r.i.p little man

Julia - posted on 01/17/2009 ( 9 moms have responded )

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Hi there, I have joined this group because I had a baby boy who was born 08.08.06 with a condition called Hypoplastic Left Heart syndrome. This basically meant that only the right side of his heart worked.



Ashton battled through 3 open heart surgeries and 2 cardiac arrests but on 13th June 08 our worst fears were confirmed. My baby was in heart failure and needed a transplant. We took our little man to Great Ormond Street hospital and he was put onto the waiting list. On 23.07.08 he arrested in my husbands arms and was rushed to ITU at Birmingham Childrens Hospital. He was stabilised and was doing really well. We were staying at the parents accomodation just across the road when we had a phone call at 6.45am on fri 25.07.08 saying that Ashton was arresting again. We got to him within 5 mins of the call, it took a total of 27 mins to bring him back. We were told that there was nothing more that could be done for him and he was now too weak for a transplant. We had to make the worst decision a parent could make and that was to turn off his life support. The docs came in at 6pm and turned off his machine at 6.15pm, he passed away in my arms at 6.25pm listening to Thomas the Tank engine. He was then carried by my husband to the theatres where his kidneys were taken to be transplanted into a 50 yr ols male.



The theatre staff bought Ashton back to his room on the ward where my husband and I bathed and dressed him in his favourite clothes. we then carried him down to the rainbow suite where the family gathered to say their last goodbyes.



I'm sorry if I have upset anyone by writing this but I am so proud of my little angel and how hard he fought that I want people to read his story and know what a special little boy he was and always will be in my heart.



Love to you and your little ones...cherish every single second (even when they are driving you round the bend!)



Jules x...mummy to Angel Ashton

9 Comments

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Anita - posted on 08/16/2009

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Quoting Julia:

r.i.p little man

Hi there, I have joined this group because I had a baby boy who was born 08.08.06 with a condition called Hypoplastic Left Heart syndrome. This basically meant that only the right side of his heart worked.

Ashton battled through 3 open heart surgeries and 2 cardiac arrests but on 13th June 08 our worst fears were confirmed. My baby was in heart failure and needed a transplant. We took our little man to Great Ormond Street hospital and he was put onto the waiting list. On 23.07.08 he arrested in my husbands arms and was rushed to ITU at Birmingham Childrens Hospital. He was stabilised and was doing really well. We were staying at the parents accomodation just across the road when we had a phone call at 6.45am on fri 25.07.08 saying that Ashton was arresting again. We got to him within 5 mins of the call, it took a total of 27 mins to bring him back. We were told that there was nothing more that could be done for him and he was now too weak for a transplant. We had to make the worst decision a parent could make and that was to turn off his life support. The docs came in at 6pm and turned off his machine at 6.15pm, he passed away in my arms at 6.25pm listening to Thomas the Tank engine. He was then carried by my husband to the theatres where his kidneys were taken to be transplanted into a 50 yr ols male.

The theatre staff bought Ashton back to his room on the ward where my husband and I bathed and dressed him in his favourite clothes. we then carried him down to the rainbow suite where the family gathered to say their last goodbyes.

I'm sorry if I have upset anyone by writing this but I am so proud of my little angel and how hard he fought that I want people to read his story and know what a special little boy he was and always will be in my heart.

Love to you and your little ones...cherish every single second (even when they are driving you round the bend!)

Jules x...mummy to Angel Ashton


 

Amanda - posted on 08/08/2009

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You're post has brought tears to my eyes. My son was also born wiht HLHS on July 15, 2005. He is doing extremely well and I cherish every moment with him. Your post just helps to remind me that our babies are true miracles, gifts from God and I pray that you have peace, knowing that Ashton is in peace and now your angel.

Nicole - posted on 01/31/2009

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Thanks for sharing your story! My little guy celebrated his 3rd birthday just 3 days prior to your little man passing I am amazed at your strength! Thanks for reminding us all how precious life is.

TNell - posted on 01/27/2009

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I am sorry that you lost your son.  My son also has HLHS and it is a constant thought in the back of my mind that we don't know how long we have him with us.  I hope that you are able to remember the good and sweet times with him and that the peace of God will fall upon you. 

Katielaine - posted on 01/27/2009

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Reading your story just made me sobb! My son was born 9/2/06, so close to your son. Thankfully he is healthy, but we did adopt a baby with Tetraology of Fallot. My heart goes out to you and your family & I applaud you on the difficult decision of organ donation!!

Lisa - posted on 01/27/2009

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I am so sorry your baby is no longer in your arms. Thank you for sharing his story and reminding us of how precious every second is!

Jerilyn - posted on 01/22/2009

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I am so sorry to hear about your loss... It too has brought tears to my eyes... my heart goes out to you and your family.

Vickie - posted on 01/18/2009

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hi ur story brought tears to my eyes rest in peace ur little angel he was a little star and u r so brave xx

Vickie - posted on 01/18/2009

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Quoting Julia:

r.i.p little man

Hi there, I have joined this group because I had a baby boy who was born 08.08.06 with a condition called Hypoplastic Left Heart syndrome. This basically meant that only the right side of his heart worked.

Ashton battled through 3 open heart surgeries and 2 cardiac arrests but on 13th June 08 our worst fears were confirmed. My baby was in heart failure and needed a transplant. We took our little man to Great Ormond Street hospital and he was put onto the waiting list. On 23.07.08 he arrested in my husbands arms and was rushed to ITU at Birmingham Childrens Hospital. He was stabilised and was doing really well. We were staying at the parents accomodation just across the road when we had a phone call at 6.45am on fri 25.07.08 saying that Ashton was arresting again. We got to him within 5 mins of the call, it took a total of 27 mins to bring him back. We were told that there was nothing more that could be done for him and he was now too weak for a transplant. We had to make the worst decision a parent could make and that was to turn off his life support. The docs came in at 6pm and turned off his machine at 6.15pm, he passed away in my arms at 6.25pm listening to Thomas the Tank engine. He was then carried by my husband to the theatres where his kidneys were taken to be transplanted into a 50 yr ols male.

The theatre staff bought Ashton back to his room on the ward where my husband and I bathed and dressed him in his favourite clothes. we then carried him down to the rainbow suite where the family gathered to say their last goodbyes.

I'm sorry if I have upset anyone by writing this but I am so proud of my little angel and how hard he fought that I want people to read his story and know what a special little boy he was and always will be in my heart.

Love to you and your little ones...cherish every single second (even when they are driving you round the bend!)

Jules x...mummy to Angel Ashton


 

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