Heart Surgery next week

Kierstie - posted on 04/26/2009 ( 11 moms have responded )

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I am new here - and need some support. My Son (Jeremy, 9 months on 5/8) is having heart surgery to repair his VSD, small ASD and pulmonary valve stenosis on Mayh 4th. We will be at INOVA Fairfax. I am doing okay, but am really scared about the whole thing. Anyone got any thoughts about how to get through this next week or the actual day?

Thanks much

Kierstie

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Kayla - posted on 04/29/2009

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My son has had 2 open heart surgeries. His first when he was 4 days old, his second at 6 months. He has hopefully only one more to go! It's tough to go thru something like this! The way I stayed sane through-out the waiting period of Olivers surgeries was to think that he had to have it and was going to be so much better following them! I also tried to keep it far from my mind...the first one it was tough to keep that far back because it was the one with the lowest survival statitics of the 3 he has to have. The second one I can't say I didn't think about, but I was actually looking forward to it. It's awful to say that I know, but I knew he was going to be a totally different child after he had it and there were going to be less worries and all that! But, on the day of...make sure you have a lot of support!! Lot's of family members and friends! Also...take something to occupy yourself! You'll drive yourself nuts otherwise...plus it makes the time go much faster! The OR nurse at the hospital we go to is really good about updating the families...she'd call every hour or so to let us know what was up! I'm sure it's like that at every hospital!! Good luck, and stay strong! Your family is in my prayers!

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Kierstie - posted on 06/27/2009

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Thanks to all for the prayers and thoughts. Jeremy is doing great - you would never know he had the surgery... which is so amazing! I can't believe it was almost 8 weeks ago!! he is a new kid!

Angela - posted on 06/04/2009

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our little girl was not operated on as her white blood cell count was to high and the doctors were worried that she could hemarage now we have a new date and she should be going to hospital on the 15th june. talk about stress

Tiffany - posted on 06/04/2009

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Hi Kiersten i will pray for your son, i can't imagine what you and your family is going through.

Angela - posted on 05/15/2009

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Our little girl is 14 months old she had the right ventrical blocked and under developed. she had her first open heart surgery at 10 days old and her next one is on the 27thMay and we hope it will be the last. The worst thing is the waiting through the surgery her first was 5 and a half hours long and the time never seems to pass. Well good luck and my prayers are with you

Kierstie - posted on 05/03/2009

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Thanks to all the posts! We have great support of family, friends and church. We appreciate the prayers too. Surgery was pushed back a day (Tuesday instead of tomorrow) so another day of waiting, but we can do it, I know.
i will send a note when he is recovering!

Latrice - posted on 04/29/2009

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Hi Kierstie, My name is Latrice, my daughter Destini had an arterial switch when she was 1 week old. She was diagnosed with Transposition of the Great Arteries when I was 14 weeks pregnant. She is doing great as a matter of fact, if you didn't know her and she was fully clothed, you would like she was your normal 14 month old. There were 2 really hard parts for me; the waiting during the surgery and all the tubes after. Don't worry in no time your little Jeremy will be better than ever.

My family will be sure to mention Jeremy in our prayers. And we truly believe that prayer changes things. Be Blessed!

Latrice

Kathy - posted on 04/27/2009

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Hi, Kierstie. I totally know how you are feeling right now. I have a little boy that just turned 2, but he had open heart surgery when he was 6 and 1/2 months old. He was born with Tetralogy of Fallot, which is another form of a congenital heart defect. He is doing awesome now. But it was the most heartwrenching thing I have ever been through. The best thing I can tell you is to have lots of support, that is going to be your biggest help right now. You just have to keep your keep your head up. I will keep you in my thoughts and prayers for the upcoming surgery. Please let us know how everything went and how your guy is doing when you can after you get home. If you want add me as a friend on FB and we chat. Take Care, Kathy

Anne - posted on 04/27/2009

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Hi Kierstie I am an adult who was the child needing heart surgery (Complete Tetralogy of Fallot. Do you have support from family, church friends? Are you going to be away from home? (These questions are for you to think about and not necessarily questions to answer with a post. I am sure you are very busy.) Please know you will be in my thoughts and Prayers, over the next several weeks. Anne

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