Luckylady3 - posted on 06/13/2016 ( no moms have responded yet )




Hello, my youngest son has CF. I feel very uncomfortable posting this but feel I need to. Since Tristan's diagnosis I have had a constant panic attack amoung other symptoms. After a year and speaking with doctors I realize that I have PTS. There are so many triggers... snotty kids, coughs, any drs apps especially related to CF but even my own or my other children's. After 3 years I realize it's not going away but I have to learn to manage it the best I can with excersize, medication, yoga etc. I joined an xtreme hike fundraiser last year to help the cause but also as a therapy for me. To face and work through some of this head on. We are doing it again this year and I see more and more that the fundraiser might be perpetuating everything. I think I will bow out after this year and just focus on my family. I am just trying to be the best advocate for my son. I am am 100% on when I need to be for him, I know he needs to follow my lead. My body physically reacts to the stress. I just want to be the best parent I can for him and sometimes it's just hard as hell to be strong all the time. I am not a very religious person. I wish I could release to a higher power. At these findraising events there is a part of me that wants to tell my story but I also feel so uncomfortable. We are so lucky, so blessed is many ways I don't want to complain. I don't want to hurt someone that has CF, make them worry about their parent.

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