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Masto Mommies

Group for moms with children with mastocytosis


Sleep & Behavioral Issues

Has anyone noticed that their child has sleep or behavioral/developmental issues? Do you think it\'s masto related? What has worked for you (for sleep issues)? \n\nJust...

Started by Kelly on 01/09/2009 in Masto Mommies

Last update on 09/28/2013 by Courtney


Daughter with mastocytosis

My name is Erin I am a single mom with 2 girls, 16 and 11. My Daughter Mariah(11 yo) was diagnosed with mastocytosis when she was 17 months old. By the grace of god she has...

Started by Erin on 07/16/2009 in Masto Mommies

Last update on 01/01/2013 by Renea


Mum of a Masto Boy

My son developed Masto spots around 6 weeks old and guess diagnosed at about 6 months. I have found that not that many doctors know about this condition. He has seen several...

Started by Nicole on 02/21/2009 in Masto Mommies

Last update on 04/20/2012 by Lindsay


Hi ;-)

Hello! It's great to see a masto group on here! I'm Anna mum to Jake who is 2yrs old and has CM/UP. Anna x

Started by Anna on 04/04/2009 in Masto Mommies

Last update on 06/29/2009 by Kelly


Finally a group for Mastocytosis! So Happy!

My daughter was diagnosed with Masto when she was only 15 months. I am so happy that there are others out there who are dealing with this disorder. I felt like I was the only...

Started by Jennifer on 05/06/2009 in Masto Mommies

Last update on 06/29/2009 by Kelly


son with UP

Hi! How exciting to find a group on Facebook! My son was diasgnosed with UP at around 2 mionths of age. He continues to get spots but otherwise is a very healthy and happy...

Started by Stacey on 11/16/2008 in Masto Mommies

Last update on 12/26/2008 by Kelly