I'm new! My daughter has a PDA

Lisa - posted on 02/21/2009 ( 4 moms have responded )

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My daughter was 2 when they first found her murmur. The Dr didn't think it was going to be anything but after her echo they found a PDA. They are going to give her until this summer to see if it will close on it's own if not she will have a cath done. Then a echo every year for the rest of her life.

I work in my family Dr's office and when that report came back I was so upset!! I am around a lot of things, but this is hard. One of our nurse's said "They do heart caths all the time on kids." I was so mad and said "But they aren't my kids." I just hate when the Dr's and others think it's no big deal they take care of stuff like that everyday she will be fine. I know in my heart and my head that she will be ok but I still worry everyday about it because it is my child! And I hate the fact that she will have to deal with it for the rest of her life.

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Latricia - posted on 09/22/2009

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hello my my first born daughter wuz born aug 27 2009 and they found a heart murmur an echo wuz done and she wuz diagnoised with a pda and pulmonary valve stenosis. This wuz truly devastating but she had a 2nd echo n the pda had closed thank god but her cardiologist told me she had a mild-mod case of the pul stenosis and she may need cardiac cath if it becomes a severe case, i pray everday it dosent but he said she will live a normal life.

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Hi Lisa,  I have a daughter who has seen a cardiologist for all of her life (she is 17 yrs old).  When she was born she also had an ASD (Atrial Septal Defect) AND a PDA.  I understand what you are going through, because she was also my first born and it is very heart wrenching to hear this because you always want your child to be happy and healthy.  I hate that any child has to go throuogh any of this at all, but the doctors now a days are very good, and they will do anything and everything for you and your daughter.    Within the last 2 yrs, we just found out that our daughter has Restrictive Cardiomyopathy.   Talk about a punch in the stomach!!    Have faith in your cardiologist!

Stacie - posted on 03/09/2009

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I know how you feel. My son had a murmer when he was an infant and we were supposed to go have an echo when he was 5 or 6 to make sure it was closed. Well that is but then they found out he has coarctation of the aorta. Yes, it hopefully can be fixed with a procedure but it didn't stop me from crying when the doctor told me. I know everything will be fine too but it won't stop me from worrying yet.

Mary - posted on 02/28/2009

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I am assuming this is recent news for you. For me I just take it a day, or year at time. My daughter has TOF and has had 2 surgeries. She is 12 and has seen the cardiologist every year or every other year since birth. On her last checkup we found that she will probably be needing another surgery within next 2 years. We have to go back at the the end of the year for another assessment. She hasn't ever minded going to the cardiologist. They usually give her pictures of her heart and has enjoyed showing them off. She is doing well and has led a normal life. She is on a swim team and has never had trouble keeping up with other kids. I say all of this to hopefully encourage you.  It is something you will have to deal with but it has gotten easier for us over the years. Hope something from this encourages you.

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