Intuniv and major attitude, anyone else?

LuvMyBella - posted on 04/20/2011 ( 48 moms have responded )

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Hi, My otherwise happy go lucky well mannered 7 year old daughter has had a MAJOR attitude since starting intuniv about 3 weeks ago (like PMS type agitation). At first I thought it was because she was so tired but that's worn off and I spoke to her doctor (a specialist at our Philadelphia childrens hospital) who said this is not a side effect of a non-stimulant ADHD medication. I told her my Daughter wasn't like this before the intuniv (not even a little bit). Has anyone else had this experience specifically with Intuniv? I know agitation is common with stimulant type ADHD meds, but not this one.

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Katie - posted on 03/16/2014

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I know this is an old post, but my 5yr old is on Intuniv and we'd like to wean him off it. Do any of you know how long it takes to get out of his system, once he's off it completely? I've heard it can take months, but don't know if that's accurate... Also, has anyone tried more natural ways of control the ADHD (diet, vitamins, supplements, etc.)?

Amy - posted on 10/14/2012

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OMG. If your kids are on Intuniv, please stop giving it to them ASAP!



This is a BLOOD PRESSURE medication and not meant for ADHD! The drug manufacturers are now realizing it sedates ADHD kids, calming their hyperness, but it is not made for ADHD children. The drug companies are selling it as an ADHD med because they are realizing now that it is making them a TON of money b/c of all the kids that are now being diganosed with ADHD!



My 7 1/2 yr old (will be 8 mext month) ds has been on Intuniv for over a year and a half now, and I HATE it!! BUT...now we are trying to wean him off of it b/c he has gotten so mean, defiant, lies, steals things, talks back to us, argues with his teachers, is obsessed with violence and gore, and can't sleep at night. This is NOT my child! It has progressively gotten worse and worse over the course of time he has been taking Intuniv. NOW...we have weaned him from 3mg to 2mg and he is CRAZY! He talks non-stop, paces around the room, is VERY agitated, picks fights with is brother, says his mind is going a million miles an hour and CANNOT sit down. It is horrible! And this is after being on the 2mg for 6 days. We are supposed to go down to the 1mg day after tomorrow, but I don't know if he's gonna be able to handle it. I'm really scared. I may give it a few more days on the 2mg before we come down to 1mg. I don't know how long it's gonna take to get this sh*t out of his system, but we are going to push through it and never look back. I heard it can take MONTHS to get out of their system after they have been on it as long as ds has. I am so scared that this drug has done permanent damage to my son's brain. After all, it has never been studied for longer than 3 months! They don't even know the long term effects of it!! Makes me so angry. It has changed my son's whole personality, maybe permanently :(.



Amy

James - posted on 08/14/2012

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Yes! i took my son to a pychiatrist who put him on intuniv and it made him much more aggressive. we changed doctors and the new one put him on it even after i told him what it did. I was told i was wrong, Intuniv is not a stimulant and therefore can not make a child more aggressive, I politely told the doctor he was full of it. My son was also on Abilify and it alone took his weight from 70lbs to 130 lbs in a matter or 4 months, again, I was told that the FDA claims that there is no weight gain associated with Abilify....... i feel like banging my head against a wall when it comes to talking with doctors, just because they have a PhD and they get fed a bunch of hype from sales reps, they know everything about the medicine and us parents who see the kids behaviors everyday know nothing...

Shannon - posted on 02/07/2013

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Jenny, after taking your son off of Intuniv, did his anger & aggression greatly decrease? Is his new med, Risperidone. an anti-psychotic? Did your son experience any side effects from it? My 9 yr old son's child psychiatrist is recommending an anti-psychotic after my son (who has PDD-NOS & ADD) started exhibiting dangerous behaviors (climbing on the roof & to the top of tall trees), and after Zoloft was added to his Intuniv it made him very hyper - the opposite effect it was supposed to have, so we stopped it. We are very hesitant to try an anti-psychotic because of the common side effects...major weight gain & the real possibility of 'man boobs'. What was your experience?

Jen - posted on 02/07/2013

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Shannon, yes sincs taking my son ofc of intruniv and switching him to risperdone things have been a lot better. The Risperdone is an anti-psychotic and no he hasn't had any side effects. My son has been doing extremely well on this medication.

