I was born w/ erbs palsy....looking for others who are unique like me :)

Jill - posted on 09/14/2011 ( 56 moms have responded )

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I was born w/ erbs palsy in 1974. It's funny because I never really was bothered by it as a child, but I am more conscious of it as an adult. I try to always remind myself that it could be worse....I could have no movement in my arm, or worse, no arm at all. I played sports and did everything else that kids do...I just looked a little funny doing it :) I try to not let it hold me back today, but it does to a point. I always try to find ways to hide it like carrying things in that arm, putting my hand in my pocket, folding my arms, etc. Some days I get so upset because I was born this way, but I have to remember that this is what makes me unique :)
I, too, was a big baby...9lbs 11 ozs and my mom was all of 5'1". I was "stuck" and the dr just kept pulling on my head trying to pull me out. Another dr came in and ran his finger under my mom's pubic bone and broke me free. I couldn't move my arm for about a yr and then all of a sudden I moved it. Of course my mom freaked out b/c drs said I would probably never have feeling or movement.
Today, I have movement still, although it is starting to stiffen up a bit. I've never had full range of motion and can't put my arm straight, but I can use it. Just like when I was a kid, I do it all....I just look a lil' different when I do things :)
God bless you and your children and make sure to encourage them to do anything and everything they want to do. We can do anything we want, just in a unique kinda way :)

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Jay - posted on 07/02/2014

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Thank You Jill for creating this post. I was born in 1990 and had erb's palsy in my right hand. Now, i don't have any movement restriction in my hand. Just same as u, i look a bit funny at times ;) It's great to listen to all the erb's palsy stories here and kudos to Jill for creating this post.... I am currently working on oil rig and have no problem at all doing operations there.

Recently, I started going to gym and a trainer there suggested me to do physio training and perhaps have electric stimulation sessions. Can anybody help me whether electric stimulation sessions are effective and can be done or not especially at the age of 23 ??

Stevenson - posted on 07/04/2014

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Hey everyone! Anyways I'm really happy that this site exist, sometimes I feel like I am the only one in the world with this issue. It has had a tremendous impact on my life.
I'm 26 and my right arm is partially paralyzed. I have an athletic built. My natural predisposition was to play football and boxing, but due to my condition I focused more on school. I always had a good amount of friends growing up back when i didn't pay much attention to my condition. But as I got older it became more noticeable because of my built and I became more aware of it. Now I pretty much try to stay to myself and avoid others. I really wish I can gain the confidence to accept myself as I am and not be afraid of being labeled a certain way due to my limitation. I have always been apprehensive towards approaching women because of it. But I really just want to be a more secure and confident person from the inside. Thank you for reading this.

Tracy - posted on 08/31/2013

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I am a 44 year old woman who sustained an Erbs Parsley injury during birth. My injury has gone untreated since birth. I wore an arm and back brace as an infant. The truth is I suffer in silence. My arm appears to have developed just as normal as my other arm, but the effects of the injury is with me everyday of my life. I have no range of motion, numbness throughout, and constant pain in my neck and shoulder. I few people have inquired about why I hold my arm a certain way. Having Erbs Palsey has caused me to second think careers choices. I had aspirations of joining the military right out of high school. I was turned down for a position with the US postal service. These are just a few examples how the injury has effected my life. Sometimes I that more had been done to treat the injury when I was young, maybe I would be better off as an adult. I am greatful that my injury is not as noticable.

