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Hypoplastic Left Heart Syndrome

Mom with a child with Hypoplastic Left Heart Syndrome. Anyone can join. Has your child gone through surgeries, heart transplant, or earned their wing. This is a place where we can all be there for each other.



Welcome..lets get to know each other and be there has support for each other.-Deborah


Struggling to Cope

Im reaching out to other parents out there.........My boyfriend of whom I have been with for almost 5 years has a son who is now 6 with Hypo Plastic Left Heart. We all love him...


Feeding difficulties?

Hi, My son is s7 months and is 3 and a half months post Glenn. He has an NG tube placed for feeding. He takes very small amounts of milk at one time. We have been feeding him...


Any advice for the first years?

I'm currently 21 weeks pregnant and recently found out my little girl has HLHS. We've decided to do the surgeries when she is born. I know the first few years, particularly the...