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Heather - posted on 01/10/2018

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Yes! My 11yr old son was having issues similar with Intuniv. His doc gave him a mood stabilizer (Geodon, aka ziprasidone) to help counteract the ups and downs of the Intuniv. She said Intuniv was also very likely to make him feel drowsy so she had him scheduled to take it at night before bed instead of mornings before school. We have him on Concerta during the day for stimulant during class hours. (I'm finding that's coming with its own set of issues... I am now seeing small vocal tics with him.grrr

Leeann - posted on 05/13/2017

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My 6 year old daughter was put on intuniv to help her concentrate. It didn't help but she started having major meltdowns. Since taking her off it she is out of control, far worse than before she started any meds. She is extra impulsive, extra hyper, angry and major attitude, is she changed forever, she has been off them 7 weeks??

Shanda - posted on 06/22/2016

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Yes! Our 6 year old son had this issue as well.
After 1 1/2 mos, we've chosen to stop the medication at this time. It was originally prescribed for anxiety but it's not done a darn thing for our son except to turn him into a defiant, demanding, little boy. My dear husband and I just want our son back to being the loving, sweet little boy we had before. Only time will tell if this medication did permanent harm to our child.

Speakerfilms - posted on 10/22/2015

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My son was diagnosed with ADHD in the spring of this year and prescribed 1mg guanfacine, it was increased up to 3 mg over the course of the year due to to new and worse behaviors. Originally before we sought treatment he was very sweet, impulsive, deemed to have sensory issues, very imaginative. I questioned the dx because he was not really hyper, in fact he seemed to have low energy but would hyper focus and struggle to transition or had to be redirected because he would b touching everyone and everything.

At 2mg, he began repeating words like target or containment at random, began to shift from withdrawn to frenzied behavior with some normal in between. When withdrawn he would obsess to the extreme about drawing subway maps and stop speaking, when frenzied would laugh hysterically, rolling on the floor and sometimes hissing like a snake.

In September, I pulled him out of his very nice, nurturing private school because he became only frenzied and literally never made it into the classroom because they were chasing him around the school.

Drs increased to 3mg and in within a few days became super aggressive, biting my arms until they were covered with bruises, very volatile and unable to interact with siblings or others. I was advised to take him to the ER where immediately after he was admitted, was given 3mg of tenex immediate release instead of guanfacine.

His heart rate slowed and he became hypotensive so was then sent to the ICU.

Medically he is stable but after ICU he became extremely hyperactive, extremely aggressive and agitated to the point I had to accept risperidone in order to make it through the weekend. The risperidone has mostly curbed the aggression and brought the hyperactivity down a notch but he is incredibly disinhibited, does not want to leave the house, suffered severe pain attacks and bottom line has almost a complete personality shift and I am terrified that he will never return to his old self.

Has anyone ever pursued neuroimaging after adverse reaction to intuiv?

Has your child returned to baseline after severe personality change?

Second to aggression, the disinhibition has been most horrifying and I can also pinpoint the day it started. Have you seen this?

Anna - posted on 10/13/2015

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I am so glad I found this thread! My 12 year old ASD son took Intuniv(guanfacine) about a year and a half ago. It was the biggest mistake I've ever made, but I was only doing what the doctor said might help. When we were taking it, the first month or two he was great. Much calmer and told the doctor he was good. Then after a couple of months he started acting wierd, saying he was having 'nightmares' while he was awake and that cartoon characters were coming alive in his head(?!?) and then he started telling me he didn't like going out in public. His self talk went from minimum to all the time. When I knew something had to be done was when he went to a friends party and he curled up in a fetal position at their house and said he wanted to be alone. It was heartbreaking. He was only on 1 mg, so I went to 1/2 mg for a week and then took him off completely. He STILL has many of these symptoms. They are not going away-he is changed for good. He doesn't like to go shopping, to the mall, etc anymore. The only thing he enjoys is going out to restaurants. He still talks to himself constantly and he keeps his ears covered all the time-we think the medicine did something to elevate his sensitivities to sounds. This stuff should NOT be given to ASD kids!

