Extreme side eddects of Respiridone?

Amber - posted on 06/19/2012 ( 11 moms have responded )

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I'm new here, and just looking for some help or ideas...

My 6 year old son was diagnosed with ADHD last year, but due to his Extreme aggression and violent tendencies I still believe there is more to it. He was taking Focalin, which seemed to calm him down but all the way to the point he was chewing and picking the skin off of his hands and refused to eat. I went back last week and his pediatrician put him on 5mg Adderral and added 2.5mg Respiridone to help with the aggression. Two days later he was hospitalized! Within 30 minutes of taking the Respiridone on the second day he began telling me he couldn't talk and sounded tongue-tied? Then started crying that he couldn't breathe and laid on the floor. Naturally I rushed him to the ER (he passed out in my car on the way there). He was put on an iv and given benadryl to counteract all the negative effects of this drug toxicity. He remained asleep (only getting up for 1-2 hours once a day for the next 3 days!! (Of course I did not give him any of the meds after he was initially hospitalized).Now, here's my question...Have any of you had any experience with Respiridone and if so, what was the initial dosage given? The more I seem to read the more I realize that a starting dosage of 2.5mg for a 6 year old 40lb little boy is extreme at best! I only wanted to help him and so far all the doctors have done is hurt him more. He woke up just long enough yesterday to ask me if the white pills (respiridone) was what made him not be able to breathe? When I said yes, he asked if I was going to make him take it again when he got better? After the tears, I'm left half heart broken and half furious...Any one else have any negative reactions with this med?

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Michelle - posted on 06/19/2012

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My son is 11 and approx 70 lbs and only takes .75mg of risperidone, when he was first diagnosed he was given .25mg I think someone screwed up on his perscription as 2.5mg is way out to lunch

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Danielle - posted on 07/26/2012

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My Son is 4 1/2 years old and had the same behavioral issues. Very aggressive, would not focus or follow directions and had a horrible sleep pattern. He never naps and so on. My son was diagnoses with PDD-NOS which stands for Pervasive Developmental Disorder-Not Otherwise Specified with some Asperger Syndrome signs along with being ADHD and OCD signs as well. He is on Kapvay 0.1mg 3x a day now and Respiridone 0.25mg 2x a day. We just started the Respiridone today and all I have really seen is he has napped today and has been less aggressive and more willing to listen today then normal, but we also just started the Kapvay 3 x a day instead of 2x a day today as well.



With school being out DS has had a horrible summer because his routine changed. Rouintes help greatly with him. I know how you feel. I can never take DS anywhere without a horrible meltdown resulting in me getting my hair pulled, getting bit or kicked or punched. I would get him better looked at with the aggressiveness.



Ds goes through IEP's na dis enrolled in a ECSE(early childhood speical education) 2 year pre-school program. Which has helped him greatly. last summer he couldn't draw things, talk sentences, say his ABC"s or even count. Now Even with the PDD-NOS and the ADHD he can do all those things and more.



Good luck with everything

Amber - posted on 07/26/2012

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Thank you so much for the advice! I will definitely be scheduling meetings before school starts, so we do not have a repeat of last year. I fought my "gut feeling" for months because like you I believed he just needed to learn how to control himself around others. That was until I realized how he was being treated. I already had him tested and diagnosed by the same psychologist that our school district uses, so I'm hoping that will be one less hurdle to jump through in the coming months. It's such a relief to know that there are other parents dealing with these issues and are having some success. I really appreicate your help!

Jennifer - posted on 07/26/2012

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If you are in the States, then you have many options, none of which should be to tie him to a chair!! It is very hard to educate people on mental health disorders, but you definitely are the one true advocate for your child. First, you need to request special accommodations under section 504 of the Americans with Disabilities Act (ADA) and Education Code. Make this request as soon as possible. This is a federal statute that is the same from state to state, so no excuses from administrators are allowed. There are certain time frames that have to be met, or the school/district can face legal consequences. Once that ball is rolling, you will have a chance to meet with teachers/administrators about the special arrangements for your child. Those arrangement could be as little as preferential seating in the classroom to modified assignments/testing. Behavior programs can also be set up. Your child will receive an Individual Education Plan (IEP) to help implement these arrangements/special considerations. The next step would be classification as 'Special Education' (SPED). That's a whole 'nother ball game. Being classified as SPED requires testing through the district, psychological testing through the district, and academic evaluation, among lots of other things. But these are the technical things that can be done. Most important is communicating with your child's teacher. Your teacher will be able to see what is going on, and help your child be successful in the classroom. Set up a behavior plan, have a daily communication folder, meet with him/her once every couple of weeks, etc. Stay on top of behavior and academic performance. And if you have a teacher who is not inclined to help your child be successful, request a meeting with administrators to see what can be put into place to help your child. Document, document, document. Don't ignore your gut feeling. I left my son in a classroom in Kindergarten that I just knew he was miserable in because I thought "He has to learn to get along with other people". I changed his class midway through the year, and realized that he had a major personality conflict with the first teacher. The second teacher had experience dealing with kids like him, and it got much better. You should never have to switch schools because of lack of teacher/administrator support. I would call the school, and talk to the administrator who is in charge of Special Education/Curriculum for your campus. You can request a meeting to talk about some specific needs for your child, what programs are available at that campus, and request that your child's special needs be taken into account when determining teacher/class placement. It is never too early to start these steps. As a matter of fact, I have a meeting next week with the administrator at my son's new school. He is now in fifth grade, moving out of elementary school into intermediate school, and I want everything in place before he steps into that school on Aug. 27!!

