Hello! I have a son with TOF

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Kit - posted on 06/18/2010

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I also have a son with TOF, he had his repair 3 months ago.........and he is doing ok. I just pray that he won't need a valve replacement later in life.

Sharon - posted on 05/22/2010

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My son had his repair in 1998 at 5 1/2 months. This October will be 12 years since his surgery!! He is doing great!! We do have problems here and there but nothing that we are handling.

Holly - posted on 10/26/2009

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My son has tof he had a bt shunt placed in may and is going in for his full repair in a week,we are hoping this will be it they arent sure though he may need a valve replacemnt way later in life.

Sarah - posted on 09/20/2009

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I'm understand about being scared. I was to. Brendon needed the surgery in order to live what most people call a normal life. He is doing fine. Now he'll need more to repair, replace, or bypass the valve. We're to find out at the end of Oct. If he has to have it between ages 10yrs. to teens or 18yrs. to 30yrs. If your son doesn't need the surgeries then you and him can count your blessings. I hope and pray that it all works out.

Jeny - posted on 06/01/2009

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Quoting Sarah:

Hi, how old is your son? My son has TOF with VSD and will be three on July 20, 2009. He had his repair surgery when he was 4 1/2 mo. old. he is doing well now. I hope all is well with your family.
Sarah


Hello, my son is 8 yrs. old now. He has a TOF, PVA and so many collaterals. He hadnt any surgery yet. Because i'm afraid of surgery for my son. Thnks for ur concern. I hope ur family well also.

User - posted on 05/31/2009

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My daughter Teri was born with fallows as well which was repaired at 14 months, we found out that she had a leaky pulmonary valve at 5 which needed replacing in November last year she is 17 now and i think what doctors can do for families like us is wonderful. good luck. xxx

Sarah - posted on 05/24/2009

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Hi, how old is your son? My son has TOF with VSD and will be three on July 20, 2009. He had his repair surgery when he was 4 1/2 mo. old. he is doing well now. I hope all is well with your family.

Sarah

Sarah - posted on 05/24/2009

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Hi, how old is your son? My son has TOF with VSD and will be three on July 20, 2009. He had his repair surgery when he was 4 1/2 mo. old. he is doing well now. I hope all is well with your family.

Sarah

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