have you ever felt lost before

Annie - posted on 11/24/2011 ( 2 moms have responded )




ey ladies have you ever felt that you lost yourself after find out that child has specail need I mean dont get me worng i lvoe my little boy then anythin i am best advcate for i can be. but you i am miltairy wife and we just move from where i did have support to where i have none just so that my little boy can get all the help he needs. I fell like i have lost my slef and i dont know who i am any more all i can talk about is parker and what going on with him it never end mountain to climb. I use to be this fun loving girl and now i dont know where she is anymore I dont even know if i know how to have fun anymore. so i guess what i am asking is have you ever lost yourself and how did you deal with and how did you get you back so you could be happy again


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Caroline - posted on 07/06/2012




My daughter was born 9 weeks premmie, weighed 3 pounds & 11 ounces, stayed in hospital 4 weeks, she had many challenges. She was not able to walk un-assisted, she needed support to sit up, drooled constantly, developmentally delayed, frequent body tremors, some seizure like episodes, kind of in a daze all the time, clenched left hand, choking on her food, speach problems, left side weakness, muscle spasms etc. She was elevated on her toes when holding her to walk, she was splinted for a leg brace & they wanted to give her botox, but after researching botox and discovering how it’s made and there were no long term studies I decided against it. Her life was restricted & so was mine ...and it looked this way for the rest of her life ... & mine. I felt hopeless.

We were attending all sorts of treatments and therapies which cost a lot. A friend told me about some special wellness supplements from a particular company, she started taking them in her yogurt, after one week she was up walking un-assisted, it made an immense difference to her brain function, memory, balance, mood & cognition in a short space of time. She began to thrive. I was elated!

I am so grateful to the person that told me about this incredible technology. She now has a life now ….. and so do I. It’s now over 14 yrs later and she continues to take these special nutrients, she has attended normal public schools, she is almost 16, in a few weeks she begins driving lessons and has just started an after school casual job in a fast paced food takeaway. Now she is taller than me.

Heather - posted on 11/25/2011




hi Annie, I think we all go through this to some degree. Your friends and family can't understand what you're going through, and you can't do the things you used to. How old is your son? I found the first few years to be the worst. The community you're in should have some playgroups, if you're able to go to those. You can also ask your child's dr if there are any other families or groups available to you. I would also recommend you checking in with a dr about the pressure, stress and anxiety can put on you~ I had to get anti anxiety meds and a therapist to learn some coping mechanisms. You are grieving for the family and life you thought you were going to have. It's a very important and painful process. hang in there. you will get through this!

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