Lee - posted on 05/04/2014

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Wow, I'm a 35 yr old male and all my life I have suffered with my arm. I cannot turn both my palms upwards, cannot straighten my right arm or lift it very high. I thought I was unique until today when I have now seen that there are others and it even has a name for the condition!
However, I must stress to any new parents who have a child with EP done not panic. I have lived a great life and participated in sports and social activity. As I have never known any different to me it is normal! I have had a few derogatory comments in the past but hey who doesn't! Most of my family and friends just accept it as me and don't bat an eyelid!
So please don't worry! In fact it makes your child unique!
Although giving people a high five has always been an issue :-)

Olgasuarez57 - posted on 03/29/2017

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I have Erbs Palsy, too. I am 59 and have started feeling a lot of pain for a few months now. I started physical therapy recently and seems to be working. My suggestion would be to keep the muscles stretched. My therapist has done an exceptional job explaining EP.
EP never stopped me from doing anything. I use my right arm to bowl, cut, pick things up and many other functions.
Keep using the armas much as possible. Work on your posture. Because the muscles tend to shrink, working the is important.
Be proactive. Don't wait till the pain sets in to get help. Remember to work the muscles and keep them stretched.

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Anastaciakitty44 - posted on 11/27/2018

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Hi clarklatour
Yes I had to get on ssdi, my good arm was very warn out. Definitely go to Dr

Yair - posted on 06/28/2017

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Hello, My name is Yair and i was born in 1987 (i`m 30 now)
I dont know where to start because it feels it always emotially destroyed me and i was nugging about it. but no one understand.
As i was child it did not effect me much, i guess i can say its because you are not in real life. when i was getting older, like 21 it started really to effect me.
i was lucky and i have greate friends from my child hood. but for me its all a mask. i like try to show that everything is alright but it destroyes mes me because i am jelluse.
over time i developed built-in technices to hide it, carry things with the arm. hide in the pocket... i become so good about it. that one friend from university told me that he only reliased it after 3 months in the university.
what can i say.. there are some months that i dont even notice it. and some months that i just want cut my arm/life
the thing that botherd me the most is the question. even when i am 30. people keep asking me what happand to your hand. i just say - bad doctor / from birth and thats it, even today it reduces my confeidence from 80% on good days to 0% iif someone asks me

there were times that i wanted to find the doctor name and kill him for what he did. he got away from it so easily.

honestly my parents are the only thing that keep me in life. or that i dont take my life because of them.
they are really good parents and did everything for me. but sometimes that dont understand - because they dont have it. and i am mad about them sometimes. when sometimes i talk about it with them - they keep teling me you are 30. get over it.
they allways been there for me but also never gaved me things that today to me it sounds trival.
like no one thought me how to tie me shoes -(how was supposed to learn, it happand by acceidnt when my ant say that i dont know and thouth me(
or never been to therhapy as a child or psychologics.

it took me years to get a girl on a date on even ask. ofc sometimes i tell myself if someone want me they will love me the way im. but its anyos that for normal dude he dont have to sometimes explain hiself infront of the girl what happand.
i always hide it on dates and at first date secound date telling them - but its anyos me that other guys dont.

i belive its also harder for men. because girls look on us as leaders/phyiscal, and guys are the one who asking girls on a date... how u can do that when your confedince is low

in the end.. i managed to be ok with girls. but it also destoryed many of my attempts and even my last releationship because i was low on confiedence.

for years i have search treatents, breaktrhough... also anoys me that there been abosolouty 0% progress regarding nerve ttreatment.

some good things:
drugs make it easy sometimes, casual sex, and family

Jennifer.L - posted on 04/25/2017

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I was born with Erb' s Palsy in 1968, left arm and shoulder. I too, dealt with it as a child but hide it as an adult.
It seems to get worse with age (pain wise).
Scapula, shoukder, Beck pain is constant.
Have never had therapy on my arm. It does no good anyway, there is nothing anyone can do to correct it.
I have no health insurance anyway.

Ct - posted on 03/13/2017

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Hi ya'll,
I was born with Erb's Palsy in my right arm in 1992 though the doctors didn't realize it at the time but a few weeks later. I hid it well growing up and even now hardly anyone can tell, un less I tell them. And at 24 yrs. old, I have just started to admit it, trying not to be ashamed of my limitation, that fear I had. It stopped me from admitting the pain I always felt from anyone, including my parents, that I’m hardly ever without. Now my fears have kept me from driving or even the basic principle of getting a job. I’ve been to college, graduated with an associate degree in Business admin, now wanting to return for a degree in teaching. Thankfully my parents have been very supportive but even they have their limits, that they are reaching. But I have felt so alone, and I am grateful for your stories, showing me that I’m not alone.
Thank you so much.

