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Any have a child with a visual impairment?

Lisa - posted on 05/22/2010 ( 1 mom has responded )

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Just wondering if anyone here has a child that is blind or visually impaired. My 4 month old has a string of health problems, one of which resulted in her optic nerves not developing. The extent of her impairment is still unknown, but the doctors are sure regardless of if she has any vision, it will be minimal and possibly not functional. Anyone have any ideas as to things I can do at home to make sure she develops at a somewhat normal rate? I already tell her when I am picking her up and describe where I am going when I carry her. She is trying to roll over, but isn't completing it yet. She just likes to hang out on her side. Any ideas on what I can do to encourage her to complete the roll?

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JuLeah - posted on 05/22/2010

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Hi.



Yah, language will be a key. Her her feel, touch, explore everything you can. Some kids can look at a picture in a book and know about trees, she will have to hug one and climb on one.

She will roll over in good time.



She will want to explore her world, so you will need to make sure it is safe for her. Baby proof at a new level. She won't see drop off, steps down, sharp objects. She will have to be taught to 'look' for them.



I would, as soon as possible, bring a vision guide into her life. She can learn how to safetly move through her world. The computers, the techno stuff out there for folks who are blind is amazing.



Contact the center for the blind, or whatever they call it where you live. They will be of great help.



When I was young I knew a boy who was blind. He owns his own computer company, is married ..... his folks never let 'blind' be an excuse for anything. He mowed the lawn, he washed the car, he was expected to do well in school .... they held him to the same standards as their other kids.



I knew another boy, not as well, who was also blind. His only disability was loss of sight, but his parents thought that was a big big deal. They homeschooled him because they were fearful of time he spent out of the house.



I met him as a teen, and he could not even tie his own shoes. He sat in a rocking chair by his bedroom window most of the day doing nothing. It broke my heart.



A lot of professional will tell you over the coming year all your daughter 'can't' do and will never do. Make sure she doesn't hear this or she might believe it. I can think, off the top of my head, of several children who walk after their parents were told they never would.



One woman I know, her parents were told she was retarded and would never speak. Turns out, she was/is deaf not retarded.



Just use care when talking with the experts. Never forget you are the expert on your child.

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