and we are cuurently ttc#2. Any parents have 2 or more kids, maybe not all of them having hemophilia?

Started by Elizabeth on 08/02/2010 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 11/01/2012 by Candice

hypodysfibroginemia

hello have an 8 yr old daughtor with a rare bleeding dysorder call hypodysfibrogenmia and i am looking for anyone with this disorder i need a suport system

Started by Sarah on 03/21/2011 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 01/10/2012 by Sarah

New Conversation!!!

I have noticed a lot of these conversations are a year or so old... Just wondering what everyone's story is... what your children have? Does it run in your family? When/how did...

Started by Brenda on 08/21/2010 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 12/20/2010 by Jessica

TO TALK WITH OTHERS

MY SON JOSEPH HAS VON WILLEBRANDS TYPE 2A SEVERE. HE IS ABOUT TO START SCHOOL AND I WOULD LOVE TO HEAR FROM MOMS AND DADS OR THE KIDS THEMSELF HOW SCHOOL WILL BE. THANKS SO MUCH...

Started by JESSICA on 10/17/2010 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 11/03/2010 by User

hello

hello im hemophilia mom

Started by Sonya on 10/29/2010 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 10/29/2010 by Sonya

Bleeding after baby

I have been bleeding now for nearly the whole 10 months my daughter has been born. I have the odd days when i dont but in the last 25 weeks i have had only a 6 day break. My...

Started by Kylie on 07/15/2010 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 08/02/2010 by Elizabeth

Von Willebrands and Tonsilectomies...

Hi I am curious if anyone's children with Von Willebrands has needed their tonsils out. My daughter has VW and has needed her tonsils out since she was 2 (she is 4 now), we...

Started by Shawnae on 02/27/2010 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 03/05/2010 by Christy

von willebrands

im not sure if any and all of you know but they are having a convention type thing april 30-may 3 ...you can contact your doctor an they willl give you all the info you need and...

Started by Michelle on 02/23/2009 in Bleeding Disorders (Hemophilia, Von Willebrands, Etc...)

Last update on 02/23/2009 by Michelle