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Developmental Dysplasia Of The Hip -DDH

Margaret-Ann - posted on 09/09/2010 ( 9 moms have responded )

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Hey I've just found out that my 15 month old daughter was born with a dislocated hip. She's going to need an operation to put the joint where it should be, she'll be in cast for 6 weeks. Then another operation where the cut the thigh bone and align the knee and foot to where it should be, she'll be in cast or a further 12 weeks. Is this normal for DDH? I'm worried about getting out and about with the cast and also feeding time as she won't be able to use the highchair that we have. Also worried about buggy and car seat use. Anyone got any tips on how to make getting about easier??

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Kim - posted on 04/06/2011

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Hello, my daughter was also born with dislocated hips. But that was 16 years ago, and they placed her in a pavlik harness. But here we are 16 years later needing hip surgery, and she and I both are scared to death!! I created a blog because not many parents have issues later on down the road. http://destineesjourney.blogspot.com. Good luck to everyone going through it. My biggest upset was not being able to cuddle my daughter because she was diagnosed the day she was born and by day 2 she was placed in harness.

Kim - posted on 04/06/2011

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Hello, my daughter was also born with dislocated hips. But that was 16 years ago, and they placed her in a pavlik harness. But here we are 16 years later needing hip surgery, and she and I both are scared to death!! I created a blog because not many parents have issues later on down the road. http://destineesjourney.blogspot.com. Good luck to everyone going through it. My biggest upset was not being able to cuddle my daughter because she was diagnosed the day she was born and by day 2 she was placed in harness.

User - posted on 03/15/2011

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Maureen and Margaret Ann check Steps webs site, face book "i love a kid in a hip cast" page and search hip on facebook lots of others with same issues. don't worry it will be fine

User - posted on 03/15/2011

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don't worry you can fit child in a Maclaren buggy or a double buggy or other kind that has no tray. also you can rent or buy car seats for example britax hippo. ask occupational health therapist at hospital for information and help with hoist commode etc if older child

Margaret-Ann - posted on 03/02/2011

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My daughter is 21 months. Was he in a cast when he was younger too? Must be awful being in that situation now that he is older. No wonder he's not happy. There must be so many things that he's dying to do. Is he able to move about or do you have to help him with that?

User - posted on 03/01/2011

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Good news about your cast off. How old is daughter? Andrew is 6, he had issues at birth to 3 but thought had cleared up. Now in orange hard pants. he can't even sit up properly and is not a happy bunny

Margaret-Ann - posted on 03/01/2011

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Hi Louise, out of cast 2 weeks ago. Slow progress but getting there. Still not walking but physio therapist have advised that it could take a while to strengthen her bones and leg muscles. We have bought a walk-along to help. If there's anything you want to ask feel free. Hope all goes well with your LO.

Maureen - posted on 12/30/2010

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Hi there. I have similar questions... My 18month old has just been diagnosed with DDH. Havn't seen the specialist yet but the x-ray shows complete dislocation. She will need an op and the cast I'm assuming. And I'm very worried about the practicalities - nappies, car seat, pram, high chair, child care, keeping her entertained, and how she will cope with her lose of mobility. Anyone's experience/tips would be helpful.

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