Mellissa - posted on 08/11/2015

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I know this post is old but I had to ad my two cents. My son has been on Intuniv for about a month and he has been effected negatively big time. My son is now terrified of everything. He is scared of wind and clouds because he thinks they will turn into bad weather he is scared of bugs and refused to go outside. He is scared to be alone and of any dark at any time of day. This is a kid who loves to go outside and play in the dirt. He loves to garden with his grandma and love people. He was never scared of very much. This is not a small normal fear. This fear is terror. I hate seeing my son afraid of his own shadow. We took him to the hospital and they basically called me and his grandma liars and said it was not the intuniv that it did not have these side effects. we went to see his pediatrician and she said she has had patients with similarly negative effects on the drug. It was nice to get validation from her and from on here. The hospital docs were making me feel like I was crazy. We are weaning him off and never looking back.

Tapios - posted on 11/20/2014

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This happened to us too- about six weeks into trying the tenex- non-stop periods of screaming and repeating words and phrases. We have weaned her off over the past week and a half although the doc's said this shouldn't be happening. She is slowly returning to normal but is not yet back to,baseline.

Desiree - posted on 08/26/2014

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Jen you are not alone do a search for adhd on Facebook gun we have a few huge over 12000 people support groups that have help me like crazy.

Desiree - posted on 08/26/2014

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OMG same thing with my son. I was told by his doc also that the leading Philly doc who did research on this drug said it's not a side effect. My son has also started hyper focusing on things lately he never did before. I stopped the med. Now as of tonight. She wouldn't listen to me or a therapist that said it's been happening to all her kids taking this drug. She actually said she doesn't know the brain. Mad me mad she may not know the brain but she has treated my kids for almost 7 yrs.

Jen - posted on 08/26/2014

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My 4yo is currently on Intuniv 3mg for ADHD and has been having very violent outbursts during daycare. I feel so sad for him. He loves going to school but we've had to remove him because of the behaviors. Our psychiatrist is weaning him down slowly and for the last few days he has been on 2mg and doing better until today, another violent episode. I'll be happy when he is completely off, but already his hyperactivity is increasing dramatically. My psychiatrist gave us Abilify to add on which he thinks will help. I'm just so sad and tearful all of the time wondering why my child is like this. I just don't know what to do. Does anyone feel the same way? Does anyone have experience with Abilify?

Kris - posted on 05/16/2014

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My little just started taking Intuniv as an addon in the afternoon 3 days ago. He is noticeably more defiant Katie - I'm going to try Kids Calm it's a multivitamin. In reading some of the kids have been known to have magnesium deficiency. It's a liquid so I will be giving it in some orange juice. I will also be giving him Epsom salt baths. One of my friends has had success in her son and noticed a difference when she stopped. (schedule change) Also my son is sugar sensitive. I also recommend going to the Additude website. I've been listening to the podcasts. One doctor explained that these kids are lagging in skills. Identify and help them. Alot of information. Sometimes overwhelming. ...Hope this helps.

Princess100283 - posted on 03/29/2014

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my nephew is on intuniv 4 mg i been telling his psychiatrist that i see major changes in his attitude and very abusive behavior they told me i was a LIAR. i hope the FDA can get this medication banned. Its doing more harm then good for children. My nephew lies steals and says mean things to me all the time.

Ronda - posted on 03/07/2014

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this is happening with us as well. I could not figure out what is going on with our otherwise happy ADHD child. She has gone psycho and I am taking her off of this drug.

Amy - posted on 01/06/2014

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Hi Jacquelyn,
I am very curious about the 123 magic. Can you elaborate on what that is?

Thank you!!
Amy

Toni Jo - posted on 09/02/2013

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Good Grandma! My son has been a monster since he started. I lost my sweet boy!
I'm taking him off and reporting this to FDA.

Toni Jo - posted on 09/02/2013

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My daughter was doing this (she's older now). She needed love and ATTENTION. She was reaching out to her me because she felt when she lost this when her brother came along. She needed me to give her lots of hugs and talking to her gently and listening to her. She needed to feel valued. She was to young to express her need so acted badly as she did not know she was feeling wounded on the inside and rejected.
The answer is more love and attention from Mum and Dad - not drugs.

