Hi, I'm new here!

Samantha - posted on 02/02/2009 ( 3 moms have responded )

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Hello everyone. My name is Samantha and I have 2 kids. My daugher Annika was just born 2 months ago on Dec. 5th. 2008 and has been diagnosed as having both ASD (atrial septal defect) and VSD (ventricular septal defect). I had never heard of these before I was told my daughter had them. What a scary thing to hear! She has been seeing an excellent pediatric cardiologist since she was 2 days old. I am told that she will have to have surgery for the ASD, but the VSD should more than likely close on it's own. I am still very nervous and scared and it is really nice to see message boards like this where people can come for support from others who know what they are going through!

3 Comments

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Nicole - posted on 03/03/2009

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Welcome to the group, you will see that surprisingly there are a lot of these sweet little babies out there. My son is now 3 1/2 and doing well. We are all here if you need an ear.

Lori - posted on 02/24/2009

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I totally know how you feel. My son has DOUBLE OUTLET RIGHT VENTRICLE WITH PULMONARY STINOSIS AND TRANSPOSITION OF THE GREAT VESSELS. ALL OF HIS ORGANS ARE FLIP FLOPPED AS WELL. So basically all of his organs that are suppose to be on the right side of his body are on his left and visa versa. I think they call it MIRRORED ORGAN SYNDROME. I have never heard of any of this and it is really scary when you don't know what it is all about. Do some research on the internet on it that really helped me understand a little more. Feel free to ask her doctor to explain it. I had to have my son's doctor draw me a picture cause I just didn't get it. I understand a lot more now. I know how scary it can be to know you kid has to have surgery. My son had one surgery at 6 months and has to have another coming up this summer. I have already been through one surgery and it went great but I am scared out of my mind. I hope all goes well.

Sarah - posted on 02/22/2009

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I understand. I had never heard of Tetrology of Fallot, VSD, and Pulmonary Valve Stenosis which is what my son has. I'm glad that it sonfs like your daughter's VSD is not as big as Brendon's was. He had it repaired at 4 1/2 months along with the Valve repair.  I hope all goes well for her. I know her condition is a little diferent than my son's, but feel free to ask me any questions if you have any. I will do my best to answer them, if I can. Take Care! ~Sarah

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