Just warning you.. TMI Alert!!! But I have a question.

C. - posted on 12/03/2010 ( 17 moms have responded )

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Ok, so some of you know that there's been stuff going on with my periods and all lately.. But there's something I'm kind of concerned about (and I've misplaced my doctor's number, so I can't ask him..)

Anyway, the last several months (July to now), I've been getting periods every 2-3 weeks.. With every period, there's at least one or two days where there's bloody tissue.. Except for this period. It's been going on ALL WEEK!!!! I know that can't be right, b/c I remember my midwife saying something about if I had it, I needed to tell her.. But what does that mean, exactly? I've looked it up and pretty much all I found was stuff about miscarriages. I know it's not a miscarriage. They've done numerous pregnancy tests and blood tests- the only thing was I had slightly elevated levels of Prolactin (but not high enough to be too alarmed, according to my gyno).

I'm just curious as to what it could be? I'm kind of worried..

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I had something similar to this happen when my doctor tried a new birth control on me a few years ago. I ended up bleeding for a month with horrible clots and cramping and bloating, all the things the BC was supposed to stop. I had to go back to my old BC, which helped a lot but my body was still messed up for a while. I couldn't handle significant temperature changes for the next year, and it didn't help that my college roommates kept it 60 degrees in our dorm while it was 90 outside. ugh!

I hope you can figure out what's wrong and get it fixed.

Jodi - posted on 12/03/2010

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Christina, if you do go and have the laparoscopy, see if he will also do a D&C at the same time. They have to knock you out anyway, they may as well do it. It could actually clear things up for you a lot.

ME - posted on 12/03/2010

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I went through something similar after the birth of Mayah 9 months ago, Christina. I would bleed for a few days, then just spot, then bleed heavily, then spot...It went on for 6 months while my OBGYN tried multiple different types of BC to get it under control. I wasn't pregnant either, but I had to have a DandC to scrape my uterus. It sounds terrible, but other than the anesthetic, it wasn't that bad. I would definitely talk to your nurse midwife, and get some advice!

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C. - posted on 12/03/2010

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I don't really, actually, unless I want to pay out the nose. :/ But thanks for the info!

Never heard of a cystoscopy.. I'm hoping it doesn't come to that.. Ow..

Mrs. - posted on 12/03/2010

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Fair enough. Just know, you have other options if you don't want the lap.

Uro/gyn is a good idea, I too went to a few. If they insist on a cystoscopy, ask questions about it. They were always painful for me. However, I know in the states, they sometimes do them while you're a bit under. In Canada, it's just some freezing and brace yourself-ouchy!

Again, let me know if you have any question about the lap later if you do have it done. You know, recovery, will it come back, things to avoid eating that can promote growth of the endo in waiting period till surgery/afterward. Good luck. I really hope for you it is simple and requires no surgery.

C. - posted on 12/03/2010

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Yeah.. The last time they did blood tests (Oct. 29th), one consisted of checking my iron. I'm not anemic or anything like that and my blood clotted fine. The only thin they could find was the levels of Prolactin were a little bit high.



TCM isn't really my thing. Not only that, but I can only go where my PCM (Primary Care Manager) refers me.



And my gyno referred me to a uro/gyn to rule out any bladder issues before he does a laparoscopy (that appointment is on the 16th).



And my son was born in June 2008, so almost 2 1/2 years ago.



Thanks for the link, Jenny! I don't know if I'd be a good candidate for that, though.. My periods are heavy the first couple days and after that it just gets lighter and lighter until it stops (usually anywhere between the 5th and 7th day).



Good luck on it, though! I can't imagine having periods that heavy.

Mrs. - posted on 12/03/2010

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Yes, I know it's the only def way but some women don't want the surgery and the docs just try the other treatments and assume diagnosis.

May I ask, have you tried TCM at all? I thought it was all expensive bunk but then it changed my life. I didn't have to just learn to live with it.

Jodi - posted on 12/03/2010

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Of course I have. I've had several. It's the only way to get a definite diagnosis.



I guess I've just learned to live with it more than anything :)

Jodi - posted on 12/03/2010

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Rebecca, I have had tissue, or at least, clots that look like tissue. And I have been battling endo for about 25 years. Having had an early miscarriage (5 weeks), sometimes my blood clots during my period look exactly the same.