Toni Jo - posted on 09/02/2013

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My 9 year old son started this med a month ago. He has been terribly irritated, even to the point of hostility - and being argumentative, and darn right HOSTILE since starting Intuniv. I hate this med. He lost his joy, is angry much of the time. He may sit still longer - but it is only because he feels bad. He is having car sickness now and fights to keep from going anywhere extra. He is having mood swings and his tics have increased (He has Tourette's syndrome and ADHD). He also has a huge appetite and doesn't want to go out and play and gained 4 pounds in 30 days. I am telling his doctor no MORE! I want my happy, sweet child back!
Let the teacher's gripe about him being chatty and not sitting still. He deserves better. I want him back. His personality has totally changed and I feel like a horrible Mom for doing this to him. I love him too much to keep doing this.

Nikngirls11 - posted on 08/22/2013

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Has anyone had their son or daughter on an antipsychotic and a stimulant or intuniv at the same time? My 6 year old was put on risperdone because of her dangerous sometimes violent behavior. She would be very mean to her sister like intentionally hurting her sister that is 2 year younger and laugh when she hurt her. She tortured the cat and do things that were just dangerous but didn't care. After starting the risperdal she put her on clonidine because my daughter wasn't getting to sleep until after 12 am and would wake up and be ready for the day at 6, so the clonidine is to help her fall asleep. After being on these medications for about 4 months she was put on intuniv for showing some ADD symptoms. Now (almost a year later) she is on Intuniv 2 mg a day, risperdone 1.5mg a day, and clonidine 1 mg a day at night, however the dr is now talking about a stimulant because the intuniv is doing nothing as far as helping my daughter focus, I do not want her on all these medications, especially a antipsychotic and a stimulant at the same time. I need advice from other moms. Please help, I don't know what to do. I feel like all she needed all along was a stimulant for ADHD.

Deirdre - posted on 04/22/2013

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I have the same problem with my son. Once I removed all the dyes from his diet the aggression and anger stopped. He is still on Intuniv for the ADHD. The dyes (with numbers after them), once removed from his diet, the aggression stopped. I mean he would do really strange stuff in addition. But we have managed to address all the other issues once dyes were removed from his diet. If you see improvement, try removing all coal tar and petroleum derivatives (dyes and preservatives) and see if it goes away completely!

Deirdre - posted on 04/22/2013

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Have just started the intuniv (4mg). It has Blue No. 1 dye in it. My son is highly sensitve to dyes and I believe, in spite of my request to have a dye free version, that this one was prescribed instead. When he has too much dye (the ones with numbers after it, he will become very aggresive and occasionally angry. Try removing all dyes from the diet. It can't hurt. The dyes with numbers are derived from coal tar.

Jennifer - posted on 04/04/2013

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I had the same experience with both of my children. I took my oldest off of it and immediately he was back to his normal self. I am removing my youngest from it today.

Jan - posted on 02/04/2013

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My grandson started Intuniv about a week ago. Just within this short time on it he has had violent outbursts every day! I was watching him play by his self and he suddenly started screaming and punching his toys. I asked him what was wrong and he screamed " I don't freaking know". He didn't do this prior to taking this medication. Please, if your child is experiencing side effects from this medication that aren't listed on the manufacturers website, take the time to report it to the FDA. (This is the only medication he was taking). I took him off of it!

Jenny - posted on 09/29/2012

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My son was already very aggressive when he was put on Intruniv. After taking Intruniv for almost 2 years things become worse. I literally was to the point where I feared my 8 year old son. I ended up taking him to a Behavioral Developmental Doctor who ended up taking him off the Intruniv and putting him on Risperidone. Insist that they change her meds.

Shannon - posted on 09/28/2012

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My 9yr old son has PDD-NOS and ADD, as well as major anger issues... He has been on Intuniv for 2 years, starting at 1 mg, but because of anger issues at home, & anxiety at school, we have continued to increased it up to 4 mg. A few months ago the doctor added Zoloft because we were having some dangerous behavior issues (climbing tooo high), and that's when occasional violent rage issues began again - but he had them before we started meds as well. So I'm just not sure if it's just 'his inner rage' or the meds causing this behavior... He never had sleeplessness before Zoloft (except when we give him his Intuniv late), but he occasionally couldn't fall asleep at night after starting Zoloft. The doctor wanted to increase the Zoloft dosage to fix the problem, but we opted to take him off of it instead, which made a huge improvement in so many ways. We're back to 4 Mg Intuniv, with occasional angry outbursts & rudeness, but no more hyperness & dangerous behaviors. It's so hard to figure out what to do!

