Daughter diagnosed with Torticollis and possible Congenital Scolliosis

Andrea - posted on 02/26/2012 ( 4 moms have responded )

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My Daughter Ava was diagnosed with right torticollis at her 2 month appt and has been seeing a PT for it. She now can move her head both to the right and left which is great considering she wouldnt move it to the right at all. My main concern now is with the fact that she has a tilt and i have been doing the stretches with her along with giving her tummy time and it just seems like a slow process compared to getting her to have full motion of her head. She is now 4 monthes and my husband and I have noticed that when she is reclined in her bouncy chair or her bath she also seems to curve her body to the right side so i took her to her pediatrician and they referred me to a orthopedic doctor so they can check her for congenital scolliosis...they cant get me in till the 15th of march and i have just been a wreck...is anyone else have a similar story or advice

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Erin - posted on 03/22/2012

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My daughter Delilah had a similar symptom as an infant, but when I brought it up to the therapist she told me that because of the tightness in the muscle in the neck it can affect the entire side of their body. I started to notice that the more improved her neck was the better her crescent was as well. She is now 2 and we barely see any signs of it at all. Occasionally we will see her start to favor her right side, but because of all of the pt she did (she saw 2 different pts once a week and we did exercises at home multiple times daily) she has amazing body strength and agility. I was never a fan of pt before Delilah was born, but now I am a firm believer! If it wasn't for pt, Delilah would not even be walking now. Good luck with your daughter!!! I hope you are able to get similar results.

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Andrea - posted on 03/23/2012

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Thank you Erin, Im glad to know Im not the only person out there that has been in this situation. We took her to her ortho doctor and they took x-rays and everything seems to be where it needs to be and her pt thought it was just tightness like you said but wanted an x-ray to rule out anything else it could be. So now along with her neck stretches we are doing trunk stretches to help stretch out the muscles on her side. Without the pt I dont know what I would of done and like you said Im as well a firm believer in the pt. I dont know if its because i work with her so much that she is doing things faster then i thought she would. Earlier this month she started rolling both ways from back to stomach and stomach to back. Shes really mobile for only being 4 monthes I find myself constantly finding her rolled under the coffee table from across the room lol. Thank you again for your story and your help :-) by the way your children are adorable

Andrea - posted on 02/27/2012

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Amanda my daughter was the same way she hated the stretches but trust me it gets better now she doesn't even realize I'm doing them with her...normally I will try tO sit in front of the mirror with her and sing to her or just play with her while I try and stretch her and it helps her stay calm because she thinks I'm just playing with her. Hope this helps and trust me it gets better just takes a little while and thanks for your story it's nice knowing I'm not the only one that is going through this

Amanda - posted on 02/26/2012

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my daughter has also been diagnosed with torticollis. she is now almost four months old. and she is going to physical therapy. she has only been to one session so far. but they said its a mild case. but her head has a very bad tilt. i give her lots of tummy time and stretch her. but she gets so mad like it hurts her. i was very concerned about it. because they said if we did not get it fixed by the therapy then we would have to do surgery. or even have to put her in a helmet to reshape her head.

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