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Anyone have a baby who is allergic to milk proteins?

Nachelle - posted on 08/07/2010 ( 36 moms have responded )

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My 3 month old daughter has been constantly throwing up & screaming in pain from her tummy. We tried EVERY formula possible. Every brand. Sensitive. Soy. ETC. Nothing worked. Took her to the doctors many many times and they said that she was fine. "Spitting up was normal".

I noticed a formula for protein allergies. I decided to try it. Within 24 hours the throwing up stopped. The screaming in pain stopped. She doesn't spit up at all anymore. I talked to her pediatrician and she said that protein allergies were normal. If they were so normal why did she not test my daughter for them to begin with? Instead of letting her suffer.

Has anyone else had the same issue?

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Claire - posted on 11/08/2011

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hi ya. well we have just been to the hospital for a fructose intolerant test, don't know if you know about it? apparently it has only come to light 2 years ago. a lactose,dairy, milk protein allergy is miss diagnosed and can be a fructose allergy. this test is very easy and doe not bother your child they just have to breath into a tube or if young wear a mask. There isn't many hospitals that provide this on the NHS. however we got a result of fructose intolerant and m daughter is now on a fructose free diet along with milk, soya and wheat, and i've never seen her looking so great. she's not pale,her tummy doesn't hurt and no more thrush.. i just need to introduce milk and see how that goes....

[deleted account]

My daughter (almost 8 now) used to "spit up" so much that I needed a bath towel every time I nursed! No little diaper rag was enough. She was never formula fed, but it was the dairy in my own diet. Between 3-6 months, she developed severe eczema. Through the elimination of the allergens in my own diet, we managed to eliminate it. Still today, if she eats milk or gluten, it starts to come back - but it's mostly a warm weather problem. My son also has intolerances to these foods that show up as behavior/ADHD/autism spectrum problems. It seems to be in our family and we have lived without those foods for years now.

It is frustrating that doctors don't know more about the effects of food on our health! Good job on taking action on your own instead of waiting for your doctor.

You'll need to be careful about milk in the future. As she begins to eat solid food, I would recommend holding off on feeding her gluten-containing grains until she is at least 1 year old, or longer. The proteins of milk and gluten react similar in the body and she could have issues with the grains as well.

Stephani
http://www.nourishingjourney.com

Virna-Lisa - posted on 08/13/2010

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Both my boys are lactose challenged. I gave them goat milk for two years and now they drink Almond milk. They are 3 and 4 years old. I understand your pain because my youngest one kept crying, because his stomach was hurting and he stayed hungry.

Alba - posted on 08/09/2010

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yes! We had the same issue. When he was tested for food allergies he was positive to all major allergens except for shellfish. I nursed him until he was 14 months so I did not have that problem, except when we occasional bottle feed him and he threw up every time. He is almos 3 and we still give him the same medical hypoallergenic formula since he was 15 month. We use Neocate... right now he is in the Neocate Jr version. It made a huge difference for him

Noel - posted on 04/19/2015

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There's a type of allergy or syndrome called FPIES where this exactly it, they are allergic to the proteins in certain foods and react gastrel. It took us a whole year with my son constantly throwing up and doctors saying that to us "everything is fine, it's normal" till we found out...my son almost died at the age of 8 months. I decided to just take him completely off of formula then but he also couldn't have the allergy formulas. Maybe talk to your pedi or doctor to send to an allergist and ask them about FPIES. Good luck!

36 Comments

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Lisa - posted on 03/21/2014

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@Jody Cenite We were able to access a formula called Neocate at a lowered cost through the paediatric immunology team at our local hospital.

Jodycenite - posted on 03/14/2014

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What kind.of formula did.u use cause im going through the same thing with my daughter

Neetu - posted on 09/05/2013

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My 5 month daughter has started taking cow's milk from the last two days,and from the last two days her cheeks are looking red as if there is some allergy.From the day she was born she she was taking formula only.can any body suggest if the allergy can occur due to cow's milk also.