Amber - posted on 07/26/2012

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I can definitely relate to the bruises and having to physically restrain my child for the protection of others when the anger is at a peak. Fortunately his daycare teachers have also found ways to deal with this which is more than I could've really asked them to do. I don't know what I would do if they were not so patient. I too am hoping school does not cause a backslide in progress. At home I have found that if I can keep my emotions under control when he rages, and not give him the reaction he is hoping for he recovers much quicker. I have also been trying to give him more control and allow him to make his own decisions as much as possible. I have learned what is worth fighting and what's not. I am still very uneasy about the stimulant medications, but his doctor is really hesitant to try anything else because he is only 6 years old. I am bipolar and ADHD so I can also relate to what you were saying about the meds for one aggrevating the other. It's hard for me to remember that what worked for me might not necessarily work for him. Since you are a teacher, do you have any suggestions on how to confront his issues with the school this year? I had to switch him to a new school mid year because their way of dealing with him was to tie him to a chair with his shoelaces! I feel that I am blamed by all for his actions (which I was expecting and prepared to deal with for many years to come). However, I am just looking for a way to explain his situation to his new school (just moved) so that he has the best chance of success.

Jennifer - posted on 07/26/2012

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My son is diagnosed Bipolar, ODD, Anxiety, and ADHD. We call it alphabet soup. We have struggled over the last 3 years to really find a medicine regimen that works for him. He is extremely aggressive; I have a bruise on my upper arm the size of an egg because he punched me last week. We recently modified medicine to include Zyprexa, Depakote, and Trazodone. We started with small doses of the Depakote and and gradually increased to a higher dosage over 1 week. Everything was (almost) perfect until we had been at the higher dosage for about 1.5 weeks, and then he did a 180. So I backed down the depakote, and he was back to (almost) perfect. Our doctor really believes that we, as parents, can see that something is/isn't right for the child. I teach in our district, so I have been able to see a lot of behavior programs used with some of the students in behavior modification. I took some ideas from several programs, and came up with a behavior program that has really helped my son. We don't treat the ADHD because stimulants that normally treat ADHD are contra-indicated for Bipolar disorder. Medicine won't fix everything, and it definitely won't help when he gets that point where his rage is completely out of control. The behavior program really lets him feel in control of the outcomes/consequences of his actions. But when the rage is at a high peak, I have been known to put a big bear hug on him, and put him on the ground to protect him and the others around him. I have found that his behavior is generally worse at home than at school - this is typical of all children because of the comfort of home. We are on summer break right now, so I hope that the stress of going back to school in a month doesn't get the best of him.

Amber - posted on 07/26/2012

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Those are definitely the issues we have been dealing with. He was finally diagnosed last week with ODD with characteristics of conduct disorder and intermittent explosive disorder. Of course he is ADHD as well. He has been on Clonidine roughly 4 weeks now, and recently switched him to Focalin XR for the ADHD because regular Focalin was not lasting long enough to get through school even taking it twice a day. He seems to be improving this last week. I'm just praying it lasts. Have you found any successful ways to handle the episodes of aggression? We're still struggling with it at home even though school is improving.

Katie - posted on 07/26/2012

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It actually sounds like you have some of the same issues we're dealing with. We have extreme aggression, mood swings, rages and severe ADHD. My son was diagnosed ADHD, ODD and mood disorder (OS).

Katie - posted on 07/26/2012

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When my son started he was only on .25 3x a day. At the most he was taking 3mg a day. Someone messed up majorly. Also we had major issues with aggression and mood swings with the adderral also.

Jennifer - posted on 06/21/2012

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My son was on resperidone when he was 9-10, and only about 50-60 lbs. He started off at .25 mg per day, and we gradually increased over a few months to .5 mg in the morning and 1.5 mg at night. You have to watch prolactin levels when taking this medicine, and we eventually took him off after about 1.5 years. His prolactin levels had gotten too high. Extreme aggression & violent tendencies equals more than ADHD. I would seek a second opinion on diagnosis.

Amber - posted on 06/20/2012

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Thank you so much! I am taking him back to the doctor today because it is now Wednesday and he has been asleep pretty much constantly since Sunday. It is good to have something to compare him to, and I now know this was a huge screw up on the doctor's part! I'm sad because I think we might have finally been on track to help him had the doctor not given him 10x the amount needed. Now he's affraid to take anything and I can't say I blame him :(

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