chILDren's Interstitial Lung Disease (chILD) Moms

Children’s Interstitial Lung Disease (chILD) is a group of rare lung diseases found in infants, children, and adolescents. There are different types of chILD that vary in their severity and in their long term outcomes. In simplest terms, all types of chILD decrease a child’s ability to supply oxygen to their body. An infant or child may have chILD if he or she has at least 3 of the following categories of problems without a known cause. Infants can have chILD from birth that rapidly progresses but older infants and children have these problems persistently for months. 1. Symptoms of abnormal breathing (cough, fast breathing, retractions, exercise intolerance) 2. Evidence for problems with oxygen (abnormal oxygen at rest, night or with exercise) 3. Abnormal chest Xrays 4. Presence of abnormal sounds when listing to the lungs 5. Abnormal lung function tests. This is a place to share, cry, seek comfort, laugh, find tips and meet people who just "Get It!" The group is here to help decrease family stress and isolation by providing emotional support and information to families by connecting experienced support parents with those who have similar concerns; and to increase families' knowledge and resources available pertaining to Children's Interstitial Lung Disease. The chILD Foundation's web address:


Other Moms

My son is 14 months old, and about 2 months ago we were told he has NEHI. Well the doctors are pretty certain it is NEHI, (they are trying to avoid a lung biopsy) although they...