April - posted on 09/03/2013

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My daughter can't break the protein down in dairy. Self diagnosed by talking with others (and the Dr. never mentioned it, just intolerance) Anyway, I am still breastfeeding and stopped intaking lactose at first per the Dr. She still hurt and had blood in her stool. When I stopped intaking dairy entirely, it all stopped. I've spoke to many people about it and have been lucky enough to get some useful information. One woman's son has the same issue. The family "bought in" with other families on a camel. The camel milk is shipped to them frozen and they use is as needed. I researched it and when I stop breastfeeding, I'm buying in on a camel. Camel's milk has a lot of healing properties for the digestive system also. Feeling positive about this alternative :)

[deleted account]

My son is 2 now and we had to try everything before we found a really good homemade formula. It made the difference for him immediatly. He stopped throwing up, stopped screaming 90% of the time he was awake and he slept his first 5 hours long... He was suppode to be allergic to milk proteins, but this formula proved it was all the chemical stuff they put in baby formulas he couldn't tolerate. Even today, he can't eat fast food or anything with sugar/glucose/fructose/modified corn starch...

http://www.westonaprice.org/childrens-he...

There it is. I hope it will help you. It saved our lives!!

Humaira - posted on 11/20/2012

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well i m mother of 10 month twin boys, they both were on breast and formula milk till 8.5 month and had 5-6 bottles of milk daily, but suddenly they got sever diareha 2 months back but cured after giving medicnes, but just after a week time they another start doing loose motions, we tried 3 seprate antibiotic course from different doctors, but motions did not get better even in a month time, we tried everything but nothing came fruitful. then i myself diagnosed that they got allergy from milk beacause whenever they drink formula milk they passed loose motion, and now its ben 2 months and they are still passing motions, i changd their milk to lactose free milk then cow milk , also gave them milk of half strength(more water less milk) but their motions didnot stoped, i cannot understand that once they were having milk since theri birth then suddenly how come they be milk allergic??? they want milk as part of their life,now a days i m giving them everything boiled in water, but gave them lactose free milk 2 times a day, and whenever they drink milk they pass loose motion. what can i do? i m very disturbed.... i have no choice left for theri feeding, i m giving them sagoodana(boiled in water), rice khichdi, jelly, banana, bread in tea , pls help mee...

Debbie - posted on 09/11/2012

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my daughter is allergic to milk proteins. i used allimentum formula when she was an infant and then elecare. expensive, but perfect for her. she still has the allergy to this day and she's almost five.

good luck!

Leticia - posted on 09/06/2012

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hello there.

i have a 1 month grandbaby he has milk allergic too after my daugther try 4 diferent kind of formula she found mitromigent is very good formula expensive but is the best. i work in a medical office my doctor test the baby stool firts after i told her the baby was crying all nigth and the stool was green color with odor. the test cameback positive for blood in the stool due to protein.

Robin Jane - posted on 05/16/2012

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Human Breast Milk is best for human babies. I always remember my teacher telling the nursing students." Why would we want to give our babies cows milk ,if they aren`t baby cows"

And formula is manufactered, far from the human milk , that our human babies need. Everything else is just 100% inferior to a human mothers milk for her baby.

It`s always warm and ready, to go. With No fuss, and full of immunity protection for the baby.

If your not on medications , it`s perfect. But it does take practice if your not used to it.

Danielle - posted on 05/11/2012

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Yes i have! i did the same thing with my daughter when she was a baby. drs kept telling me it was normal for her to cry alot and be constipated! i was upset and did my own research. put her on soy formula and was so much better. when she turned 1 they told me to put her on cows milk and i told them no she is allergivc to milk and they told me no she is not she needs milk. so i tried it for a week and she had an endless runny nose and congestion and then started gettinga rash and they still denied it so i just put her on almond milk and symptoms again went away. for her next well baby check they asked if she is on whole milk still and i said i dont care what you say but my daughter is allergic to milk and will keep her on almond milk and then she said well i guess we can test her and it turned out she was a "2"! we know what is best for our kids and need to be there advocate. i have talked to a couple other moms in my town that have had the same issue to so its sad. she is 3 now and her hair is growing again and is not sick and constipated anymore. i think the drs see a # but we see symptoms and need to look at that more.

User - posted on 04/01/2012

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Go to allergy doctor. It can be asthma. I had the same problem with ma daughter, and after 2 years of asking we want to allergy doctor. Is was beginning of asthma.

Will be good. My kids have many food allergies. I have a blog with recipes for kids with food allergy, and some craft for them.



Idealhousewife.wordpress.com

Sharmaine - posted on 03/23/2012

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My son REFUSED Neocate! It was so gross he went on a hunger strike and would not eat.. I put fruit in it just to get some food in him and he ended up with diarrhea. I switched him to Alimentum and he is great now!! I have read a lot about neocate since he was on it, and everyone complains of the smell and the taste and how children hate it so much. They have a vanilla flavored one but thats for 12+ months.

