Heart babies

For mommies of heart babies


Help!!! Mommies with heart kiddos with g-buttons

Ok, my daughter got her button in March. We haven't had any real problems with it, it kinda been smooth sailing. She took right to it. Here is my problem or my question(while...

Started by Starlae on 07/29/2009 in Heart Babies

Last update on 06/07/2013 by Lynn


Complete AV Canal diagnosis. DS?

I am currently 34 weeks and 4 days pregnant. At 31 weeks my unborn daughter was diagnosed with a Complete AV Canal. It is said that this particular heart defect is associated...

Started by Kaitlyn on 05/15/2013 in Heart Babies

Last update on 06/05/2013 by Allison


Free medically supported summer camp!

Roundup River Ranch, a member of the Paul Newman-founded SeriousFun Network of Camps, is a medically supported camp for children ages 7-17 that have been diagnosed with chronic...

Started by Eileen on 05/27/2013 in Heart Babies

Last update on 05/27/2013 by Eileen


10 month old with Coarctation of the aorta

Hello! My daughter is 10 months old, soon to be 11 months. And she has Coarctation of the aorta. I was wondering If anyones lil ones have the same thing?.. and if so, how are...

Started by Heather on 07/01/2010 in Heart Babies

Last update on 03/24/2013 by Heather


How to pick a pediatric hospital?

I just delivered our first son, and we found out he has TOF. We didn't know before we delivered. Luckily, he is doing great so far. We see cardiology again and have another...

Started by Kelly on 12/21/2012 in Heart Babies

Last update on 03/02/2013 by Renee


Mommies with HLHS babies ?

Are there any mommies out there that have babies with Hypoplastic Left Heart Syndrome? If so how old are your little ones? And how did they get through everything? Please fill...

Started by Danyell R on 08/29/2012 in Heart Babies

Last update on 02/18/2013 by Erica



Hi everyone I'm new to this so bare with me four days ago I went with my fiancé for our 22 week anomaly scan everything was going well until they moved on to my baby's heart....

Started by Alexandra on 02/18/2013 in Heart Babies

Last update on 02/18/2013 by Alexandra


TOF with absent pulmonary valve

Hi, I was wondering if there were others mums out there who have experienced TOF with absent pulmonary valve, my daughter is 7 weeks old I know she needs surgery at hopefully a...

Started by Dorne on 09/26/2012 in Heart Babies

Last update on 02/04/2013 by Dorne



My daughter had heart surgery at 4 months of age for a atrial and ventrical septal defect.

Started by Carol on 01/16/2009 in Heart Babies

Last update on 02/04/2013 by Nancy


fetal svt. supervetricular tachycardia

when i was 25ish weeks pregnant my sons heart beat was a bit irregular. the dr wanted to check it again in a couple days. when we went back to check it, his hb was appx 240bpm-...

Started by Amanda on 06/19/2011 in Heart Babies

Last update on 12/19/2012 by Stephanie


Pregnant with HLHS little boy

Hello, My name is Mariah. My husband and I are expecting our first child in late December. We found out we were having a baby boy at 20 weeks and were very excited. After the...

Started by Mariah on 10/13/2012 in Heart Babies

Last update on 11/24/2012 by Rachel



Does anyone else have Marfan syndrome in their family? if so it would be nice to hear from you....thanx

Started by Rachael on 01/21/2009 in Heart Babies

Last update on 11/11/2012 by Jenni


Why does my still cry alot

So my son got out of the hospital a month ago he had TGA and two VSD has one left and a pulmonary band around his artery and still cry alot is this normal he will be three...

Started by Eva on 10/09/2012 in Heart Babies

Last update on 10/30/2012 by Angela


What to expect during and after OHS???

Hi. My son was diagnosed with VSD about a month after he was born. We were always told that it would probably close on it's own, but every time we saw the cardiologist; the...

Started by Jlttmr85 on 10/19/2012 in Heart Babies

Last update on 10/19/2012 by Jlttmr85


Kaden, my Grandson

Kaden was born with a large hole in his heart. At 30 days old he had open heart surgery. He is 2years old now, and will soon need another surgery to remove a pulmonary artery...

Started by Joyce on 10/12/2012 in Heart Babies

Last update on 10/12/2012 by Joyce


hard times!!!!! HELP, HELP, HELP!!! anyone!

My baby is 5 months old. He has down syndrome. Today he is getting a permanent pacemaker in. He has had 2 open heart surgeries. He has a G tube because he is not able to eat...

Started by Dani on 09/17/2012 in Heart Babies

Last update on 09/27/2012 by Chelsea


Any others with Tof with absent pulmonary valve.

Hi I am new to this I have a 7 week old baby girl diagnosed with digeorge syndrome part of her condition is TOF with absent pulmonary valve. Wanting to know of any other...

Started by Dorne on 09/26/2012 in Heart Babies

Last update on 09/26/2012 by Dorne