Suntiger - posted on 03/06/2017

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Hey Julianne
Thanks for your post. I am still working... part time- as a local coordinator for exchange students. Haven't really considered or even looked into SSDI. Ive got my regular phusival appointment coming up soon and was planning on talking to the doctor then about my good hand losing power. Im really interested in hearing how your specialist appointment turns out. Fingers crossed that they can help! What part of the country do you live in?

Clarklatour - posted on 03/05/2017

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Hi I'm hoping Ginger Cordes sees this i was born in 1965 and have exactly what you have! Erbs palsy. I married have kids, lived my life basically with on hand. My good hand is getting tired from over use. Seeing a hand specialist next week. Either or both arthritis and carpal tunnel has started. Is anyone else experiencing this? Are you still working or considering SSDI?

Suntiger - posted on 02/13/2017

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Hi All,
I was born with erbs palsy in my left arm way back in 1960. I had surgeries done when I was just a baby, then more when I was 12/13. They fused my wrist and my shoulder but nothing helped like the doctors had promised. After the last surgery on my shoulder (I was in a half body cast for 3 months -in middle school!) I got mad & said no more "experiments". I can use the arm for supporting/ carrying things. I have no feeling from the elbow down and my hand cannot open on its own - but I can clench it. I can always tell when I have a fever or am getting sick because my arm spasms with sharp little shooting pains - other than that - no pain.

Most people don't notice - or are too shy to ask about it. It never kept me from doing anything (except climbing a rope in PE) and I never used it as an excuse to not try. I went to college, married an amazing guy and have two great kids. It's made me stubbornly independent...

My right arm was super strong - compensating for my left no doubt. As I age, I've noticed it's not as powerful & that scares me a little...guess I'll have to learn to accept help more gracefully!

Thanks for posting this... it's nice to know there are "others". Oh... I live in North Carolina. Carry on y'all - nothing is impossible!

Bakerbeth - posted on 01/02/2017

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Wow! Hi Jill, I was born in 1974 with left side EP. I am part of a UK Facebook support group which has been helpful but wish i could connect with people in the US. Would love to know where you guys are from???

Rachel - posted on 08/26/2016

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Hi I had one surgery at 5 years old and then did therapy for about a year then my mom just let me do everything on my own and she made me do things with my left arm that I have erbs palsy in at times my arm would get tired and I would get mad cause I thought it was to hard but the more you do with your arm the better it will be I had two brothers and I wanted to be just like them so I did everything they did and I haven't had anything I couldn't do sometimes I need help putting heavy object on higher shelves but that normal for most women I hope this helps

Rachel - posted on 08/26/2016

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I was born with erbs palsy in 1993 my mother was told I wouldn't be able to live a normal life but I've never had trouble with anything I drive both manual and automatic cars I played softball for 15 years and I also went to the World Series a few times I road bikes and I did everything the other kids did I've also done CNA work and I am now going to be a Nurse I've never let have erbs palsy stop me from anything I wanted to do I don't have the best control over my arm I can't straighten it all the way and I can't pick it up over my head but most people can't even tell that there is anything wrong with my arm I look completely normal or I think so anyways the only time people notice is when I was running cause it would fold up really close to my chest I always end worked out with my arm push-ups and pull-ups I even bench pressed 150 on high school and I held records also for the most push-ups I don't think that erbs palsy was ever a bad thing it made me who I am I did have my days where I thought I would be better off without my arm all together but I was also a teenager at that time and any teenage girl has a horrible life with or without a disability

Brytt4success - posted on 07/18/2016

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I am 26 and have erbs palsy in my left arm! I am so glad this post was made! I almost cried. I only met one other person with this.

