Bone Graft Surgery

Ana - posted on 05/28/2010 ( 14 moms have responded )

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My daughter just had the bone graft surgery on Tuesday...she is 9 1/2 years old...if anybody has any questions feel free to ask me...

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Donna - posted on 12/28/2011

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My son is only six hasnt had his bone graft surgery yet. They said they will need to expand the palate first which is suppose to take 18months to 2yrs. Did your daughter have to have the expander before the surgery? How long was she in recovery for? Im really nervous about the whole thing but hopefully we have a couple more years to prepare ourselves for it. Thank you for being so kind!!

Jas - posted on 08/08/2013

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Hi. My daughter is 10 and is scheduled for the bone graft in early October with the craniofacial team led by Dr. David Genecov. Their team allows no solid food for 12 weeks, and as my daughter is already a light weight, I am somewhat panicked. We are doing Ensure nutrition drinks at our pediatrician's suggestion, but I am interested if anyone else has ideas or knows of resources for liquid diets kids will eat and thrive on, post-surgery.

I hope everyone's child is doing well. It's been an adventure, but I'm always grateful it's nothing more than this. I have a unilateral cleft lip and palate also, but they didn't do bone grafts in my day. : )

Marsha - posted on 04/07/2013

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My daughter had the operation on April 2 & is doing extremely well! The day after surgery was very rough-she was discharged in the late afternoon after she drank the amount required. She slept most of day & night &!was much better the next day. The swelling is just about gone & some slight bruising which is in the final stage. She is a fast healer.....the hard part is the soft food diet & restricting her activity. She still has the pain pump attached to her hip, which should finish by tomorrow night & then it will be a prescription pain med as needed. She will go back to school tomorrow. Much better recovery than anticipated!

Jennifer - posted on 03/05/2013

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My almost ten year old is scheduled for his bone graft and palate surgery tomorrow. I am very anxious about his recovery!

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Nancy - posted on 06/16/2017

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Hi ladies! My 8 yr old son who was born with a unilateral cleft lip and palate is about to undergo his bone graft surgery next week. I'm trying to handle it as best I can, but I'm getting very nervous. I'm especially nervous about the recovery...my son loves to play ball (especially soccer) so it will be quite the challenge to keep him from playing with the ball after he starts to feel a little better. Any words of wisdom?? When were your kids able to go back to school/summer camps even if it was with restrictions? Were there any follow-up surgeries after the bone graft? His doc just recently informed me that they would like to do a nose/lip revision surgery 4 months after the bone graft!! My son doesn't know what to expect with this surgery next week so he isn't that nervous, but once he goes through this one, I imagine it's going to be very difficult for me to convince him to have another surgery in 4 months!!

Yescenia - posted on 08/24/2014

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Hi Ana! I am new to this this! My 10yr old son was born with a bilateral cleft/lip palate he is due for his bone graft surgery in a couple of weeks i am concerned in regards to his recovery as well with eating?

Jana - posted on 08/14/2013

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My son is having his bone graft surgery on Tuesday.....How is her pain level? I am concerned because school starts on the 26th.

Marsha - posted on 02/23/2013

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My daughter is 10 & will be having the surgery on April 2 (the Tuesday of her spring break). I'm a single mom & am taking that week off from work, but am really hoping she can go back to school the next Monday, April 8. D you think that's possible?

Wilder11 - posted on 07/30/2012

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my son is 9 and we are having out bone graft surgery one week from tomorrow, my primary concern at this point is "diet" afterwards. can you give me some options on what you guys ate daily> anything else will be appreciated. was the sore most in the mouth, leg, both....or what?
please reply to jpws@yahoo.com
thanks

Teresa - posted on 12/12/2011

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My daughter is 9 and is schedule for her bone graft surgery on Monday Dec 19th was wondering if you could give me some insight on what to expect after her surgery such as diet, etc.

Ana - posted on 05/29/2010

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With my daughter they did the bone graft surgery then they will do a palate stretcher and finally her braces....they said they couldnt do the braces because their wasnt support due to the gap she had in her gums....my daughter was very nervous about the surgery but not scared....I let her know that everything was going to be allright although deep inside I was terrified.....she had lots of support from her family members and friends and I think that made a world of diffrence to her....good luck w the surgery keep me posted as far as when and how it goes....the first 24 hrs after the surgery are bad but after that it becomes easier.....and nice to meet you as well....

Kim - posted on 05/29/2010

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My son is 13 and we are still waiting on his graft surgery, they where waiting on his braces to do there job. As he is a very active boy, he was always managing to break his braces all the time, which is also contributing to the wait. We have now been told he is ready to go, just waiting on appointments at womans and childrens cleft clinic (Adelaide). He was fine about it all, but now he knows it is getting closer, i think he is worried, even though he would never admit it. How did your daughter go? Hope all is well, and nice to meet you. I love this circle of mums site, i am addicted to it now.

take care

kim

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