Children with PVNH (Periventricular Nodular Heterotopia)

This is an open group for parents of children with BPNH or PVNH (Periventricular Nodular Heterotopia), or parents with children who have or have had seizures, infantile spasms, epilepsy, who have gone through MRI, steriod therapy; the list goes on as does the related stress!. There's not a lot of information available on BPNH, so it's always good to make contact with and share stories and get support from parents in a similar situation.