Cleft Lip/Palate

[deleted account] ( 12 moms have responded )

Hi! My son Tyler was born March 25, 2008 with a complete unilateral cleft lip and a bilateral cleft palate. He had his first surgery in June to repair his lip and he is scheduled for palate surgery in January.



Anybody else have a child with cleft lip or palate?

12 Comments

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IRMA - posted on 04/14/2016

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I have a daughter shes 2 years old when i was pregnat we went to find out the gender i was told dat my daughter had a clift lip and palate i am now pregnat just found out but we scared dag our baby would be born with a clift lip and palate since our first daughter was born

Cheri - posted on 02/23/2009

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Hi Nicole,



My daughter Madeleine was born on the 24th and she has an incomplete cleft of the soft and hard palate.  She has her palate repair scheduled 2 weeks from wedneday (march 11th).  I'm so nervous but I am sure things will go well (I hope!).

Jennifer - posted on 02/01/2009

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my name is jennifer.My son johnathon was born with bilateral cleft lip and palate.My

son has had 6 surgerys and he is now 9. I've gotten to the point where i get to stay with

him untill he is under.being there for him durring that time and giving him over to the care of nurses and docters is the hardest thing i've ever done in my life.It doesnt seem to get easier to walk away and wait.

Jessica - posted on 01/23/2009

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Hello my daughter Gena was born with a unilateral cleft lip and primary palate (gumline),in June 2008. She had her surgery Oct. 2nd,2008. It was the hardest thing giving my child to the nurses for her surgery. We have went through and are still going through alot with her. If anyone has any questions I am here.

Jennifer - posted on 01/12/2009

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My son Jacob was born on July 15, 2006 with a unilateral complete cleft lip and palate. He had his lip repair on February 14, 2007 at Sick Kids in Toronto then his palate repair on August 5, 2007. The surgeon, Dr. Fisher, did an amazing job and most people cannot even tell he had a cleft! We recently had his genetic teting done and found out that his cleft is completely isolated, which was a relief. Because of that, he only has an elevated 3% chance of passing it on to his children! We are hoping that he starts his speech therapy soon as that is the only area where he has really struggled. He has lots of words, but his pronounciation is not very good! Thank goodness for technology today and for the amazing cleft team at Sick Kids!!

Jerilyn - posted on 01/07/2009

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My oldest was born with a cleft lip... his is now almost 3 years old. Everything is going good... he will have it re touched up when his two front adult teeth come in. One recommendation I can say to you is to make sure that no food get caught up by the scare.. Dominic has had his front tooth filled once already and we have to go back again to get it done again... I try to brush his teeth three times a day, to prevent any more happening, but that scare right on top of his tooth really keeps bacteria there... just a heads up for every one.



Jerilyn

Rachael - posted on 11/26/2008

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My daughter is done with her surgery. She had it 2 weeks ago now and is doing great. Although it was the most terrifying thing I have had to do, letting her go back without me, I am glad it is done. We had a tough week following. Two days after surgery she got a stomach virus and then 2 days later she got an ear infection. Poor thing!! She is now back to herself. She does have to wear nose stents for the next 3 months for 12 hours a day but it sounds a lot worse then it really is. She looks beautiful even 2 weeks later. I can't believe how good the incision looks.



If anyone has any questions I would be happy to answer them.

Danielle - posted on 11/25/2008

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No Nicole I don't have a child with cleft lip or palate, but I am a Speech Pathologist who serves children like your son. The surgeons are amazing in what they can do to help these kiddos, then speech therapy will help with the rest of it. My son did have to have eye surgery at 6 months and 9 months - which isn't quite as involved, but I know how horrible that feeling is when you have to let someone wheel your baby away to go under anesthesia. I think this is an awesome way for you to link up with other moms. Good luck with surgery number two and I'm sure everything will go smoothly :)

April - posted on 11/25/2008

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My son is six weeks old and has a cleft lip and palate. His cleft is wider than usual. He too has a unilateral lip and hard palate and then a bilateral soft palate. I couldn't find anyone who had a child with a cleft to ask questions. It's been a challenge, he is my second child and my first is only 22 months.

Suzanne - posted on 11/09/2008

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Hi Nicole,

I don't, but I have worked with many children who do. Best of luck with the surgery..I'm sure he'll do fine. Funny, my daughter Jillian was born on 3/25 as well !

Rachael - posted on 11/08/2008

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I have a daughter that was born with a partial cleft lip. She is having her lip repaired this Thursday. What can you tell me about this surgery and the recovery. She is 4 months old. I am scared to death about the recovery. Can you give me any insights as to what to expect? The doctor has told me but it seems so much more meaningful coming from a mom that has gone through it. Thank you!!

Charmaine - posted on 10/28/2008

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I don't have a child myself but a friend does. She says she did find it difficult but all the surgery and speech therapy helped. He looks like a normal little one. well as normal as a child look. Just dont worry we have upto date equipment to help with these problems.



I bet he is one of the cheekiest babies around?!?

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