C Section Scar Pregnancy

Emma - posted on 06/03/2013 ( 14 moms have responded )

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So, four years ago, I got pregnant with my fifth child, a planned pregnancy, it happened very quickly after we had made the decision, we had also spoken to my Obstetrician, just to ask his opinion on this next pregnancy, as it would be my fourth C section ( Son 14 years, Twin Daughters 13 years, Son 6 years ) . I have never managed to give birth naturally, just one of those things, and the Obstetrician having reviewed my notes from the previous C section felt that my Uterus could handle another pregnancy, so, all good we thought.

Four months into my pregnancy, I have a tiny tiny painless bleed, literally, a tiny speck on the toilet tissue, had I not looked, I would have missed it, and so I thought little of it, but mentioned it to my Midwife to be on the safe side, she said ' I would like to book you in for a scan, just for a check' and so, two days later, off we went. The sonographer said the Fetus was viable, all seemed as normal except for one thing that confused her, the Fetus was embedded inside the c section scar of my Uterus. We were summoned to a room, where we were met by a Consultant, who told me that I had to have this baby removed immediately, or my uterus could at any time erupt, and I would bleed to death, I was offered an emergency hysterectomy, they would take my uterus out along with the baby inside it in order to save my life. I was going to sign the papers there and then when my Husband queried the Consultant as to how many times this operation had been performed, her reply was that only 170 people in the world had ever had this type of pregnancy, and that she had never seen it before, and therefore never performed the surgery needed to deal with it. To cut a long story short, we did some research very quickly on the internet, found a Professor in London who had performed this Surgery twice, his name was Davor Jurkovich, at Kings College London, we travelled through the night, and when I got into theatre, he managed to save my Uterus, by cutting out a section of it, namely the old scar tissue, sadly , the Fetus along with it, and then repair it, and so now, I am able to have more children should I want to, but because there is very little statistics regarding this, and my chances of it happening again, I have decided to refrain from having any more.

More and more women are having C sections, by choice, electively choosing this way of child birth over natural method and the Prof told me that this now very rare ectopic pregnancy, is very soon going to become
more common.

Do you think the Govt of our countries should make women aware of this condition, so they can be informed prior to choosing methods of child birth?

Long winded question yes? I would really love to know your feelings on this. Ty

14 Comments

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Meg - posted on 09/03/2013

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I had a csectipn scar ectopic pregnany in April 2013. Luckily it was discovered at 8 weeks and my uterus could be saved. I have only had 1 previous csection and really wish my md had discussed all the complications associated with a csection. Including the need for repeat csection and csection ectopics. This condition is rare but with csection s on the rise this incidence will also increase. It was devastating to have to terminate a healthy fetus, that my hubby and I desperately wanted, because of a csection scar.

Ami - posted on 07/08/2013

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Wow thank you for sharing your story with us. I am going to be very honest, I was told from the time I was 13 that I would never be able to have a baby. I also suffered from tumors and many other female issues throughout my young life. Because of this I had a great fear of ever getting pregnant and if I did having the child "naturally" and always joked that they would have to do a c-section on me.

When the miracle did happen and I did get pregnant my greatest fear was giving birth naturally yet I was unsure how to address my fears with my Doctor. However my daughter was premature and ended up being an emergency c-section. I can no longer have children because of those complications, but as a young adult had I know about what happened to you, I would have NEVER thought of or even joked about getting a c-section. I so appreciate this form for the information and personal stories that are put out there for us to share and better our own lives with. Thank you.

Emma - posted on 06/05/2013

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They do get in cars everyday, and god knows we have enough adverts telling us the dangers of driving, multi million dollar campaigns, this however, would cost nothing, just a few words after the obstetrician has advised the patient of the pitfalls of a C section, he can explain that it is rare, but 1 in 2200 women have lost their babies to it, not just their babies, but sometimes their womb, sometimes their lives.

I was the 1 in 2200, and I have always been the 'it will never happen to me' type person. If two or three sentences which costs NOTHING can prevent the above tragedies, no matter how rare, then it only goes further to making a more comprehensive informed consent, and possibly stop Mothers electively choosing C Section over Natural birth , which will also lead to the condition we speak of staying rare, as opposed to becoming more common as C Section becomes more popular as a birth choice.

Emma - posted on 06/04/2013

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Well, good luck with that, let's hope there is a positive outcome, fingers crossed.

