18 month old with spastic cp

Adriana - posted on 02/14/2013 ( 3 moms have responded )

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Hi im a 20 year old mom andmy son is 18 months old he has spastic cp he can't sit alone, crawl or walk, he doesn't have head control but it has drastically improved over time, he's starting to kind of control sitting unsupported even though he pushes back a lot, he babbles a lot and can't quite talk he says a few little words he's very attentive as well he gives me signs to let me know what he wants and doesn't want he's a happy baby and I'm always positive and strong and HAPPY but there's times that I feel that it's too hard and just when I think he won't reach his goal he does it he always gives me hope. But sometimes I knew moms that were going through the same situation and understand what others don't.

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Dee Dee - posted on 02/14/2013

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Hi
I don't have experience in spastic cp, but you seems to do well from what I can see.
Happy Valentine. I hope you and your family have a loving day.
About , how to tell your family about your son's diagonis? Say what you just said here.
It takes lots courage and strength to deal with their reaction. I have FM for last 20 years. I went thru over 100 doctors. they think I was crazy until 10 years ago. the medicine came out. The doctor finally gave me the medicine. My parents heard me but never say anything about it. My in laws, they keep making demands on my husband and pretend I don't exist. Most my girls friends left me. Handful stayed. They don't know how to help me, but the friendship are there. I don't know how I manage to raise my daughter for that 10 years. I made it. O, my husband stays with me for that 10 years. LOL, believe or not. Recently I finally figure out that my husband, M loves to eat pie, cake and cheese cake. I am really good making them. I DID NOT MAKE ANY PIE, CAKE OR CHEESE CAKE FOR THAT 10 YEARS. so I did not know M likes them until later.
I am always honest with myself and my friends. if they ask me, I will tell them. As much as they will hear or I can handle. Be prepaired the result, we have to accept whatever they react. we can't change how they feel and react. we have to do what is best for our family and move on.
Family with CP child seems always on legal process. You may get some money , now or later. I wonder family service can get you some mental and financial relief. I am sorry I don't have xperience in that area. good luck. thanks you for reading.

Adriana - posted on 02/14/2013

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I'm very well aware of what spastic cp is i still research a lot about it though my son had a rough birth do to medical negligence and I am now currently filing for a lawsuite against the women who delivered my son, and I'm sure the hospital was aware of Her mistake but obviously they will never admit to it thats why I was immediately started on early development intervention he has a physical therapist and occupational therapist since he was 6months he gets therapy at home 3 times a week I don't have a lot of support maybe because my family knows what's wrong with him but don't know his diagnosis I'm not embarrassed to tell them I just don't know how to tell them :(

Dee Dee - posted on 02/14/2013

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Hi
Spastic Cerebral Palsy is caused by brain injury that impair motor coordination. Like any illness in the family, it takes work. Deciding on treatment for children with cerebral palsy can be difficult for parents without medical knowledge. Consulting with a treatment team including a physical therapist, pediatrician, physiatrist, neurologist and neurosurgeon, and an orthopedic surgeon will aid in the decision making process. you are so young , 20 years old. I wonder you get any support from family , friends or even government agency to put your life together mentaally and financially. you are not alone. we all have some sort of illness, one way or another. it doesn't matter how rich, poor, young or old.... mental illness is just as important as physical illness. The stress and axiety to be a caretaker could be damaging to you. I would care for your son as much as can handle, get some help whenever you can get it, get yourself educated about Spastic CP , so you can keep up with your son's medical condition. accept life as it comes and moves on. keep positive, to be hopeful and leave the rest to god , like the rest of us.

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