Karen - posted on 05/20/2016

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Hi everyone! My daughter is 17 months old. She had shoulder dystocia and was born with erbs palsy. Her right arm was paralyzed for the first 3 months then slowly she started moving it. We worked with it several times a day. By 6 months it was winging so we had the mod quad surgery with Dr. Nath in Houston. She gained more mobility but still held it strangely. Dr. Nath recommends 2nd surgery but we are scared because she had anesthesia complications. Looking for others with experience with surg vs just physical therapy. I am worried we are not doing enough. Thanks! My email is zickkar@aol.com

Marianne - posted on 03/01/2016

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I was born in 1985 diagnosed with erbs-palsy ,i hate my 'bung' arm ,its has gotten worse as i have gotten older. Patches of pain irritating me ,sometimes agonising are now numb .deformed awkward looking arm when i compare it to my other arm ,over use issues in my other arm also ,i often wonder what would my life be without it so many stops to life because of it ,i get emo about it often but only in silence only because no one understands and hate explaining it ,the only time i truly break down is when i cant lift my child or put a nappy on my kid because my arm decides that nope im not gunna let you do shit today-i came across this discussion today and it feels friggin amazing to talk about it to people who know the crap i face each day ,your all awesome !!!!!!!!!!!!!!

Rachilybabe - posted on 01/20/2016

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Jen... I am so sorry for your experience you have gone through with your mother over this injury. It isnt your fault and we must "baby" the arm. :{
chin up!!

Rachilybabe - posted on 01/20/2016

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Hey there-

today is my first day believe it or not that I am looking up people with the same birth injury as me... and I found this!!! You and all of these other posts. I am 32 and have never had surgery. I have physical therapy as a child and went for maybe under a year in 2012. my neck and shoulder have alot of pain. my neck is numb feeling... i also feel like it is on fire
i was told by a neurologist that no surgery can be done just physical therapy, however most recently my arm has been hurting. has me concerned. Even just letting the arm hand down in a resting position is starting to bother me... almost as if I need to sling it :(
i am in search for a doctor or 2 to give me other opinions on my arm and everything... especially since I have a new symptom. I do hope you get answers!!!

Rachilybabe - posted on 01/20/2016

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Thank you so much for posting this! Even though years have past, I am reading your post for the first time. I knew there were others that suffer from this injury but reading your post and the posts below...helps me not feel so alone!

Skye - posted on 12/07/2015

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I'm 17 and have erbs palsy in my left arm have done since birth, I have quite a lot of discomfort with it, numbing and twitching sensations. I've recently had a strange sensation in my thumb,almost as if I have had pins and needles on the inside of my thumb it's strange and haven't had this before, it's been like it 3 days or so, and it's become more and more numb each day. What are the best exercises to do for the left arm, to stragthen and make the arm drop even more? It's been a very strange childhood I'm a 3rd child, and have had hard times but always manged to cope some how, people ask what's wrong and how do you do it.. does it hurt. .etc.. 17 years I've sufferd this now and have the rest of my life ahead of me and I'm not letting it stop me anymore. I've been able to horse ride from a very young age and still continue to do so now, really enjoy it and it may look a bit diffrent to others whilst riding or doing the everyday things but we are unique!! Let's keep our heads high and a smile on our faces.. it could always be a lot worse.. let's be great full we have our arms and can continue with life, yes at a strugle be we can continue!! We are unique!!

