Kids living with Congenital Heart Disease

A support group for families who have children living with congenital heart disease. The stress and joy of having a child with a special heart.



My son Jack (who is six months old) has a pacemaker now as a result of needing open heart surgery when he was 4 days old to fix his asd, vsd, coarctation of the aorta and an...


Double Aortic Arch

My 18 month old son, Apollo, was just diagnosed with this. He is having surgery to correct it March 7th. Anyone else have a child with this? I'm looking for any input,...


Glenn surgery

My son is due back for glenn surgery next Monday, please share your experiences of this surgery with me. Feel sick, the thoughts of him going through major surggery again, but I...