New to group as well as Encopresis...

Morgan - posted on 04/15/2014 ( 5 moms have responded )

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Our daughter who just turned 4 a month ago was diagnosed with Encopresis the beginning of January. She was put on mineral oil which was the biggest mess I've ever seen in my life with that orange oil that came out! We switched to Miralax a month ago and are seeming to have better results as far as 'normal' bm's.

Two weeks ago she actually went in the toilet! She has NEVER gone in the toilet...EVER! So we were excited but then like I kind of expected she continued to have accidents but was able to come and tell me she went. Before it was as if she had no knowledge she even went.

Last week she successfully went in the toilet again..and then today she has gone 3 times...all at her own will and even away from home at her grandmother's home.

I'm taking this as a good sign naturally but I'm worried that if she does get to a point where accidents no longer happen say a year from now...will she regress? Has anyone else seen their child regress once they seem to stop soiling themselves?

Any and all info would be great...even if it's to say hi. I've never been so stressed in my life. I've never felt like such a failure and horrible parent. We would yell at her and thought she had started lying which would result in spankings sometimes. I can't tell you how ashamed and terrible I felt when we finally had an answer as to why she wasn't going to the potty or even telling us when she had an accident. :(

Thank you!

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Morgan - posted on 11/04/2014

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Oh my gosh...I'm just now seeing your comment! Im so sorry! Well...since I've originally posted she regressed...big time. Like within a month of her going on the potty...she started soiling herself again. She would have hard pellet poops as I call it and instead of telling us she started hiding it in her room, under her bed, the closet, and under the dresser. We were dumb founded really. So of course we started getting onto her because we knew she KNEW she went or she wouldn't have hid it. Well we've moved across country and since we've moved we've all been less stressed. Like, none of us have a care in the world. And guess what...for two weeks straight she's not had an accident. She FEELS the need to go and does it on the toilet. I've cried several times because she even tells us..."I think I've got it now". It's all I could have ever asked for her. She did have a stomach bug and had major diarrhea where she did actually have one accident but any adult with this bug could have had the same accident. (I had the bug...it was awful). Our fingers are crossed that she really does have it now. I think the amount of stress my husband and I had was affecting her. I could be wrong but it's the only thing that's changed. I no longer give her miralax and am praying she sticks to it. How's your little one doing?

Rachel - posted on 09/25/2014

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I know you posted this awhile ago, but I too am in tears reading your post. My daughter is turning 4 in about a month and has been "potty training" for a year and a half. My husband and I also went through the yelling/spanking/hosing her down outside/discipling phase only to eventually learn she couldn't feel it come out. I too feel like a failure and horrible mom. I too am at my wits end and completely drained.

Reading through some of these posts about how other moms feel and what they do for their kids has been so encouraging. I'm not the only one who wipes bottoms all day! I'm not the only one who sits for hours on the bathroom floor with her daughter. We've been doing Miralax for a few months now, but are going to try "habit training" in addition to this. I've been told to have my daughter sit on the toilet for 20 minutes after every meal to teach her body that's the appropriate time to go.

My questions are: how do I do this if she's at school?! Do I wait until after school is over and immediately put her on the toilet once she gets home? Also, do I keep her in pull-ups for the time being or switch back to underwear? She doesn't go pee in the toilet either (that's a behavioral issue I'm quite sure of) so if I switch her to underwear then I'd be cleaning both poo and pee up ALL hours of the day.

How is your daughter doing now that its been a few months? Have things gotten better, regressed, or is it the same. It's okay....just give it to me straight. At this point...I'm not holding out for much hope.

Thanks!

Dr Fred - posted on 07/04/2014

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Sarah Fazakerley : Your son is stool withholding. It is very common though many parents have never heard this term. Because children withhold and refuse to defecate, it leads to soiling/accidents, known as encopresis.
Treatment should include laxatives (oral, top-down) to overcome the withholding and a behavioral treatment program to re-condition the child to use the toilet. Both laxatives and behavioral treatment should be implemented together. Either one without the other is likely to fail.
Dr Daum

Morgan - posted on 06/15/2014

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Oh thank God someone replied! Haha. It's so nice to know that we're not alone...even though we feel like we are. As far as an update she went about 2 weeks without one single poop accident. She went in the potty each and every time. I honestly thought it was over! HA...silly me. I don't know what happened but she started to have accidents again. We had stopped sitting on the potty daily and I think that is what did it...but even so...accident after accident...after accident. Everyone once in a blue moon she'll go in the potty like today for instance. We were so excited.

I'm so sorry you are feeling this way and are dealing with the same ordeal. To me it's exhausting at times. I do feel sad for her like when she says, "When I poop in the potty I'll get to go to school and make friends." Makes me so sad! Because I know that she's aware other kids don't do this. I just don't know what to do.

Not sure if your doctor mentioned you may have to alter the dosage to the miralax. Girl...it gets things WORKING! We have gone to a full dosage every other day because if we do it everyday she'll just have poop streaming down her leg with no control over it. Believe me...I've seen it! Haha...it was awful! (Sorry for the image)

I'm thinking of having her sit on the potty each day again. That seemed to be what got things going. We'd sit on the potty every day about 10 minutes after she ate breakfast and lunch. She'd sit there for about 5-10 minutes. I never expected her to have a bm during that time and she never would...but it's supposed to help with their muscles.

Hope things work out well for your little guy. Let me know if you want to chat more about this. I'd love to have someone to talk to as well!

Sarah - posted on 06/15/2014

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Hi! I'm in tears reading your post about your daughter! I have a 3 year old (4 next month) who has had issues with poop for a year and a half now...pretty much since he was potty trained. (Which he does great at!) but pooping is another story. He will sometimes poop in his underwear up to 8x a day. Small amounts...always soft. He knows when he does go, but he hides...then when it's too late he'll come and tell me. If has pooped on the toilet probably a total of 6x in a year. Sometimes he'll go like 5 days without pooping at all. I've had to give him a suppository just recently because of that. Than most of the time he poops thru out the day. I took him to the dr last week. And he prescribed miralax for him. I'll be starting that up tomorrow for him. But I'm just at my wits end...choking back tears as I clean him up. I think I'm more sad for him. I know it bothers him when it happens. But I'm also of course exhausted because of this never ending battle. I'm to the point of the "it's ok, accidents happen, we'll get better, let's keep trying"...but I have tried everything! Anyways. I'm in need of support for myself. I'm a stay at home mom, with 2 boys.:) I just would love to relate with someone about this! Any update on your daughter?

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