Katelyn - posted on 07/23/2015

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Wow! I too felt alone in this battle! I am very fortunate that my parents were very supportive and involved with my Erbs Palsy. I can remember as a child a physical therapist would come to see me and work with me. Teaching me how to tie my shoes with both arms all sorts of things. My siblings remember more of her than I do. My parents had other kids to worry about and definitely couldn't afford that kind of medical care so they turned to Easter seals who helped with the cost and made it affordable. I am very lucky that I have the mobility that I do with my arm. I remember being picked on as a kid and would just defend myself and explain why it was my 'bad arm'. It still sticks out like a wing when I try to hold it by myside.
I guess I really was just curious for those of you with the same injury that had therapy but not surgery. Has it ever bothered you, like nerve pain or pain in what should be the normal shoulder socket?
I have had excruciating pain lately and went to the dr to have nerve tests done and they couldn't give me any answers just forwarded me to my dr for a referral to an orthopedic surgeon. I am so frustrated! I know it is 25 years after my birth and I don't expect 100% correction I just don't want to struggle with so much pain when I move. :(

Nicollemedrano4 - posted on 06/27/2015

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I too was born with erbs palsy in 89 when I was little it didn't bothered me we called it my bad arm . they had broke both of arms to get me out BC if not me and my mom would of died I was 14 lbs when I was born. But now me being 26 yrs old I try to remind myself that I'm unique and I'm still beautiful but some days I just hate my right arm and now I'm starting to have real bad pains in my arm. In 89 I had some bones remove and tension repair surgery and my right arm is shorter than my left arm. But y'all just remind urself you are still beautiful and don't let anyone tell u any different. I'm happy I'm not the only one with erbs palsy. God bless.

Richard - posted on 04/23/2015

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I was born in 89 thankfully by mother who passed early was a nurse she knew not to pin my arm but to move it. It kinda sucked as a kid, couldnt climb a tree or be good at sports. But i learned from it i adapted from it. Now im almost 26 and a head cook. People from time to time ask about my left arm. I always just say its a long story. Thankfuly i have a girlfriend who understands me and friends who get it. Thank you all so much for being out thare. We are not alone in our fight! Ps i live outside of boston if anyone needs to talk

Brynda - posted on 04/13/2015

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My daughter is 3 years old and has Erbs Palsy. She was diagnosed and the injury occurred during birth. At 6 months old they wanted to perform 2 different surgeries on her but after reading reviews about that surgeon we decided to wait and keep looking for another option. Well her arm is starting to wing out and she holds it funny too. We found a doctor in New York that specializes in these injuries...I questioned if im doing the right thing by putting her through surgery but after reading some of your comments I do realize this is the best thing for her. We live in Texas so New York is quite far from us..we created a gofundme account and would appreciate any donations to help us get our daughter there..if you would like to read her story, or donate please go to th elink provided, Thank You!! http://www.gofundme.com/AlainasErbsPalsy

Rafael - posted on 01/09/2015

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Hi Jill,

I probably should tell you that today is one of the most relevant days of my life, i always felt like i was the only person with this condition in the world. Reading your story was like reading someone detail my hole life, what i've done and what i felt. Maybe the difference is that it really bothered me in my childhood, suffered bullying on school for that and i just couldn't feel like a normal person. It was only when i changed school that i made some real nice friends, got good grades and realized that some girls did like me that i started growing some confidence. I then realized that this thing i had couldn't and shouldn't stop me from doing whatever i wanted. Today i am 23 years old, graduated in economics, and am an investment banker. I play guitar, and can do pretty much everything that other people can, some with the left (strength needed) and some with the right (ability needed) arm, and also a little funny :) .

My name is Rafael, born with Erbs Palsy in right arm, 1991 :)

Jen - posted on 01/08/2015

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I was born in 1993. My parents were informed about my brachial plexus injury but did nothing to solve the issue, so, here I am unfortunately. While my arm is not "deformed", I suffer great nerve pain especially when pressure applied in certain areas/ways. I hold and carry my arm differently and was mocked for it in school - and by family. My mother would call me a cripple when I was young - maybe 8?- and threaten to have it cut off at our nearby chiropracter if I did not stop "favoring it". I'm so relieved to have found others suffering with this as well (I'm sorry). Every day I wake up hating my arm and being reminded that I'm a freak and that my body isn't "right". It hurts me deeply. I hate my body. I hate the pain. I hate how it never feels properly there. I hate the way it looks and the way others sometimes look at me. How when I'd play the flute the band teachers would come and push down on my arm - causing me to cry in pain. It was so embarassing. I'd give anything to have this fixed. Thanks for listenning.

