Has Anyone Ever Been Misdiagnosed with CF?

Sarah - posted on 08/23/2016 ( 3 moms have responded )

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Hi, just wondering if it's possible to not really have CF even if someone failed a sweat test?

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Sarah - posted on 09/15/2016

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Also, I want to add, that my son also has one known mutation and one unknown... Don't know if I mentioned that in my original post. It is great to connect with you!

Sarah - posted on 09/15/2016

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I'm glad I'm not the only one who has doubts... Personally, I have seen first hand when all the arrows point to one thing medically and then God does something miraculous... That is what I am praying happens with my son, and I will remember your daughter in my prayers as well! Keep me posted on how things are going. We had clinic this past Monday and my son was in the 97th percentile for height and weight... Which is almost unheard of with cf! He is doing so well, and it sounds like your daughter is too! We've only had one sweat test done but I want to get him retested.

Btorweihe - posted on 09/15/2016

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Hey, i want to follow this thread. My daughter was diagnosed a few months ago. With only one gene they cant find another with any lf their testings. We are currently waiting for the Enac. She failed the sweat test twice. But we just really dont think she has it. Her levels were crazy high but she doesnt even taste salty everything with her so far has been super confusing! 😁

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