has any of you had a baby born with talipies?

Jessica - posted on 01/14/2010

Hi Karen,
It seems that different kinds of talipes require different treatments, so to be correct, my son Tavian was born with "Talipes Calcaneovalgus" - see link 1 & 2 below for photos of Tavian, - and as far as we know there was no structural deformity in the bone, purely muscle/tendon tightness & weakness, which the physiotherapy has aided in correction (we are lucky).
Link 3 is a medical pic of different kinds of Talipes
Link 4 below for a medical sketch which shows the 2yr old feet, exactly how Tavian's look. Link 5 are Tavians feet now.

I was unaware that there were different kinds of talipes until i read your reply, so i jumped on the net & found out some more info for myself, as Tavian has quite a few other issues also, and one of these that we can link to the Talipes is that the more severe the extent of talipes, the more the leg associated will be shorter & thinner, which it true in Tavian's case! his Left foot was more severe & his Left leg is shorter & Thinner! I will have may more questions for his Ortho on our next consult, which is only a few weeks away.
I am sure that the treatment your Daughter has had is relevant to her form of Talipes, (clubfoot I am presuming) and if she is coping well without pain & it has improved functionally & cosmetically then it has most certainly helped.

Thanks for being an eye opener, Tavian's other problems have been, and are our priority over his Talipes, but now I want to know more to see if there is more that can be done other than our physio & Orthotics in his shoes when he is older!
Thanks, Jessica :)

1 - http://www.facebook.com/photo.php?pid=34...

2 - http://www.facebook.com/photo.php?pid=34...

3 - http://a248.e.akamai.net/7/248/430/20080...(1).jpg

4 - http://www.netterimages.com/image/8233.h...

5 - http://www.facebook.com/photo.php?pid=34...

Karen - posted on 01/14/2010

hi jessica,
when katelyn was born her right foot was turned in with her ankle bone facing the ground and her toes pointed in and up! we initially were given those stretches to do when katelyn was born but her foot didn't budge it was too tight in position. so we were refferred to an ortho surgeon when she was 3 months old he said she needed to have soft tissue release-(which is where they divide the achillies tendon in heel) when she'd be 6mths old. so she had the op and was put in cast for 4months in total, having the cast changed every 2-3weeks. after that she had to wear special boots with a spreader bar between them called denis browne boots. she had to wear those for 23hrs aday for 4months, now she only has to wear them at nite. the poor mite has been through alot but she's as gud as gold and none of it holds her back atall! she'll be 2 this month and she's flyin round the place. but her foot is still turning in a bit! no one else dat ive came across had the same order of treatment. most people seem to have had the ponsetti method which is manipulation and casting every week from approx 2 weeks old. and then if necessary they have soft tissue release. did u hear of either of these methods?
Karen

Claire - posted on 01/18/2010

Hi Karen I will put her in touch with you if i send you her details in a private you could add her on face book and send her a message explaing who you are :)

Karen - posted on 01/18/2010

hi jessica
glad i could be of some help. tavians talipies was very different to katelyn's. i hope you get on well with your nxt app with ur ortho. our nxt app is in march and like you i have many more questions that need answers! i would show you pics of katelyns feet but i dont no how to do as you did and add links im not the greatest on the computer!! i

Karen - posted on 01/18/2010

hi claire you can put your sister in touch with me aswell if you like its good to compare stories, treatments and how the little ones progress,

Claire - posted on 01/15/2010

Hi Jessica nice to hear from you my sister is on facebook you could add her on there. I will send you a private message with her details.

Jessica - posted on 01/15/2010

Hi Claire, yes, feel free to put your nieces mum in contact with me. It would be interesting to find out more information on different cases & to have someone to talk to.
:) i look forward to chatting with her.

Claire - posted on 01/15/2010

Hi my niece was born with talipies and is now 8 years old. Her Mum has always wanted to find Mums to chat with who have children with the same condition. If you are interested please let know and i will put you in touch thank you :)

Jessica - posted on 01/14/2010

Hi Karen,

My little boy was born with talipes on both feet, we were given exercises from the physio to massage and stretch the foot downward (like a ballerina) every single nappy change and have done so till the last few months since he has been walking very confidently, we have gone down to once a day after his bath. It has improved quite remarkably as when he was born his toes were touching his shins. He still walks with his feet trned out & on a slight angle, but at lease he can walk! the orthopaedic surgeon (baby bone doctor) has said that nothing much can be said until his bones on the feet mature, which i think he said around 5yrs old. I would be interested to hear on your recommended treatment methods are.



:) Jessica