Cari - posted on 09/28/2012

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My son before meds ran away from me pissed off and had meltdowns but over the summer when the Dr. raised him to 4mg of Intuniv he chased his sister with scissors and stabbed the bathroom door. I was shocked because his rages before were never violent just embarrassing. . It hasn't been studied long term and at first it was great. I found a checklist for Sensory Processing Disorder and marked almost all the symptoms while he was on Intuniv. His anxiety skyrocketed. Hang in there Kathy, things are better here but still doing the tweaking game. I do feel moms know their kids and doctors seem to treat side effects with another drug instead of going back to the basics. Some kids are too sensitive to medication for that to work. I just think of all that brain meds in there system, how could they act"normal" when they are all medicated. Now I cry more about him than he is crying, hopefully that will end someday too.

Kathy - posted on 09/27/2012

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YES ALSO ! My son also is on both Vyvanse 30mg. and Intuniv 2mg. and he did have a rage before he went on the meds. It did work for a month or so and now its much worse, hes more aggressive,cries more at bed time and he argues more. His doctor told us this is not a side effect of the meds and to stop the Vyvanse to see if he gets better. I see mothers who post the same messages saying their children have gotten worse. Confused and stressed !

Cari - posted on 09/26/2012

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My 11 year old son was on 3mg of Intuniv and 54mg of Concerta for over a year. His teacher kept saying he was crying often and would panic over small things. He would cry and run off at home as well but I do not think he had the pressure at home like school. Anyhow, of course the stimulant was given the blame and his dose was lowered to 36mg. Before he started middle school his anxiety flared and the Dr. suggested to raise the intuniv to 4mg. Let's just make it short, Intuniv was the culprit the entire time! It gave him anxiety, sensitivity, sadness and low self worth at times,mood swings with anger when tired and he gained 15lbs which he is now overweight from it. He is off and is having trouble with hyperactivity and focus when Concerta wears off. It does really help with controlling the jumping around and I miss it but he is so much happier! I am definitely going to look into an after school popper for focus during homework and hopefully raise his dose back to 54mg of Concerta because he is too hyper and is getting in trouble for talking at school. Btw he only cried once since we stopped Intuniv, after he got his first penalty and lost his first football game. Way more normal crying and he waited until he got in he car. Not saying he acts normal but maybe someday:(

Brooke - posted on 09/25/2012

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My daughter has been taking Intuniv for 2 weeks today. Last week she was bumped up from 1mg to 2mgs. In the last several days I have been seeing her not be able to sleep because she is having horrible nightmares or she will fall asleep but then wake up from nightmares that seem to be very vivid? Has anyone else gone through this and has it subsided with time? I also will notice her face being very pale which makes me think her blood pressure is dropping. She has never had problems with sleeping before and is taking Intuniv for her inability to concentrate not hyperactivity. Any advice would be greatly appreciated!!

Jody - posted on 05/18/2012

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Yes my son is having the same problem, hes very aggressive anyway but it is 10x worse with intuniv,

Mimi - posted on 04/03/2012

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My 14 year old son has been on intuniv for a while now and he has been anger and has outburst. He is on 4mg before bed and also takes Focalin20 mg xr in the morning and if neede 5mg Focalin to get his homework done. After talking to another parent who's son also had anger issues after starting the Intuniv. He has been like a different kid since taking it.

Shannon - posted on 02/11/2012

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You may need to try giving the pill at a different time of the day. We give my son his as soon as he gets home from school everyday, which is the magic time for him. We tried morning, then bedtime first, but it wasn't good. Afternoon is perfect for him - no sleepiness and rarely the anger issues. He has pdd-nos (but similar to mild Aspergers, & ADD).

