This group is for mom's wih children that have DiGeorge Syndrome.
Could anyone help me find a place that has good information of different thing that can affect a di George child? I have a 4th grade girl and need to get information together...
Last update on 02/23/2016 by Fiona
I was just wondering when you found out your lo had Digeorge syndrome. We found out last summer, 08 that both my 4 yo and husband have digeorge. I know the effects of it can...
Last update on 05/21/2013 by Daphne
Hi, My name is Melissa, I found out about 2 months ago that my 4 year old daughter has DiGeroge. Although deep down I knew there was something wrong, it is still all too...
Last update on 03/11/2013 by Melissa
I know they are instantly eligible for Supplemental SecurityIncome, Medicare, and things of that nature, but does anyone know o anything else?
Last update on 02/08/2013 by Leda
if you have children with this and you can answer some of my questions i would appreciate it thanks
Last update on 02/08/2013 by Leda
my son Gavin has been a medical nighmare since birth. he was premature. then got rsv immediately so bad he almost died, two weeks after that he stopped breathing and heart...
Last update on 01/21/2013 by Ashley
She had a G-tube placed and she just started gagging all the time. Her GI doc changed her formula but not much has changed. Is anyone familiar with this problem??
Last update on 05/21/2012 by Gloria
Sydney has always spoke of abdominal pain and had recurrent UTI's. We were told it was normal for kids with DiGeorge. I am really to the point where I think the doctors are...
Last update on 06/10/2011 by Wendy
Hey, just passing along, if there are any parents of little ones with VCFS / Digeorge that would like to join a yahoo support group specifically for babies with the deletion,...
Last update on 03/11/2009 by Jeni
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