Out of curiousity... How many of you have normal functioning children with microcephaly?

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Francine - posted on 08/09/2013

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What do you mean by globally delayed? My experience? Well, we're in the military and my son is barely 1 but with the recent move I've been trying to get appointments before and after. So hopefully we'll see soon. They say his development is ok. Only recently I've noticed he's a little behind but I'm not too sure if it's a delay or if he's just scared to move because he starts to cry when he pulls up on objects.

Francine - posted on 08/09/2013

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My son was diagnosed by a neurosurgeon after a MRI test. He also had a CT scan prior to that as well, blood tests to check for other disorders. We're seeing a geneticist soon but that's all we know for now. They saw no problems with the tests, no need for surgery. They said he has a small head because his brain isn't as big as the norm.

Sandy - posted on 08/06/2013

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Hi Aneela. How did they determine your son has Microcephaly? I am waiting for his insurance to approve a CT scan to look at his brain. He is delayed mostly in speech...he is a bit clumsy and tends to lose his balance a lot but he can walk, loves to color, dances, shakes his head no...understand very much but just can't communicate. It does seem though over the past 2 weeks he's been trying very hard. I can see him mouthing things but no sounds.

Aneela - posted on 06/29/2013

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Hi Francine
I just joined this community as my son has just been diagnosed at 3 and a half but is globally delayed. I am hoping to help him progress as much as possible,

What is your experience?

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