DiGeorge Syndrome

This group is for mom's wih children that have DiGeorge Syndrome.


Help me please

Could anyone help me find a place that has good information of different thing that can affect a di George child? I have a 4th grade girl and need to get information together...

Started by Heather on 02/16/2016 in DiGeorge Syndrome

Last update on 02/23/2016 by Fiona


When did you find out?

I was just wondering when you found out your lo had Digeorge syndrome. We found out last summer, 08 that both my 4 yo and husband have digeorge. I know the effects of it can...

Started by Jacqueline on 01/09/2009 in DiGeorge Syndrome

Last update on 05/21/2013 by Daphne


New to DiGeorge Syndrome

Hi, My name is Melissa, I found out about 2 months ago that my 4 year old daughter has DiGeroge. Although deep down I knew there was something wrong, it is still all too...

Started by Melissa on 03/11/2013 in DiGeorge Syndrome

Last update on 03/11/2013 by Melissa


Yahoo group

Hey, just passing along, if there are any parents of little ones with VCFS / Digeorge that would like to join a yahoo support group specifically for babies with the deletion,...

Started by Jeni on 03/11/2009 in DiGeorge Syndrome

Last update on 03/11/2009 by Jeni