HRHS 8 year old daughter

Tamara - posted on 06/09/2012 ( 2 moms have responded )

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My daughter was born with HRHS..I had no clue while I was pregnant that anything was wrong..I was heart broken when I found out..she has had 3 open heart surgeries and 2 pacemakers..since the age of one week old..if anyone wants to talk I would love to chat

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Tamara - posted on 10/24/2012

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Did you decide to go back to work? It was very hard for me to go back when i did. My girl was almost 3 years old when i went back. Hope days are better for you and may god look over you and your little girl. I know I still have hard days wondering if she is gonna be alright or is something gonna happen. But mostly I keep my faith and take everyday as if I might be the last. I know from having her not to take life for granted!!

GAYLE - posted on 10/01/2012

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Hi, Mum of a little girl HRHS 6yrs. 1 year out from Fontan completion.

Found this thread, because I am personally having a down day-- considering going back to work.

and feeling guilty about it. Cheers, Gayle.

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