Monica - posted on 03/13/2012

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Both of my children had allergies to milk and soy protein. I nursed and had to cut dairy and soy out of my diet. My daughter outgrew both allergies by the time she was 2. My son outgrew the dairy allergy, but sometimes has trouble digesting it late at night. He still can't tolerate soy.



When I introduced dairy to them, I started with small amounts of yogurt. This was on the advice of a friend who is a neonatal dietician. Once that went well, we introduced cheese and last milk. Hope that helps.



BTW, the pediatrician I have with my son never believed that there was an issue with the dairy or soy, but since the stomach cramps, bloody stools and rashes went away when I cut them out, I'm convinced.

Samantha - posted on 12/04/2011

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hi there I have a 10month old who is allergic to cows milk protein and soy im still breast feeding an very carefully buy her baby ffood or do it from scratch its hard but you get used to it...im planning to stop bf at 1 and im worried sick of what will happen then.xx

Selena - posted on 11/06/2011

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I know what you mean. I wish they wouldn't dismiss us when we tell them something is wrong! My daughter had issues with eczema, reflux, etc., and I asked about testing for food allergies, but they kept discouraging me and I finally insisted at 18 months and found out she did, indeed, have several food allergies. We had always suspected a milk protein allergy (even the pediatrician), but they didn't seem too concerned, which I find odd/irritating in retrospect. We switched my daughter to soy formula at 5 months and that helped her eczema quite a bit and then we went to soy milk at 12 months. Her eczema got better, but she had lots of gas pains and constipation issues. At 18 months, we found out she had a soy allergy and switched to hemp milk and that was GREAT! If you check out my blog, you will see how much I love hemp milk and the Medical History/Timeline tells our story, thus far. I hope you find more answers, soon!
http://amazingandatiopic.blogspot.com

Kory - posted on 10/19/2011

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Good luck with your little one! I have a son who just turned 1 this month who is milk protein intolerant. We FINALLY figured this out when he was 4 ½ months old and every minute before we figured it out was horrible – filled with crying, pain, gas squirming, all over misery, (but not the typical throwing up or mucusy stools). Milk allergies/intolerances can be very frustrating but the more you educate yourself the happier your baby will be and the easier it will be to manage your daughter’s condition. First, intolerance vs. allergy. (Disclaimer…I’m not a doctor or nurse so this is my mom’s version of explaining…) milk allergies are serious and are the type that require you keep an epi pen on hand and you will see the rashes/hives/swelling/breathing problems. Milk Intolerances are the stomach/intestine issues they get that have some/all of: discomfort/gas/diareha/vomiting/mucusey stools/exczema...

The hypoallergenic formulas sound like your only option now (since soy didn’t work) or if you are still breastfeeding, you will need to pump and dump for several weeks and just eliminate all dairy from your diet (label will say milk, casean, whea, ….) There are tons of sources for dairy/soy free foods on the market. It is a total pain but totally do-able. I did the pump&dump with dairy/soy free for 2 months but because my son still was reacting so negatively to the little bit of dairy that was left in my system after the 2 month challenge, I just couldn’t’ make him suffer any more and threw in the towel and switched him to formula full time. Fortunately for us he is not allergic to soy so we tried that. But Similac and Enfamil both make the hypoallergenic formula. If you call the companies, they will send you some samples/coupons. Also, your Dr’s office should have samples (if they say they don’t have any – ask them to contact the sales rep to get you some).

Here are some links to resources for you about foods/recipies/etc… – there are many more out there so I encourage you to search for some on your own: https://spreadsheets.google.com/pub?key=...

http://community.babycenter.com/groups/a...

http://milkintolerance.org/

http://www.milkfreekids.com/

I hope this information is helpful to you. Good luck!

Also, this is a condition that your Dr. should have been testing for and treating. If your Dr is not doing a good job for you and your daughter, I'd recommend getting a new one! :)

User - posted on 10/17/2011

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My 2 year old is allergic to milk protein and he is on a special soy milk and tofu.