Jenny, I considered having that done, but after I had Taylah, my endometriosis has never returned with the same vigour. My first pregnancy didn't put it in remission, but it seems my second one has. I still get a little pain, some months worse than others, but the rest of the symptoms I used to experience have totally gone. So I've just decided to see how I go :)

Mrs. - posted on 12/03/2010

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Just so you know, I have endo and have had the laparoscopy done 4 times. If you have any questions about endo or the laps, please ask. I'm an old hand.

I'm curious though, how long has it been since you last baby? Usually with endo, you pregnancy and most of the time you are breastfeeding (and not having you period) is often seen as a remission period for the disease. In fact, some eastern and western docs like to claim it is a cure (although this is not proven and is not always the case). If you are just coming off your last pregnancy this last year, it is less likely it would be endo. It could be fibroids, it could be many things.

May I suggest something? As a person who has had the surgery many times, I'd advise you to really try all you can before the surgery to diagnose and eliminate other possible causes/treatments. After all the surgeries, the only thing that ever kept it from coming back was going to a Traditional Chinese Medicine person and acupunturist. TCM folks really have the corner market on natural hormonal treatment and reproductive health issues. It's just, I'd hate to see another woman have a surgery that could have been prevented by a month of treatments by a TCM doc.

Plus, although endo does sometimes cause a lot of bleeding with periods, I never once has tissue come out of me. Clots, yes...tissue no. I looked it up for you in my endo books too and had a really hard time finding anything about tissue clots.

Just my two cents as a endo pro.

If you do have to have the lap though...go ahead and ask away. I even have pics of my last surgery to show you what it looks like and all that...true TMI here we come.

Jenny - posted on 12/03/2010

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I'm looking into having this done http://en.wikipedia.org/wiki/Endometrial...



I have very heavy periods. I go through an Ultra Plus tampoon in just over an hour at my peak. I also have large clots and am getting concerned. I passed one today that made me think I was having miscarraige.



So I talked to my doctor about it on Monday and she said try Ibuprofen at the beginning of my cycle, preferrably before the bleeding starts. Take 2 per meal for 3 days and it should lesson the flow.



If that doesn't work we'll try a different non-hormonal drug and if that doesn't work she'll authorise the surgery. I've read good results with it.

Jodi - posted on 12/03/2010

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Also, have you had your iron levels checked? I know when I was having major issues, it ran my iron levels down severely and I had to have some strong iron supplements. Make sure you look after that too while you are trying to find a solution, or you will find yourself so tired you can't function :)

C. - posted on 12/03/2010

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I had mentioned the D&C b/c my husband's grandmother told me about it, since she had to have it done after having two kids. She also had Endometriosis and ended up having a hysterectomy at 27. I'll have to discuss it more when I go back in Jan. b/c he said since it wasn't very much at the time, it should be Ok.. But it's been all day, everyday this week :/



And it's not bright red, but not brown, either (I have had brown blood this week, too, but not when there's tissue- I don't know why that is.) But anyway, the tissue is more of a dark red in color.



I used to clot really bad, too. I mean, blood clots a little bit bigger than the size of a Quarter (maybe if you put a Quarter and a Nickel next to each other, it'd be about that size). I used to clot every period, and almost every day during.



My doctor did give me birth control pills to try and if they don't work and if my bladder is fine, he's going to do a laparoscopy to see if it's Endo.



I'll definitely bring that up to him at my next appointment.



Thanks, ladies!

Bonnie - posted on 12/03/2010

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I'm not sure what it could be Christina. I often get clots the first day or so, but not like that. I hope everything is alright with you. *hug*

April - posted on 12/03/2010

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i just wanted to let you know i'm thinking of you and hoping you are ok. wish i had advice, but all i can offer up is that sometimes our bodies throw us curveballs! I skipped my period for the entire month of Nov. but got it on Dec 1 and it is WICKED. If I knew I was going to be punished for skipping a period, I would have prayed not to skip it!!

Jodi - posted on 12/03/2010

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Given it's TMI anyway....what colour is the tissue? Is it bright red, or is it more a dull dark brown? I used to pass a lot of dark brown tissue at the beginning of my period, and generally it is old blood. I then would sometimes have heavy clotting during my period. It wasn't tissue, so much as red clotted blood. It was to do with my endometriosis. It wouldn't happen every period, but it was common. Back in my early 20s, before my diagnosis, it was REALLY bad, I would have a week of bleeding old blood, then my period would go for 10 days, REALLY heavy and clotting, then I would stop for a week, and it would start all over again.

Once I had the diagnosis and they gave me a D&C, put me on some hormone therapy, it really helped regulate things.

Have you talked to your doctor about this as a possibility yet?

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