Mary - posted on 06/04/2013

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I don't think that anyone is trying to "hide" this condition, but the truth remains that it is exceedingly rare. Even with the number of c-sections on the rise, the most recent estimate for Cesarean Scar Pregnancy occurrence is 1 in 2200. This means that it has a rate of 0.15% in women with a previous CS and a rate of 6.1% of all ectopic pregnancies in women with at least one previous CS.

I understand your increased awareness and concern about this issue; it happened to you. However, the simple truth is that the risks of any and all complications occur with each subsequent pregnancy in both vaginal AND cesarean deliveries. Pregnancy and delivery carry inherent risks - period. Some of these issues are more common than others. A doctor could spend hours telling you all of the possible risks involved with each method of delivery, but chances are, by the time s/he was done, your brain would be fried, your eyes would be glazed over, and you still wouldn't be any clearer about which method was "safer" for both you and your baby. Yes, in a perfect world, a vaginal delivery is best, but that is assuming that both mother and baby have no issues that indicate otherwise.

Again, I understand how your personal experience has made you feel that this is an undeniably catastrophic complication that everyone should be aware of. I'm genuinely sorry that it happened to you. However, how much impact do you really think it will have to tell a woman that having a c-section leads to a 0.15% likelihood that she could have a cesarean scar pregnancy in her future? A recent study in the US put the odds of dying in a car crash at 1 in 100; that doesn't seem to have deterred Americans from getting into cars every single day, multiple times a day.

~♥Little Miss - posted on 06/03/2013

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I am sure that I could have plastic surgery to take out the painful scar tissue and repair what was never really closed up properly, but that will be a lot of money to do. It is all "healed" but never was closed properly if you get my drift. The sutures fell out the day I got home, and they could not put more in....so really I had a big wound that had no sutures to keep it healing in the correct placement. I should have insisted, but i would have been it would have been major surgery. Looking back now, I would have been covered under insurance for that, and should have insisted. I have to go to a gyno for my annual check up (actually I have not really been back since I had my tubes tied after my daughter was born) and I have full intentions of asking what can be done....if anything will be covered which I don't think it will.

Emma - posted on 06/03/2013

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That sounds dreadful, is there nothing further that can be done? Any repair work? Sounds like hell to me, especially being in a place that isn't exposed to air, so cannot heal as effectively as if the incision was anywhere else.

~♥Little Miss - posted on 06/03/2013

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Well, not necessarily. Some states will not allow vbacs at all! Even if you are capable of having one. I had to drive 1 hour to get to a place that would deliver me via vbac. Many places just won't insure for it.

Here, you just have to deliver in a hospital that has a neonatal unit...and be in a state that allows vbacs. Also looking for a doctor that is willing to try opposed to just simply doing a c section. I swear, most doctors are cut happy here. It sucks. But quite honestly, I kinda secretly wish I had a second c section due to how my body has recovered. I tore, and I was not sewn up properly, so in turn am having problems even though I had my daughter naturally 3 years ago.

Emma - posted on 06/03/2013

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I hated having to have C sections, and again, if I were in the USA they probably would have taken more time to see if I actually could deliver myself naturally, here in the uk and the NHS , their general guidelines are, if you have had one C section, then you will not be offered a natural child birth for subsequent pregnancies, the reason being, the extra cost in monitoring pregnancy, and extra staff during labour, to make sure nothing untoward happens, such as uterine rupture etc.

Emma - posted on 06/03/2013

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Ahhh, you girls forget something, I'm in the UK and subject to the NHS , we are what? A million years behind our american cousins ? And you are right, the Surgeon told me that the scar had been cut down the same place each C section, with no removal of any bad scar tissue, hence C section scar pregnancy.

~♥Little Miss - posted on 06/03/2013

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Yet another thing to add...with my c section I was warned about uterine ruptures, especially since I was opting for a v bac with my second child. I was well informed, but my child did not get stuck in the scar of my uterus. Chances are, the previous surgeons did not remove the old scarring each time they went in, and that can certainly cause complications.

~♥Little Miss - posted on 06/03/2013

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Another thing to add, I think it is a low percentage of women who have that many multiple c sections where this becomes an issue. I don't think it is a hidden problem, more about how knowledgeable the doctor is with future complications of c sections with multiple pregnancies.

~♥Little Miss - posted on 06/03/2013

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For the most part, I don't think c sections should be really an option due to all the unnecessary complications with them. I have had a c section, and a vbac.

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