Catharine - posted on 07/07/2011

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Hello,

My three year old had allergies to everything, especially milk protein and eventually ended up with Eosinophilic Esophagitis, bleeding ulcers, and has now been on Neocate Jr. for more than a year. He has been unable to eat solid food and will start a partial hospitalization feeding program this August to teach the basics of feeding and swallowing. He has had three endoscopies so far and will need at least one more. The good news is that he outgrew all of his allergies except pork and peanuts and we are now simply dealing with the aftermath and waiting for digestive healing. He does have an Epipen and Benadryl and he continues to need Nexxium to heal the damage from the EE and acid reflux, and laxatives to counteract the constipation from the Nexxium. However, he is now finally in preschool, has not been hospitalized in more than a year, and my husband and I can finally relax and catch our breath from the constant worrying. Good luck and this is something that may get much easier for you all in time. I hope so!

Shanna - posted on 06/28/2011

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omg i was just going to post this same thing!! my son is a month old would constantly scream he was spitting and and had bad diarrhea. dr said it was cows milk allergy and switched to soy same issues on it so i took him back, dr said it was the proteins in the milk possibly bothering him he is now on similac alimentim (SP) and is a totally different baby he is doing nothing but smiling and laughing

Teri - posted on 06/19/2011

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I had a son who was severly dairy intolerant. Had to go all dairy free but in 3 weeks he was much happier, in 6 weeks he started sleeping tons better. it was so worth it. Cow's milk is pretty evil for humans .. some kids just have issues with it. It does go away. but we find that even now at almost 5, my son has issues if it builds up in his system.

Jessie - posted on 03/11/2011

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Not that young but yes. My son was breastfed exclusively for 6 months (and I dont eat much dairy so it didnt present any issues, at that point) However around that time I began to have trouble pumping enough breasmilk for him and started to supplement while he was at daycare. it was only a few bottles per week but it never agreed with him, period. He began eating yogurt and cheese around 10 months and seemd to be ok, but THEN we gave him cows milk in a cup after he turned one. all HELL broke loose! Mostly it came out as diarrhea and not vomit but also included bloating, gas, irritability and lack of eating (and he normally was a very good eater) Turns out he is intolerant to dairy, found out at 15 months that he is also intolerant and allergic to wheat. I ended up weaning him from nursing at 16 months because keeping up with his special dietary needs for both of us (because I was nursing I couldn't have it either) was too much stress. When she is old enough (I think its one year old) you may be interested in seeing an allergy specialist for prick tests if problems continue to determine any other issues. hope that helps

Joanna - posted on 03/04/2011

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I have a similar story to all of the above. Me myself have a child thats allergic to milk protein and Soy. Since he was born i was feeding him Similac formula and i noticed after every feed he would vomit. When he was 1 1/2 he was hospitalize and thats when they discover that he had a milk allergy they also discover his acid reflex and his eczema. Hes also been on Elecare for the pass 2 years. Its hard dealing with this situation I walk around with a Epi-Pen and Benadryl every where i go. Now Im very careful with what i feed him. Mostly all his food comes from an Organic store. Does anyone know any nondairy n soy free recipes?

Yitza - posted on 03/02/2011

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These stories are all so similar.. Here is mine, I breastfed my baby from day one. He threw up after every feeding and had really bad eczema on the face. One hectic day in month 5, I decided to give my baby formula, just to have a few hours to myself. That didn't work out as planned. A few minutes after the bottle he started turning red, ears started swelling and eyes started closing. I immediately took him to the emergency room where they gave him Benadryl. Turns out he's been allergic to milk protein since day one but wasn't figured out till then. He had the eczema in the face because he was getting a reaction to my milk and the doctors did not figure that out. He has since been tested and is also allergic to eggs. He is now about to be 2 and on Elecare which is a formula specifically for children with food allergies. Now I'm just dealing with avoiding accidents. I'm a walking pharmacy. The hardest part of all this is feeding him. Anyone know of good nondairy recipes?

Doris - posted on 02/28/2011

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Technically spitting up is normal. Excessive spitting up and/or vomitting every time they eat is not and that's usually what happens with babies that are allergic. I'm sorry for everything you have had to go through. This story is all to familiar to me. My son is now 15 but when he was a baby he was allergic to milk protein too but he wasn't diagnosed until he was 15 months old. For 1 whole year he suffered, cried and spit up/ vomitted all of the time. We switched his formula to soy, nutramigen, alimentum, etc. but nothing seemed to work but he continued to stay on formula until he was a year old. What I found out after the fact is that most formulas are made from cow's milk proteins therefore babies who can't break down the protein have problems with the formula. Since we did not know my son had the cow milk protein allergy at the time , we put him on whole milk at 1 yr with the hope that it would all end. Although the crying and spitting up stopped he started to break out from head to toe with this awful rash. His ped back then just kept saying it was a virus. After 3 mos of this rash and a new doctor, I was told he had a classic case of eczema because he was allergic to cow's milk. Whew! Finally an answer. LOL. Back then there weren't many options so we had to switch to goats milk, have him eat lots of green leafy veggies and take tums for calcium. I also read years later that children who are allergic to cow's milk protein are typically also allergic to soy. Good luck !
Glad to hear there is a formula out there now that works for your daughter.