Edit: I've finally been going to doctors to see what can be done. Apparently underneath my nerve damage, my shoulder was never developed properly. I have charcot shoulder and glenoid dysplasia as well as brachial plexopathy. I basically have no joint in my shoulder which is why my arm never had felt right and always hurts. I am still having trouble finding anyone who has also had this disability since birth.

Athaliah - posted on 10/29/2014

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hey I was born w/ erbs palsy in 1974. It's funny because I never really was bothered by it as a child, but I am more conscious of it as an adult. I try to always remind myself that it could be worse....I could have no movement in my arm, or worse, no arm at all. I played sports and did everything else that kids do...I just looked a little funny doing it :) I try to not let it hold me back today, but it does to a point. I always try to find ways to hide it like carrying things in that arm, putting my hand in my pocket, folding my arms, etc. Some days I get so upset because I was born this way, but I have to remember that this is what makes me unique :)
I, too, was a big baby...9lbs 11 ozs and my mom was all of 5'1". I was "stuck" and the dr just kept pulling on my head trying to pull me out. Another dr came in and ran his finger under my mom's pubic bone and broke me free. I couldn't move my arm for about a yr and then all of a sudden I moved it. Of course my mom freaked out b/c drs said I would probably never have feeling or movement.
Today, I have movement still, although it is starting to stiffen up a bit. I've never had full range of motion and can't put my arm straight, but I can use it. Just like when I was a kid, I do it all....I just look a lil' different when I do things :)
God bless you and your children and make sure to encourage them to do anything and everything they want to do. We can do anything we want, just in a unique kinda way :)

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Athaliah - posted on 10/29/2014

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Yvette - posted on 10/29/2014

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hi affi,
have you tried a wheel knob that helps with turning the wheel with only one arm

Yvette - posted on 10/29/2014

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no pain in my arm, but beginning to notice numbness and am getting the ulnar nerve stimulated now.

Jess - posted on 09/29/2014

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Hi I'm jess,born with erbs palsy.when I was little I did lots of physio, push ups and especially swimming. It made my arm wonderfully strong,I gained a great range of movement and the pain eventually stopped most days it got to the point where no one noticed anything different and I'd even forget most days that there was anything wrong with it. The doctors even told me when I was 12 that I had managed to grow a new nervous system. Unfortunately a few years ago I repalsied my arm...who knew you could. Since then it has deteriorated dramatically I loose more movement everyday in agony every night and now struggling with what I can do for work :-( what do other people do?

Jamie - posted on 07/24/2014

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Well, I am 27, I have had Erb's palsy since birth with my left arm. It has gone untreated and I am getting ready to see an ortho. I am starting to get in an awkward spot front of my shoulderish area. I have never experienced pain before. My arm has been tired but never painful. I was wondering if many people like me have had pain or what did long term experience has been for you? I had seen a neurologist a few years ago and she told me I had damage to my ulnar nerve and that I could loose feeling eventually in my pinky and ring finger. Has anyone experienced that before? I have never met nor talked to anyone with Erb's palsy as an adult who has had to grow up with it.

I have always held my arm funny. People who are generally curious ask whats wrong with my arm. I always get a little embarrassed and let them know, I was born that way.
I can do anything anyone else does...except a tripod when I was in gym class back in the day. I carry on like nothing is wrong, it just may look funny.
For example, when I take a picture my left arm is always up. That's when a lot of people notice it.

