Children with cleft lip/palate

This is for mom's with children who have a cleft lip/palate. Here we can discuss our concerns and ask questions.

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IT CAN BE SCARY!!!!

HELLO!...MY NAME IS SAMANTHA AND I HAVE A 5 YR OLD WHO HAD A PARTIAL CLEFT LIP ON THE LEFT SIDE AND A HORSE SHOE NOTCH IN HIS GUM... HE HAD SURGERY AT 4 MONTHS AND HE IS...

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Feeding cleft lip

I was using playtex nurser natural latch but as patrick grows his cleft lip(no palate prob) gets wider. Any sugguestions for off the shelf nipples. Haberman system is not easily...

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Problems with teeth?

I have a 17 month old daughter Alayna who was born with a cleft lip. She had surgery when she was 3 months old. She didn't start getting teeth until she was 13 months old. She...

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Cleft Lip without the palate

My baby was born at 35 weeks and weighed 5lbs 7.4oz. We have NO family history of any type of cleft. I was wondering about how many surgeries it will take and how old will she...

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New here

Hi everyone! I have a 4 month old little boy, who has a cleft lip, luckly he was born with his palate. We are lucky and live close to Children's Mercy Hospital in Kansas City,...

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Starting Solid Food

My son is almost 6 months old, he was born with a cleft of his soft palate. We did not find out until his birth. I have been pumping and feeding him breast milk using a Mead...

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cleft and MBL deficiency?

My 22 month old son was born with a complete bi-lateral cleft lip and palate. He also has severe asthma, GERD, bi-lateral hydronephrosis, pnuemococcal deficiency, and mannose...

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2nd surgry

my son carl is having the 2nd surgry on the 27th of this month. he will be having the plate done this time around. anything that i should ask the dr when he goes for the pre op....

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New here

Hello, I am a single mom of a 6 year old that was born with a complete cleft lip and palate. she has had 3 surgeries and will need one sometime next year. she is in a head gear...

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New here

Hello, I am new here...My 20mo has a submucous cleft palate. It is where the bone didn't form but there is a flap of skin covering the hole. He is delayed in speech but not...

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New to this Site

I just wanted to say Hello. My name is Lacey and I have a 14 month old son, Hunter who was born with a bilateral cleft lip and palate. He resently went through his second...

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Teething

My daughter has a bilateral cleft lip and a unilateral cleft in her hard pallet. She has been trying to cut teeth through what I call her gumball, the small piece of gum tissue...

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info???

my son is going on a year and he still looks like hes only 5 months. any one else have that problem? please let me know thank you billie

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Would like some info please!

I'm 24 weeks pregnant and just found out my baby boy will have a unilateral cleft lip and palate. Just wondering if you could help me out and let me know happens from the moment...

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Tyler's lip repair

My son Tyler was born in Feb with a unilateral cleft lip. He had his repair on Thursday. I was so worried about everything....how would it look, how would he take to the pain...

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foods after surgery

Our 21-month-old had cleft palate repair 3 weeks ago. He has 1 more week left of "pureed" foods and to be honest the diet change has been the toughest thing for him, much more...

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Cleft talk

Hi everyone...my name is Heather, mum to John (14) and triplets, Amy, Harry and Jack age 11...Amy was born with a uni lateral cleft lip and palate, shes had 10 ops so far and is...

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