Kim - posted on 02/17/2011

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My son had gastorentoitis when he was about 1yr old, then got sick every night after every bottle and diarrhea and very stinky gas from both ends . The doctors said it was a tummy bug and to give him calpol and ibruprofen as that what they said to the gastorentortis. I did as they told me to, for 2 months.I diganosed him with lactose intorerance by INTERNET. I figuered it out. I took him to the doctors the next day and the (famale, english,no offence) doctor listened to me! and rushed him to the hospital. Then the doctor (male,foreigner),no offence) there tried to tell me it wasn't! I shouted at him a lot. and he then got me on to a nutritionist and allergy advice doctor to ring me, now my son is still on soya milk and he doesn't know the difference. he can have a little chocolate and cake, but I try and make all his cakes and really have to look at the labels.

Claire - posted on 01/06/2011

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hi yes my 3 year old daughter is allergic to cows milk protiene soya and oranges,grape,rasiens,pink calpol,jelly, it took us ages to get my daughter tested and then when she did it came up negative which was most frustrating, but how ever just because it came up neg doesn't mean that she's not, so this could be y they are not testing your child because it never really gives you the true results as it was expained to me. All i can say is go with your instints and get a second opinion. Trust me i know how hard you have to fight with some doctors, as we found out our second oppinion from a different hospital has been fantastic and given us lots of answers. hope this helps.

Randi - posted on 01/01/2011

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My son had the same problem. He was switched to a similar formula. Unfortunately, there wasn't a test done until he was 11 months and saw an allergist. It is considered a Cow's milk protein hypersensitivity. Unfortunately, his sensitivity didn't stop at formula and he now has a strictly dairy-free diet. I understand that it is very common and it is also very common that it is a condition that children grow out of.
I sincerely hope that your daughter is not like my son. I hope she does grow out of this sensitivity.
Good Luck!

Randi - posted on 12/13/2010

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My son had the same issue. When he was 5 days, he threw up everything and it got to the point where he literally could not swallow. He was switched to a formula called Nutramigen.

He was on that until he was 14 months and was switched to soy formula by his allergist. He started on soy milk when he was 18 months.

Unfortunately, he was not officially diagnosed with a DAIRY allergy until 10 months, so I wasn't REALLY checking the ingredients labels like I should have been and he cried all the time because he had so much gas. We have since adopted a dairy-free diet and that seems to be doing quite well.



I am not sure if Nutramigen is a formula you have tried. It's made by Enfamil and it's for babies with Cow's Milk Protein Hypersensitivity. Unfortunately, it's also fairly expensive. Similac makes a similar formula called Alimentum. It's also fairly expensive, but with a prescription, I was able to get state assistance for my son's need. It didn't cover all of it, but they did give us 6 cans a months and it costs anywhere from $23 to $27 per can where I live.



My son still spit a a bit, but I was told by his doctor that he is digesting just as much as he's puking up. I also found that giving him Mylicon before or after every feeding helped.



Not sure if this was helpful, but there you have it. And I wish you the best of luck!

Jessie - posted on 10/20/2010

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no I breastfed my son but I know now that the dairy I ate in my own diet caused most of his stomach discomfort, gas, bloating, etc. we didnt KNOW about his milk problem until he turned one and we gave him cows milk. DISASTER! we also just discovered a few days ago that he has a wheat intolerance. so now he cant have wheat or dairy and I can have very little because of breastfeeding. oh joy. it could always be worse right? I would hazard to guess you should look into finding a doctor who is more sensitive to your concerns for your daughter. my sons doctor sent him to an allergist after his 15 months appointment and his only real sign he had another problem (besides milk) was ezcema on his face.

Stifler's - posted on 08/18/2010

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No my kid was "diagnosed" with reflux. But I am giving him rice milk and he isn't screaming and throwing up anymore so I gather that he is allergic to dairy or something else that is also in lactose free and soy formulas. It's been a struggle with doctors too. They always say it's normal and stuff and I knew that it was more serious than that. I think he's also allergic to wheat.

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