Hello I am new here

Starlae - posted on 04/07/2009 ( 2 moms have responded )

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Hello all. My name is Star. My daughter Jamiee was born Aug. 7, 2007 with a form of HLHS. She has had 3 open hearts, 2 caths, and she has a g-tube. She will be having another surgery next year. I am always glad to meet other parents who share this journey with me. I hope to get to know all of you. I am a pretty open book about all of this so if you have any question i am here.

Star

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JESSICA - posted on 10/11/2009

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My son was born with HLHS. He was born jan 19 2009. He has had two open heart surgeries, a g-tube, and a tracheoostomy. He also has other problems. Hang in there and I hope all is well with your daughter.

Jessica

TNell - posted on 10/05/2009

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Hello! My son just went through his Fontan, has a g-tube and is finally home after being in the hospital all summer (literally). Feel free to add me to your circle! How are you holding up?

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