Justine - posted on 01/04/2014

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my son is 7 months old, just recently started a blog www.erbspalsyamothersstory.com

Jill - posted on 12/26/2013

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Hi Affi-
I'm sorry to hear you're having a hard time with driving :( I wish I could offer some help as to how to get your right arm to follow your left. I guess the only thing I would suggest would be to keep practicing and never give up! I remember when I took drivers training and my arm stuck out like I was holding it funny from nerves. My instructor rubbed my arm and said relax...you are stiff as a board. Well I had no control over it and was so embarrassed :( However, I never let him or anyone else in the car know that. I just kept practicing. We sometimes tend to get frustrated and quit too early. Just step back when you feel that way, take a deep breath, and "jump back on the horse." YOU CAN DO IT!!!!

Affi - posted on 12/18/2013

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Hi, I have erbs palsy n I m 27. It has gotten in my way of normal life but it has also given me strength to move forward n work hard for it. Just yesterday I took my driving lessons n it was not good. I cried front of the instructors n I left early. I came home cried my eyes out n then got angry at myself for giving up so easily. Any help of how to drive I m having problems with taking turns I can't get my right arm to follow my left arm normally.

Jill - posted on 12/12/2013

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Hi Tracy-
I am so sorry to hear about this pain you are going thru. I don't have any pain, but my arm is getting stiffer as the years go on. PLEASE promise me something....don't live in the past....the woulda coulda shoulda....because there is nothing we can do about it now. Don't get me wrong...my mind has went there, too, but we can't fo back. My mom asked me if I wasnted to find someone to perform surgery on my arm in an attempt to fix it when I was a teenager. I said nope, cuz what if it makes it worse. That was a good possibility. As a matter of fact, I have read many people's stories about erbs palsey and it seems like I'm doing ok. My arm doesn't have full range of motion and I can't put it straight,and I for sure look funny doing certian things or even just walking w/ my arm "hanging there", but some who underwent treatment or surgeries actually ended up worse off. We don't know what could have been and we can never go back and change what happened. All we can do is do everything to the best of our ability and remind ourselves that we are unique and special. Live for today :) God Bless and Merry Christmas!

Jill - posted on 12/12/2013

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Hi Taundra-
It makes me SO HAPPY to hear that your daughter is taking dance and karate. I think that will actually help her arm to stay a little limber. Tell her to keep up the good work!!! And no, I don't get disability. It's not a disability, at least in my case. I can use my arm to do anything....I just look a little funny doing it :) Merry Christmas to you and your family!

Jill - posted on 12/12/2013

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Hi Cathy-
I am so sorry that your family thinks of your arm as something shameful. Shame on them!!! As I keep saying....it is what makes us unique. There is no shame in a crooked arm. It's not as if we did something toturous to ourselves to cause it. We rarely discussed my arm in my house....not because there was shame, but just cuz I was treated as normal as possible. I did have a coach in middle school tell my mom that she wouldn't let me play on her basketball team because she didn't want to be held responsible if something happened to my arm. I was MAD!!!!! I had played ball for 3 yrs prior w/ no problems. That kinda discouraged me from trying out for sports in high school and then I became shameful of my arm all on my own. Today, my friends say that they do not look at me and see my arm problem. They look at me and see me and that's it. My arm is a part of who I am and there's nothing I can do about it so I miles well enjoy life as there are bigger and more important things to worry about. I cannot change my arm, but I can chnage the my attitude about it :) Merry Christmas to you and yours!

Jill - posted on 12/12/2013

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Hi Monica-
Isn't it funny how it didn't seem to bother us as kids/teenagers, but as an adult it does? You would think we would be "over it" by now....nope :) And I never get any insensitive comments. Questions or stares, yes, but never anyone saying something mean. Just keep the attitude of you are unique and different from other people. Most imprtantly, look at the person who doesn't have an arm at all and wished they could have a "jacked up" arm like us :) I wish you all the best! Merry Christmas!