Jacquelyn - posted on 01/26/2012

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My son just started Intuniv and Risperdal.I have nothing but problems with him sence he has started these medication's.I don't know if it's the Intuniv causing him to lash out at his teacher's,other kid's and beats on his little sister.It's a whole new side I've never seen before.At least when he was on adderall I believe that's what it was,He's been on so many.He wouldn't yell or kick at the teacher's the way he is doing now.But we are going to try a new way without any medication's.It's called 1-2-3 magic they say the super nanny uses it.They tell me it will be alot of work on my end so wish me luck.

Megan - posted on 10/26/2011

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My 7 year old just started on Intuniv it was added to help with Vyvanse well her doctor stopped the Vyvanse and left her on Intuniv because of an extreme emotional outburst then he wanted her to take Risperdal which has horrid side effects, I never gave it to her because of that and she was always able to communicate with us when something bothered her now it is like trying to crack a nut to get her to talk to us and the horrible tantrums are unbearable. My husband does not want her to take anything but I want her to be back to the way she was. She starts counseling this Thursday and maybe that can help

Shannon - posted on 10/16/2011

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my son is ten years old and is taking one mg of the meds at night and takes focalin xl 25mg in morning, He has been on it for about two months now maybe longer and he has done well on it. We were doing focalin xr 35mg in am and 5mg in afternoon to get through homework for we both use to be in tears it was a battle to get it done. I noticed with the focalin dose wasn't cutting it and he wanted to cry and get more moody, and he had been on it for four years so we started on the intuniv and it seems to be better. Now as for as the moods most of all adhd kids have this it seems its just part of the condition and some meds bring it out more. They could be having it from being off the old meds and needs time to get straight on new ones.

Gina - posted on 10/02/2011

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I'm getting the feeling that they say this med is not a stimulant but my son reacts to it like one. I was told by one dr that children who are truly on the spectrum cannot take stimulants. This was dr mcdougal now at harvard formerly from Riley Indianapolis. This is the second time they are trying my 15 on it and when they bump it uP he has nightmares , restlessness, agitation , fixations that he can't let go of, and other characteristics when he tried stimulants before.

[deleted account]

I was wondering the same thing... My 8 yr. old daughter has been on it for a couple of weeks now and is doing some quite uncharacteristic things. Today I had a phone call from her best friend s from school mom saying she had been taking some of her food out of her daughter's lunch box and wouldn't give it back! Today she took her drink bottle and drank it all... SHE WOULD NEVER Do anything like that....It's crazy. We started on the not extended release gunafacine, and she had worked slowly up to 1 mg so tried intuiniv (same med but ext. release). She woke up at 4 am yesterday morning, so we'll have to see if that was the issue or what. She has aspergers/add

Annie - posted on 08/29/2011

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We are almost 4 weeks into starting Intuniv and I am definitely seeing a lot of anger in my 10 year old son. Lots of tears, anger & drowsiness. I don't want to stop because it takes 6 weeks for full effect and I'm wondering if things will improve? I don't want to put him back on a stimulant because he was on one for 5 years and when I took him off this summer, he gained 18 pounds and grew over an inch. Insane!!

Debrah - posted on 06/25/2011

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yes, my son is 5 yrs old and has been on Intuniv for a little over 3wks and since upping to the 2mg he is in a horrible mood most of the day. He already had aggression issues that we thought we had calmed a little bit, not completely but managable most of the time. Now he has complete meltdowns several times a day. Constantly yelling, throwing things, throwing himself in the floor screaming over every little thing. It also takes a long time to calm him down during and after one of his meltdowns. I am hoping that he adjust to this med. and calms down. He is also having issues with his sleep so waiting to see if he calms down after he starts sleeping better. We have tried several different meds. and his Dr doesnt want to put him on most stimulants because of his aggression issues.

Kro72 - posted on 04/25/2011

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Yes. Everyday but I know some people skip doses on the weekends. I noticed if I forget a dose he is totally bouncing off the walls and is talking a mile a minute but one nice thing is that he is not moody or mean.

Kro72 - posted on 04/21/2011

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YES! My son was on it for a month and once we got to the 2mg dose...he was very moody and mean. We has started the intuniv to buffer his vyvanse which he had been on for 3 months but added the intuniv only made him more aggressive. Stopped the intuniv as soon as the agressive got worse.

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