Monica - posted on 12/11/2013

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Hi, I'm Monica! Born in 81. I to was born with erbs damage to my right arm. As an adult I am realizing I'm having trouble excepting my situation. As a child it did not bother me. But now I get emotional thinking and talking about it. I never asked myself the question," Why me?" But I do ask, "Why couldn't the injury have happened when I was an adult?". I would feel more excepted if my injury had happened differently. I except my arm but not other people's insensitive comments . I just feel lost.

Cathy - posted on 11/17/2013

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I am a 38 year old woman, born with erbs palsy. My parents really never acknowledged it, it was not spoken about in our home. No treatment, no encouragement or support. I was treated the same as my siblings although I clearly could not do a lot of what they could. To this day, they don't talk about it, like it's the Shame of our family. I'm ready to let it go. The shame is not mine. I get a lot of back and shoulder pain, every day chores like hanging the laundry end in pain. I can't lift my right arm above my head for very long, and my arm does not straighten at all. Even when my youngest baby was born, at 9lb 4oz, with his shoulders stuck and the midwife had to use her hands to get him out, my mum still never spoke about my birth. I'm just happy to have my 3 healthy kids. I'm ready to start living my life to the best of my abilities instead of everybody else's.

Taundra - posted on 10/31/2013

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my daughter is ten now and she to was born with Erb's Palsy.Her arm is now smaller and shorter.She went throught this growth spurt in the past 1 1/2 and it is noticeable shorter.She takes dance,has taken karate and does physical theraphy off and on.Do you get disability because the last time I applied, she was a toddler, they have said she is not eligible. My email address is Tmlummus@gmail.com.Please keep in keep in touch.

Rod - posted on 07/04/2013

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Hi, Rod here. I was told by my mom that that cord wrapped around my neck and that there was nothing else Dr could do but pull on my rt arm to save me, but I'm thinking it was my head pulled on as well. Anyway I'm 52 yr old male living in Fremont can and am a civil servant.

Jill - posted on 01/19/2013

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HI Frank....it's been awhile since I've logged on to this site so sorry for the late response.

Sorry to hear about your wrist. I have comtemplated surgery over the years, but my fear is that I could end up worse than I already am. Soooo, I just live w/ it. I don't have any pain, thankfully, but I am self-conscious of it and that bothers me. As I said to Ashley, though, having a crooked arm is better than having no arm at all :)

I'm glad I found this group of supporters! God bless you all!

Jill - posted on 01/19/2013

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Hi Ashley! You have found a nice group of people to talk to :)

I was stuck in my mom's pelvis, too, and the dr kept yanking on my head to try to get me out. Another dr came in the room and unhooked my shoulder, which was the part that was hung-up on my mom's pelvis, and then I slid right out. The damage had already been done, though.

It's weird...sometimes not having a "normal" arm bothers me, yet I see people who have no arm at all who wish they could have my crooked arm like me and then I am so thankful for my "un-normal" arm. We have to accept that God made us different for a reason and be thankful for it :)

Ashley Sarem - posted on 01/17/2013

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HI, I was born in 1993 with Erb's palsey, I was stuck on my mothers pelvis and the doctor pulled my head (I was her first delivery). I have been looking fore someone to talk to.

Frank - posted on 08/21/2012

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Hi Jill my names frank, I was born in 84 with BP in my right arm. I never let it stop me though. I'm an auto technician and a forklift operator, I have done framing, roofing and soo many other jobs. I've always accepted my limitations as just that, I'm not disabled in any way. After all who can do Everything? The things I can't do I chalk up to bring human, not a prison suffering from BP palsy. Anywho, I just wanted to say hi, and hope to give some inspiration. On a side note though, I recently had surgery on my wrist, had a plate installed to keep my wrist straight , and I hate it. 28 years with a limp wrist I learned to compensate, but now is totally fused. It may look aesthetically better, but now I really feel limited. I'm a little upset with myself for going through with the surgery.

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